http://powerfulpatient.org This series is to help you learn how to take control and steer your way to health, no matter what medical challenges you face. Hear how others have met these challenges and overcome them. Learn how you can do so too. We will empower you to create a health care team of which you are a respected member. en-us Copyright 2012 Wed, 27 Oct 2011 13:00:01 EST joyce.graff@powerfulpatient.org (Joyce Graff) webmaster@vhl.org (Joyce Graff) Elizabeth Batson's new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose siblings have special needs with parenting help from a professional. The book offers parents insight and practical advice on how to help their children deal with issues such as embarrassment, the wish for understanding, the sense of responsibility, the importance of fairness, the need for protection, and the sense love and joy that they share with their brother or sister. Elizabeth Batson's new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose siblings have special needs with parenting help from a professional. The book offers parents insight and practical advice on how to help their children deal with issues such as embarrassment, the wish for understanding, the sense of responsibility, the importance of fairness, the need for protection, and the sense love and joy that they share with their brother or sister.! http://www.powerfulpatient.org/archive/2011/week1144_batson.php http://www.powerfulpatient.org/archive/2011/week1144_batson.php Thu, 27 Oct, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noElizabeth Batson's new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose siblings have special needs with parenting help from a professional. The book offers parents insight and practical advice on how to help their children deal with issues such as embarrassment, the wish for understanding, the sense of responsibility, the importance of fairness, the need for protection, and the sense love and joy that they share with their brother or sister.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Lisa Nagy, M.D., spent years with doctors trying to figure out what was wrong with her. Eventually she realized that the doctors were not going to wave a magic wand and cure her, that she needed to take some action herself. She cleaned up her environment, minimizing all toxic substances, to make sure that her immune system could focus on making her well, not fighting elements in her environment that were making her sick. It worked! Lisa Nagy, M.D., spent years with doctors trying to figure out what was wrong with her. Eventually she realized that the doctors were not going to wave a magic wand and cure her, that she needed to take some action herself. She cleaned up her environment, minimizing all toxic substances, to make sure that her immune system could focus on making her well, not fighting elements in her environment that were making her sick. It worked! http://www.powerfulpatient.org/archive/2011/week1142_nagy.php http://www.powerfulpatient.org/archive/2011/week1142_nagy.php Thu, 20 Oct, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noLisa Nagy, M.D., spent years with doctors trying to figure out what was wrong with her. Eventually she realized that the doctors were not going to wave a magic wand and cure her, that she needed to take some action herself. She cleaned up her environment, minimizing all toxic substances, to make sure that her immune system could focus on making her well, not fighting elements in her environment that were making her sick. It worked!health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating A recent University of North Carolina study showed that the average college football player receives over 300 blows to the head in four seasons. In the pros it is even higher. Autopsy studies show that NFL players with early dememtia do have significant anatomical changes to their brains. Dr. Ronald Glasser, in his new book Broken Bodies, Shattered Minds explores the traumatic injuries of soldiers on the battlefield and football�players on the gridiron. A recent University of North Carolina study showed that the average college football player receives over 300 blows to the head in four seasons. In the pros it is even higher. Autopsy studies show that NFL players with early dememtia do have significant anatomical changes to their brains. Dr. Ronald Glasser, in his new book Broken Bodies, Shattered Minds explores the traumatic injuries of soldiers on the battlefield and football�players on the gridiron. http://www.powerfulpatient.org/archive/2011/week1127_heroes.php http://www.powerfulpatient.org/archive/2011/week1127_heroes.php Thu, 06 Oct, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noA recent University of North Carolina study showed that the average college football player receives over 300 blows to the head in four seasons. In the pros it is even higher. Autopsy studies show that NFL players with early dememtia do have significant anatomical changes to their brains. Dr. Ronald Glasser, in his new book Broken Bodies, Shattered Minds explores the traumatic injuries of soldiers on the battlefield and football�players on the gridiron.