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<channel>
	<title>My Chronic Life</title>
	
	<link>http://mychroniclife.com</link>
	<description>A Health Blog By Someone Who Knows</description>
	<pubDate>Fri, 05 Feb 2010 04:59:12 +0000</pubDate>
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		<title>Stand Up To Cancer Video SU2C</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/oRSoK7lJnho/</link>
		<comments>http://mychroniclife.com/2010/02/05/stand-up-to-cancer-video-su2c/#comments</comments>
		<pubDate>Fri, 05 Feb 2010 04:37:56 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Cancer]]></category>

		<category><![CDATA[Non-Profits]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=759</guid>
		<description><![CDATA[What a fun way to show support and raise money for the organization Stand Up To Cancer or SU2C - a video featuring Jim Parsons from Big Bang Theory. Watch and enjoy, then go ahead and learn more about SU2C and shop and give money to this non-profit.

 ]]></description>
			<content:encoded><![CDATA[<p>What a fun way to show support and raise money for the organization Stand Up To Cancer or SU2C - a video featuring Jim Parsons from Big Bang Theory. Watch and enjoy, then go ahead and learn more about <a href="http://www.standup2cancer.org/" target="_blank">SU2C</a> and <a href="http://www.standup2cancer.org/store" target="_blank">shop and give money</a> to this non-profit.</p>
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		<item>
		<title>Extra Pocket Money From Twitter</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/9_tMhU9kHOk/</link>
		<comments>http://mychroniclife.com/2009/11/17/extra-pocket-money-from-twitter/#comments</comments>
		<pubDate>Wed, 18 Nov 2009 03:53:07 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Earn Money]]></category>

		<category><![CDATA[Advertising]]></category>

		<category><![CDATA[Application programming interface]]></category>

		<category><![CDATA[Izea]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=757</guid>
		<description><![CDATA[This is a Sponsored Post written by me on behalf of Sponsored Tweets. All opinions are 100% mine.
I&#8217;ve been taking part in Sponsored Tweets from Izea since it started a few months ago. I earn money by tweeting for an advertiser and by referring people to become members of Sponsored Tweets. Now there&#8217;s an easy [...]]]></description>
			<content:encoded><![CDATA[<p><em>This is a Sponsored Post written by me on behalf of <a rel="nofollow" href="http://socialspark.com/metrics/click/disclosure?slot_id=90102&amp;url=http%3A%2F%2Fsponsoredtweets.com%2F">Sponsored Tweets</a>. All opinions are 100% mine.</em></p>
<p>I&#8217;ve been taking part in Sponsored Tweets from Izea since it started a few months ago. I earn money by tweeting for an advertiser and by referring people to become members of Sponsored Tweets. Now there&#8217;s an easy way to refer Twitter users to advertisers, another way that I can make some extra pocket money.</p>
<p>Here&#8217;s the way it works:</p>
<ol>
<li>I set my price for my tweets. I can rely on the suggested price given to me by Izea based on a number of factors including the number of my followers. I chose to go a little under the suggested price to get more offers, or so I think that&#8217;s how it works!</li>
<li>I decide on what tweets I want to send. I like having a choice.</li>
<li>I get paid! Once my tweet is approved, within 24 hours, my account is credited. It does take $50 for me to withdraw my pocket money.</li>
<li>All tweets are listed as being sponsored. I may use #ad or #sponsored on my tweets. There are a number of options to choose from, but all are transparent.</li>
</ol>
<p><img src="http://socialspark.com/uploads/socialspark/public/assets/1312/Picture-26-468x306.png" alt="Picture-26-468x306" /></p>
<p>I can make referrals on Twitter, on my blogs (see the widget on the right) and anywhere else on the interwebs. Now with the new Referral API, I can make referrals to advertisers as well. I can use a twitter list and get information about their twitter grades, how much they charge, etc. With this info I can refer an advertiser and earn money this way too. Want to earn money from Twitter, go ahead and <a rel="nofollow" href="http://bit.ly/EV7Z4">sign up for sponsored tweets<br />
</a> This is perfect for anyone with a chronic illness who uses Twitter to keep in touch with friends.</p>
<p><a rel="nofollow" href="http://socialspark.com/metrics/click/disclosure?slot_id=90102&amp;url=http%3A%2F%2Fsocialspark.com%2Fcode_of_ethics"><img style="border:0" src="http://socialspark.com/metrics/view/post?slot_id=90102&amp;url=http%3A%2F%2Fsocialspark.com%2Fimages%2Fdisclosure_badges%2Fdisclosure_badge_blue_new.png" border="0" alt="SocialSpark Disclosure Badge" /></a></p>
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		<item>
		<title>Swine Flu Shot Chronic Illness</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/sK7xle9WIr0/</link>
		<comments>http://mychroniclife.com/2009/11/02/swine-flu-shot-chronic-illness/#comments</comments>
		<pubDate>Mon, 02 Nov 2009 04:48:11 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Health Information]]></category>