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Pain, are you stranded in the Mountains of Misery or simply lost in a Forest of Symptoms? After a disappointing trip to the Mayo Clinic, author Alan E. Smith admits, I suddenly became very open-minded about complementary and alternative medicine (CAM). Like many people he turned to new options after he'd run out of treatments in mainstream medicine. Fortunately he found some therapies that have been very beneficial and have restored much of his health. Pain, are you stranded in the Mountains of Misery or simply lost in a Forest of Symptoms? After a disappointing trip to the Mayo Clinic, author Alan E. Smith admits, I suddenly became very open-minded about complementary and alternative medicine (CAM). Like many people he turned to new options after he'd run out of treatments in mainstream medicine. Fortunately he found some therapies that have been very beneficial and have restored much of his health. http://www.powerfulpatient.org/archive/2011/week1126_unbreak.php http://www.powerfulpatient.org/archive/2011/week1126_unbreak.php Thu, 29 Sep, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noPain, are you stranded in the Mountains of Misery or simply lost in a Forest of Symptoms? After a disappointing trip to the Mayo Clinic, author Alan E. Smith admits, I suddenly became very open-minded about complementary and alternative medicine (CAM). Like many people he turned to new options after he'd run out of treatments in mainstream medicine. Fortunately he found some therapies that have been very beneficial and have restored much of his health.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating For Denise DeSimone, cancer was a chance to live a better, more fulfilling life.An active and healthy 49-year-old, DeSimone suddenly faced the threat of having only three months to live when she was diagnosed with stage IV throat and neck cancer. While most would start naming beneficiaries, DeSimone named her cancer and gave it permission to teach her the lessons she needed to learn. For Denise DeSimone, cancer was a chance to live a better, more fulfilling life.An active and healthy 49-year-old, DeSimone suddenly faced the threat of having only three months to live when she was diagnosed with stage IV throat and neck cancer. While most would start naming beneficiaries, DeSimone named her cancer and gave it permission to teach her the lessons she needed to learn. http://www.powerfulpatient.org/archive/2011/week1125_befriended.php http://www.powerfulpatient.org/archive/2011/week1125_befriended.php Thu, 27 Sep, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noFor Denise DeSimone, cancer was a chance to live a better, more fulfilling life.An active and healthy 49-year-old, DeSimone suddenly faced the threat of having only three months to live when she was diagnosed with stage IV throat and neck cancer. While most would start naming beneficiaries, DeSimone named her cancer and gave it permission to teach her the lessons she needed to learn.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Gracelyn Guyol talks with Joyce about her success healing from cancer and mental depression by overhauling her diet, taking optimum natural supplements, and eliminating chemicals and other potential toxins from her environment that might cause her cells to mutate. Gracelyn Guyol talks with Joyce about her success healing from cancer and mental depression by overhauling her diet, taking optimum natural supplements, and eliminating chemicals and other potential toxins from her environment that might cause her cells to mutate. http://www.powerfulpatient.org/archive/2011/week1124_healing.php http://www.powerfulpatient.org/archive/2011/week1124_healing.php Thu, 01 Sep, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noGracelyn Guyol talks with Joyce about her success healing from cancer and mental depression by overhauling her diet, taking optimum natural supplements, and eliminating chemicals and other potential toxins from her environment that might cause her cells to mutate.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Can pain be a good thing? Joyce talks with Dr. Joanne Messenger about her new book, Be in One Peace, which details how to understand pain as a way to pinpoint mental and physical issues that have been ignored and need to be resolved. Can pain be a good thing? Joyce talks with Dr. Joanne Messenger about her new book, Be in One Peace, which details how to understand pain as a way to pinpoint mental and physical issues that have been ignored and need to be resolved. http://www.powerfulpatient.org/archive/2011/week1123_pain.php http://www.powerfulpatient.org/archive/2011/week1123_pain.php Thu, 11 Aug, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noCan pain be a good thing? Joyce talks with Dr. Joanne Messenger about her new book, Be in One Peace, which details how to understand pain as a way to pinpoint mental and physical issues that have been ignored and need to be resolved.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Sherman Turner thought fighting discrimination in the workplace was his hardest battle - until he suffered a paralyzing stroke, losing most of his memory and his ability to speak. As part of his rehabilitation, his doctors suggested learning another language to "wake up" key parts of his brain.�After immersing himself in the Kenyan culture, Turner regained his speech and began the long road to recovery. Sherman Turner thought fighting discrimination in the workplace was his hardest battle - until he suffered a paralyzing stroke, losing most of his memory and his ability to speak. As part of his rehabilitation, his doctors suggested learning another language to "wake up" key parts of his brain.�After immersing himself in the Kenyan culture, Turner regained his speech and began the long road to recovery. http://www.powerfulpatient.org/archive/2011/week1122_stroke.php http://www.powerfulpatient.org/archive/2011/week1122_stroke.php Thu, 21 Jul, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noSherman Turner thought fighting discrimination in the workplace was his hardest battle - until he suffered a paralyzing stroke, losing most of his memory and his ability to speak. As part of his rehabilitation, his doctors suggested learning another language to "wake up" key parts of his brain.�After immersing himself in the Kenyan culture, Turner regained his speech and began the long road to recovery.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Kidney disease is skyrocketing, but less than 4% of patients with kidney failure are being transplanted for a more normal life. Kidneys4Lives founders Malcolm Broderick and Ed Broderick believe that the solution is largely societal, not medical. They speak with Joyce about their effort to connect people with End Stage Renal Disease (ESRD) with the kidneys they need to improve their health and their quality of life. Kidney disease is skyrocketing, but less than 4% of patients with kidney failure are being transplanted for a more normal life. Kidneys4Lives founders Malcolm Broderick and Ed Broderick believe that the solution is largely societal, not medical. They speak with Joyce about their effort to connect people with End Stage Renal Disease (ESRD) with the kidneys they need to improve their health and their quality of life. http://www.powerfulpatient.org/archive/2011/week1120_transplant.php http://www.powerfulpatient.org/archive/2011/week1120_transplant.php Thu, 30 Jun, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noKidney disease is skyrocketing, but less than 4% of patients with kidney failure are being transplanted for a more normal life. Kidneys4Lives founders Malcolm Broderick and Ed Broderick believe that the solution is largely societal, not medical. They speak with Joyce about their effort to connect people with End Stage Renal Disease (ESRD) with the kidneys they need to improve their health and their quality of life.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Joyce takes questions from the audience about Von Hippel Lindau Disease, or VHL Joyce takes questions from the audience about Von Hippel Lindau Disease, or VHL http://www.powerfulpatient.org/archive/2011/week1119_vhl.php http://www.powerfulpatient.org/archive/2011/week1119_vhl.php Thu, 23 Jun, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noJoyce takes questions from the audience about Von Hippel Lindau Disease, or VHLhealth,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating David G. Hallman speaks with Joyce about his new book, August Farewell, his account of the last days spent with his partner of 33 years, Bill Conklin. Bill was diagnosed with terminal cancer, and they chose to spend those last days of quality time together. David G. Hallman speaks with Joyce about his new book, August Farewell, his account of the last days spent with his partner of 33 years, Bill Conklin. Bill was diagnosed with terminal cancer, and they chose to spend those last days of quality time together. http://www.powerfulpatient.org/archive/2011/week1118_courage.php http://www.powerfulpatient.org/archive/2011/week1118_courage.php Thu, 09 Jun, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noDavid G. Hallman speaks with Joyce about his new book, August Farewell, his account of the last days spent with his partner of 33 years, Bill Conklin. Bill was diagnosed with terminal cancer, and they chose to spend those last days of quality time together.