		<category><![CDATA[immunosupressant drugs]]></category>

		<category><![CDATA[Influenza A virus subtype H1N1]]></category>

		<category><![CDATA[Myasthenia Gravis]]></category>

		<category><![CDATA[Swine Flu]]></category>

		<category><![CDATA[Swine influenza]]></category>

		<category><![CDATA[Tylenol]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=754</guid>
		<description><![CDATA[I was fortunate to get the Swine Flu shot last weekend since I have fit in the category of having a chronic illness. My husband and daughter had their shots too. My husband got his because of me and my daughter because of her age. I&#8217;m relieved to have this done as getting H1N1 is [...]]]></description>
			<content:encoded><![CDATA[<p>I was fortunate to get the Swine Flu shot last weekend since I have fit in the category of having a chronic illness. My husband and daughter had their shots too. My husband got his because of me and my daughter because of her age. I&#8217;m relieved to have this done as getting H1N1 is not on the top of my list along with having  Myasthenia Gravis and other autoimmune diseases.</p>
<p>I&#8217;m also on immunosuppressant drugs so I had no fear getting the injection. I&#8217;ve heard all the hype against it, but being put on a ventilator to breathe and my doctor being unsure if I can even handle Tamiflu, the drug to take for the Swine Flu, puts it all in perspective for me.</p>
<p>There were no side effects at all, just a slight discomfort where I got the shot. That only lasted a few hours. I was told not to take any medication like Tylenol as it might prevent the vaccine from working. My 1o year old daughter&#8217;s arm hurt her for more than a day, but she is getting allergy shots twice a week and her arm is sore from that.</p>
<p>Remember you cannot use the mist if you have a chronic illness or are taking immunosuppressant medications, so get your Swine Flu shot as soon as possible to avoid any serious health problems.</p>
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		<item>
		<title>Safe Way To Obsess Over Looks</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/Ga00CL6hgwg/</link>
		<comments>http://mychroniclife.com/2009/09/30/safe-way-to-obsess-over-looks/#comments</comments>
		<pubDate>Wed, 30 Sep 2009 06:24:34 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Loving Life]]></category>

		<category><![CDATA[Shopping]]></category>

		<category><![CDATA[Clothing]]></category>

		<category><![CDATA[Footwear]]></category>

		<category><![CDATA[Kate Spade]]></category>

		<category><![CDATA[Michael Kors]]></category>

		<category><![CDATA[Plastic surgery]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=752</guid>
		<description><![CDATA[Many of us with chronic illness or disability have undergone or were born with physical scars or abnormalities of some kind. Hopefully we have learned not to obsess over this, but to accept and embrace our looks. I have a very large scar on my chest due to major surgery. At first I considered having [...]]]></description>
			<content:encoded><![CDATA[<p>Many of us with chronic illness or disability have undergone or were born with physical scars or abnormalities of some kind. Hopefully we have learned not to obsess over this, but to accept and embrace our looks. I have a very large scar on my chest due to major surgery. At first I considered having <a href="http://www.aphroditewomenshealth.com/news/cosmetic_surgery.shtml" target="_blank">cosmetic surgery</a> to cover it up, but now I look at it as a badge of honor because without it, I may not be alive today.</p>
<p>Now I&#8217;d rather obsess over fashion than my physical appearance. One of my vices is buying shoes. Yes, they have to be comfortable, but there&#8217;s no problem finding gorgeous shoes like flats from <a href="http://www.jildorshoes.com/brand.cfm/hurl/Kate_Spade/catID=12619" target="_blank">Kate Spade</a>. Although I&#8217;d only wear them a few times a year, <a href="http://www.jildorshoes.com/brand.cfm/hurl/MICHAEL_Michael_Kors/catID=19788" target="_blank">Michael Kors</a> boots would do me a world of good too. They&#8217;d have me strutting!</p>
<p>Simply put, buying shoes and feeling good about how I dress is a lot cheaper than getting cosmetic surgery. It&#8217;s taken time to accept the way my body has changed, but all women&#8217;s bodies change as we age. Focus on being positive, <a href="http://www.stirringtroubleinternationally.com/2009/09/28/cosmetic-surgery/" target="_blank">building up self-esteem</a>, finding new interests and cultivating personal relationships. And, If looking good includes buying new shoes, go for it. And don&#8217;t forget to <a href="http://webjugate.com/archives/2009/08/28/five-reputable-online-retailers-to-buy-from/" target="_blank">shop safely online</a>.</p>
<p><em>This is a sponsored post. Please see my Disclosure Policy for more information.</em></p>
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		<item>
		<title>Top Five Ways To Have Fun When You Are Sick</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/Gyq06bYUWCg/</link>
		<comments>http://mychroniclife.com/2009/09/29/top-five-ways-to-have-fun-when-you-are-sick/#comments</comments>
		<pubDate>Tue, 29 Sep 2009 06:29:36 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Autoimmune Disease]]></category>

		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Loving Life]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=749</guid>
		<description><![CDATA[When you&#8217;ve got a cold, or are in a flare up, or recovering from surgery,  you need some fun time to forget your woes. You may be stuck in bed or even the hospital but you can still do somethings to amuse yourself. Here are the Top Five Ways To Have Fun When You&#8217;re Sick:


Color [...]]]></description>
			<content:encoded><![CDATA[<p>When you&#8217;ve got a cold, or are in a flare up, or recovering from surgery,  you need some fun time to forget your woes. You may be stuck in bed or even the hospital but you can still do somethings to amuse yourself. Here are the <strong>Top Five Ways To Have Fun When You&#8217;re Sick</strong>:</p>
<p><img class="aligncenter size-full wp-image-750" title="crayons" src="http://mychroniclife.com/wp-content/uploads/2009/09/crayons.jpg" alt="crayons" width="300" height="285" /></p>
<ol>
<li><strong>Color</strong> - Be sure that you get a brand new box of crayons and a new coloring book. There&#8217;s nothing like the smell of Crayolas to bring a smile to your face. Don&#8217;t worry about coloring in the lines. Just go at it!</li>
<li><strong>YouTube Videos</strong> - If you&#8217;re able to use a laptop, then just go to YouTube and watch the videos  that people make themselves. Keep clicking around and laugh at the stupidity of people and what they&#8217;re actually willing to put online for everyone to see.  No computer? Watch some form of funny videos on TV. There&#8217;s tons of them now.</li>
<li><strong>Talk Radio</strong> -  Find a talk radio station that has the most outlandish ideas about conspiracy theories or zombies and call in. Pretend to agree with the host and carry on like you&#8217;re having a normal conversation. Blame it on the meds.</li>
<li><strong>Play With Toys</strong> - Pull out those old race cars, Barbies, Legos and play in bed. (Not that way.)</li>
<li><strong>Hair and Make Up</strong> - If you feel up to it, play with your hairstyle and do something wild. Try some new shades of make-up that you haven&#8217;t used in a while. You too guys. Lots of girls love it. If you&#8217;re not up to it, let someone you love, help you out. Now that&#8217;s fun!</li>
</ol>
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		<item>
		<title>Chronically Ill: How To Get The Most Out Of A Blogging Conference</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/dQzS4BpMVeA/</link>
		<comments>http://mychroniclife.com/2009/09/27/chronically-ill-how-to-get-the-most-out-of-a-blogging-conference/#comments</comments>
		<pubDate>Sun, 27 Sep 2009 23:41:16 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Blogging Community]]></category>