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating George Washington University Medical Professor and 2009 Humanitarian of the year recipient, Dr. Glenn Geelhoed, MD just returned this year from one of his hundred medical missions to the outreaches of Sudan. Dr. Geelhoed has been taking his medical and surgical training to serve 'the bottom billion' for nearly 2 decades and his medical approaches are unconventional, unparallel and unbelievably successful. George Washington University Medical Professor and 2009 Humanitarian of the year recipient, Dr. Glenn Geelhoed, MD just returned this year from one of his hundred medical missions to the outreaches of Sudan. Dr. Geelhoed has been taking his medical and surgical training to serve 'the bottom billion' for nearly 2 decades and his medical approaches are unconventional, unparallel and unbelievably successful. http://www.powerfulpatient.org/archive/2011/week1117_resources.php http://www.powerfulpatient.org/archive/2011/week1117_resources.php Thu, 02 Jun, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noGeorge Washington University Medical Professor and 2009 Humanitarian of the year recipient, Dr. Glenn Geelhoed, MD just returned this year from one of his hundred medical missions to the outreaches of Sudan. Dr. Geelhoed has been taking his medical and surgical training to serve 'the bottom billion' for nearly 2 decades and his medical approaches are unconventional, unparallel and unbelievably successful.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Joyce speaks with Dr. Mohammad Akmal, a respected U.S. dialysis director, and Vasundhara Ramanujan, the mother of a kidney dialysis patient, who have collaborated on a book, SHADES OF LIFE, giving a personal glimpse into the physical, emotional, and psychological impact of kidney disease. Joyce speaks with Dr. Mohammad Akmal, a respected U.S. dialysis director, and Vasundhara Ramanujan, the mother of a kidney dialysis patient, who have collaborated on a book, SHADES OF LIFE, giving a personal glimpse into the physical, emotional, and psychological impact of kidney disease. http://www.powerfulpatient.org/archive/2011/week1116_kidney.php http://www.powerfulpatient.org/archive/2011/week1116_kidney.php Mon, 05 May, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noJoyce speaks with Dr. Mohammad Akmal, a respected U.S. dialysis director, and Vasundhara Ramanujan, the mother of a kidney dialysis patient, who have collaborated on a book, SHADES OF LIFE, giving a personal glimpse into the physical, emotional, and psychological impact of kidney disease.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Janet Cromer has a good idea of what astronaut Mark Kelly and his wife, Congresswoman Gabrielle Giffords have ahead of them, as Giffords recovers from being shot in January. A career nurse and health care writer who specializes in brain injury, Janet has written a chronicle of how she tended to her husband's recovery from brain injury, and how it affected their emotional and physical health, as well as their marriage. Janet Cromer has a good idea of what astronaut Mark Kelly and his wife, Congresswoman Gabrielle Giffords have ahead of them, as Giffords recovers from being shot in January. A career nurse and health care writer who specializes in brain injury, Janet has written a chronicle of how she tended to her husband's recovery from brain injury, and how it affected their emotional and physical health, as well as their marriage. http://www.powerfulpatient.org/archive/2011/week1115_endeavor.php http://www.powerfulpatient.org/archive/2011/week1115_endeavor.php Mon, 25 Apr, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noJanet Cromer has a good idea of what astronaut Mark Kelly and his wife, Congresswoman Gabrielle Giffords have ahead of them, as Giffords recovers from being shot in January. A career nurse and health care writer who specializes in brain injury, Janet has written a chronicle of how she tended to her husband's recovery from brain injury, and how it affected their emotional and physical health, as well as their marriage.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Joyce speaks with patient advocate and author Trisha Torrey, a nationally recognized writer, speaker and workshop teacher on issues related to patient advocacy, who refers to herself as "every patient's advocate". She is author of the book, You Bet Your Life! The 10 Mistakes Every Patient Makes (How to Fix Them to Get the Healthcare You Deserve.) Joyce speaks with patient advocate and author Trisha Torrey, a nationally recognized writer, speaker and workshop teacher on issues related to patient advocacy, who refers to herself as "every patient's advocate". She is author of the book, You Bet Your Life! The 10 Mistakes Every Patient Makes (How to Fix Them to Get the Healthcare You Deserve.) http://www.powerfulpatient.org/archive/2011/week1114_mistakes.php http://www.powerfulpatient.org/archive/2011/week1114_mistakes.php Thu, 14 Apr, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noJoyce speaks with patient advocate and author