		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[DisABILITY Advocate]]></category>

		<category><![CDATA[Business card]]></category>

		<category><![CDATA[IzeaFest]]></category>

		<category><![CDATA[nap]]></category>

		<category><![CDATA[photos]]></category>

		<category><![CDATA[Xshot]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=743</guid>
		<description><![CDATA[This week, I&#8217;ll be attending a blogging conference, IzeaFest. The schedule is full of learning and networking experiences. Normally I&#8217;d be worried about being fatigued and not feeling well but after attending the Affiliate Summit I learned how to balance having a chronic illness and being a conference attendee.  Here are the Top Ten Tips [...]]]></description>
			<content:encoded><![CDATA[<p>This week, I&#8217;ll be attending a blogging conference, <a href="http://www.eventbrite.com/event/258580421/Insiders/815394082" target="_blank">IzeaFest</a>. The schedule is full of learning and networking experiences. Normally I&#8217;d be worried about being fatigued and not feeling well but after attending the Affiliate Summit I learned how to balance having a chronic illness and being a conference attendee.  Here are the <strong>Top Ten Tips To Get The Most Out of a Blog Conference</strong> <strong>When You Are Chronically Ill</strong>:</p>
<ol>
<li><strong>Rest Up</strong> the week before. Get yourself into a good sleeping pattern and even take some naps during the day so you can feel well rested before the conference.</li>
<li><strong>Schedule Your Time</strong> at the conference. Go through the schedule provided including the speakers, events and parties. Prioritize what is most important for your needs. In case you need a break, you can take it during the least necessary events. Although being there in person is the perfect scenario, most conferences are available on video later so you can take advantage of viewing what you missed.</li>
<li><strong>Eat Healthy Meals</strong> so that you are taking good care of yourself. If food is provided, take fruit or some other snacks with you. Also, remember to keep well hydrated.</li>
<li><strong>Take Advantage of Breaks</strong>. If you are going to attend parties and other networking events, then use the allotted break times to either nap or just find a quiet place to close your eyes and it easy for a few minutes.</li>
<li><strong>Take Your Medications on Time</strong>. Keep a timer to remind you to take your meds. I use the silent alarm clock on my cell phone. It can get so hectic that it&#8217;s easy to forget to take your prescriptions.</li>
<li><strong>Find a Buddy</strong>. A buddy can take notes for you, pass out your business cards, let people know that you needed a break, etc.  There are many things that you can do in return - write a blog post about that person, mention their help on Social Networking forums, write a reference for them, etc.</li>
<li><strong>Be Prepared to Miss Something</strong>. Even people who are healthy end up missing an event or even more. Sometimes it&#8217;s just too overwhelming. Travel problems may occur. Healthy people get sick too. There are many reasons. So don&#8217;t be disappointed if you don&#8217;t hear a speaker or attend an after party.</li>
<li><strong>Take Lots of Photos</strong>. Keep your camera with you at all times and take photos of the people and happenings around you. Try to write down a short note about the photo so you&#8217;ll remember the details later. This will allow you to post about the conference later and create lots of memories.</li>
<li><strong>Hand out Business Cards</strong>. Don&#8217;t push them on people, but after you start a conversation about the other person, ask them for their card, write down some notes on the back and then give them yours. If you can&#8217;t do a lot of networking, you can quickly introduce yourself, say that you need a break and really want to get to know them. Ask for theirs first again.</li>
<li><strong>Relax and Enjoy!</strong> You&#8217;ve made it to the conference and that in itself is a big accomplishment. Have fun, meet new people, network and focus on the positives.</li>
</ol>
<p>My advice for photos is to use an <a rel="nofollow" href="http://affiliates.izea.com/event/v3/3548-1836-515/social_spark"><img src="http://affiliates.izea.com/event/v3/3548-1836-515/social_spark.gif" border="0" alt="" width="1" height="1" />xshot</a> so you can be in the photo too. Plus, using this camera extender will get people to notice you.</p>
<p><a rel="nofollow" href="http://affiliates.izea.com/event/v3/3548-1836-1485/social_spark"><img title="XSHOT" src="http://affiliates.izea.com/event/v3/3548-1836-1485/social_spark.gif" border="0" alt="XSHOT" width="300" height="250" /></a></p>
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		<title>Stress Free Holidays</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/dO5AM_tZzk0/</link>
		<comments>http://mychroniclife.com/2009/09/19/stress-free-holidays/#comments</comments>
		<pubDate>Sat, 19 Sep 2009 07:16:25 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Loving Life]]></category>

		<category><![CDATA[Shopping]]></category>

		<category><![CDATA[Support Group]]></category>

		<category><![CDATA[Santa Claus]]></category>

		<category><![CDATA[to do list]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=738</guid>
		<description><![CDATA[I just joined a group to help us prepare for Christmas. We are going to share idea on how to have a stress free holiday season. Last year Christmas was very rushed and things were done at the last minute. I ended up getting very sick because of feeling so uneasy. For the first time [...]]]></description>
			<content:encoded><![CDATA[<p>I just joined a group to help us prepare for Christmas. We are going to share idea on how to have a stress free holiday season. Last year Christmas was very rushed and things were done at the last minute. I ended up getting very sick because of feeling so uneasy. For the first time in years I didn&#8217;t have a home made Christmas Eve dinner and I didn&#8217;t send out Christmas cards.</p>
<p style="text-align: center;"><img class="size-medium wp-image-741  aligncenter" title="roly-poly-santa-10106262-sb" src="http://mychroniclife.com/wp-content/uploads/2009/09/roly-poly-santa-10106262-sb-300x206.jpg" alt="roly-poly-santa-10106262-sb" width="300" height="206" /></p>
<p>Cards are very important to me because I only have my mother and aunt living close by. Finding just the right <a href="http://www.123print.com/Photo-Holiday-Cards">photo holiday cards</a> tops off my Christmas to do list. At 123print.com there are so many bright and cheery cards to chose from. I was able to find both religious and Santa cards, my favorites. It&#8217;s easy to upload your photo and find what you want by category as well as folded or flat cards.</p>
<p>I&#8217;ll be sharing this with the group so we can get one of our to do items checked off the list and feel the stress release too.</p>
<p><em>This is a sponsored post. Please see my Disclosure Policy for more information.</em></p>
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		<item>
		<title>Organic Acid Testing</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/khLbEfMwvn0/</link>
		<comments>http://mychroniclife.com/2009/09/17/organic-acid-testing/#comments</comments>
		<pubDate>Thu, 17 Sep 2009 05:45:30 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Health Information]]></category>