Trisha Torrey, a nationally recognized writer, speaker and workshop teacher on issues related to patient advocacy, who refers to herself as "every patient's advocate". She is author of the book, You Bet Your Life! The 10 Mistakes Every Patient Makes (How to Fix Them to Get the Healthcare You Deserve.)health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating What behaviors during pregnancy may lead to developmental, learning, and behavioral difficulties in our unborn children? What level of alcohol is safe? Joyce talks with Dr. Ira Chasnoff about these and other issues that may influence the lives of our children, and how to work with at-risk children if you are the parent or adoptive parent of such a child. What behaviors during pregnancy may lead to developmental, learning, and behavioral difficulties in our unborn children? What level of alcohol is safe? Joyce talks with Dr. Ira Chasnoff about these and other issues that may influence the lives of our children, and how to work with at-risk children if you are the parent or adoptive parent of such a child. http://www.powerfulpatient.org/archive/2011/week1113_risk.php http://www.powerfulpatient.org/archive/2011/week1113_risk.php Thu, 07 Apr, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noWhat behaviors during pregnancy may lead to developmental, learning, and behavioral difficulties in our unborn children? What level of alcohol is safe? Joyce talks with Dr. Ira Chasnoff about these and other issues that may influence the lives of our children, and how to work with at-risk children if you are the parent or adoptive parent of such a child.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating There are very few things that are a certainty in life other than death, but for women there is one other ... they will all go through menopause in some form or other; in fact, there are over 37 million women in this country going through it right now! Joyce talks with Drs. Lovera Miller and David Miller, the authors of Womenopause, a book that is packed with vital information and helpful hints to help women get through this natural transition with ease. There are very few things that are a certainty in life other than death, but for women there is one other ... they will all go through menopause in some form or other; in fact, there are over 37 million women in this country going through it right now! Joyce talks with Drs. Lovera Miller and David Miller, the authors of Womenopause, a book that is packed with vital information and helpful hints to help women get through this natural transition with ease. http://www.powerfulpatient.org/archive/2011/week1112_womenopause.php http://www.powerfulpatient.org/archive/2011/week1112_womenopause.php Thu, 24 Mar, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noThere are very few things that are a certainty in life other than death, but for women there is one other ... they will all go through menopause in some form or other; in fact, there are over 37 million women in this country going through it right now! Joyce talks with Drs. Lovera Miller and David Miller, the authors of Womenopause, a book that is packed with vital information and helpful hints to help women get through this natural transition with ease.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating Many women experience fibroids in the uterus. In some cases, fibroids can be one signal of a set of issues called a "syndrome" that includes additional risks. Joyce speaks with Julie of the of the HLRCC Alliance about syndromes that include fibroids. Many women experience fibroids in the uterus. In some cases, fibroids can be one signal of a set of issues called a "syndrome" that includes additional risks. Joyce speaks with Julie of the of the HLRCC Alliance about syndromes that include fibroids. http://www.powerfulpatient.org/archive/2011/week1111_fibroids.php http://www.powerfulpatient.org/archive/2011/week1111_fibroids.php Thu, 17 Mar, 2011 00:00:01 EST Joyce Graff The Powerful Patient with Joyce Graff editor@vhl.org (Joyce Wilcox Graff)noMany women experience fibroids in the uterus. In some cases, fibroids can be one signal of a set of issues called a "syndrome" that includes additional risks. Joyce speaks with Julie of the of the HLRCC Alliance about syndromes that include fibroids.health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eating noCopyright 2007-2009health,caring,caregiver,carer,coping,nutrition,emergency,support,groups,vhl,von,hippel,lindau,rare,diseases,tumor,tumors,kidney,dementia,Alzheimer,healthy,eatingThis series is to help you learn how to take control and steer your way to health, no matter what medical challenges you face. Hear how others have met these challenges and overcome them. Learn how you can do so too. We will empower you to create a health care team of which you are a respected member.Creating Teamwork for Your HealthJoyce Wilcox Graffeditor@vhl.orgJoyce Wilcox Graff