		<category><![CDATA[Health]]></category>

		<category><![CDATA[Nutrition]]></category>

		<category><![CDATA[Nutrition and Metabolism Disorders]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=731</guid>
		<description><![CDATA[It often takes a long time to diagnose a chronic illness because symptoms may overlap into many disease categories, because symptoms may be vague (such as fatigue, brain fog, stomach upset) and because there may not be any definitive medical tests outcomes. This is where Organic Acid Testing comes in. Organic acids are compounds produced [...]]]></description>
			<content:encoded><![CDATA[<p>It often takes a long time to diagnose a chronic illness because symptoms may overlap into many disease categories, because symptoms may be vague (such as fatigue, brain fog, stomach upset) and because there may not be any definitive medical tests outcomes. This is where <a href="http://www.diagnosticinsight.com.au" target="_blank">Organic Acid Testing</a> comes in. Organic acids are compounds produced within the body in the course of metabolism. Metabolism determines state of health and is the result of a combination of: genes, nutrition, lifestyle, attitude and other environmental factors.</p>
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<dt class="wp-caption-dt"><a href="http://www.flickr.com/photos/32141355@N07/3443086357"><img title="U is for Urine Tests" src="http://farm4.static.flickr.com/3652/3443086357_1608b2c59d_m.jpg" alt="U is for Urine Tests" width="240" height="180" /></a></dt>
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<p>The urine is tested overnight to determine what metabolic problems are present and what can be done to improve the condition. The specifics that <a href="http://www.diagnosticinsight.com.au/pages/testing/organix-profiles.php" target="_blank">organic acids testing</a> look for are:</p>
<ul>
<li>Vitamin and mineral insufficiencies</li>
<li>Amino acid insufficiencies like carnitine and NAC</li>
<li>Oxidative damage and anti-oxidant sufficiency markers</li>
<li>Indicators to assess detoxification sufficiency</li>
<li>The best functional markers of B-complex deficiency</li>
<li>Neurotransmitter metabolites to assess CNS function</li>
<li>Mitochondrial energy production assessment via citric acid cycle components</li>
<li>Methylation sufficiency status</li>
<li>Lipoic acid and CoQ10 sufficiency markers</li>
<li>Specific dysbiosis markers for bacterial and yeast overgrowth</li>
</ul>
<p>These cannot be found in blood tests; therefore, <a href="http://www.diagnosticinsight.com.au/pages/testing.php" target="_blank">organic acids testing</a> is done at home and read by clinical consultants who can also recommend nutrients, vitamins and dietary changes.  Although this type of testing does not provide a diagnosis, it enables you to reduce harmful chemicals that may be causing your symptoms, increase specific vitamins and minerals based on your unique metabolic profile.</p>
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		<title>Invisible Illness Week Is Vital</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/n5WkgiIzXA0/</link>
		<comments>http://mychroniclife.com/2009/09/11/invisible-illness-week-is-vital/#comments</comments>
		<pubDate>Sat, 12 Sep 2009 03:55:11 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Advocacy]]></category>

		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Support Group]]></category>

		<category><![CDATA[Healthcare reform]]></category>

		<category><![CDATA[Rheumatoid arthritis]]></category>

		<category><![CDATA[sjogren's syndrome]]></category>

		<category><![CDATA[Social Security]]></category>

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		<description><![CDATA[Invisible Illness Week begins on Monday, September 14th at 9 AM. It&#8217;s a virtual conference and the schedule is for the whole week, ending on September 20th. This conference supports those of us who are chronically ill but don&#8217;t have outward signs of our illness. There has never been more of an important time, in [...]]]></description>
			<content:encoded><![CDATA[<p>Invisible Illness Week begins on Monday, September 14th at 9 AM. It&#8217;s a virtual conference and <a href="http://invisibleillnessweek.com/?page_id=26" target="_blank">the schedule</a> is for the whole week, ending on September 20th. This conference supports those of us who are chronically ill but don&#8217;t have outward signs of our illness. There has never been more of an important time, in my opinion to take part in National Invisible Chronic Illness Awareness Week than now. Thank you to <a href="http://mychroniclife.com/2009/08/26/lisa-copen-invisible-illnesses-leader-and-supporter/" target="_blank">Lisa Copen</a> who coordinates this event every year.</p>
<p>Since congress is making a decision on Health Care Reform, let our voices be heard! We are often the ones who pay high prescription costs, get denied Social Security Disability even though we cannot work so we go without insurance, and/or get denied insurance because of pre-existing conditions.</p>
<p>Please watch Marianne Hoynes, who has Sjogren&#8217;s Syndrome and Rheumatoid Arthritis as she attempts to speak at a town hall meeting on Health Care Reform:</p>
<p><object width="425" height="344" data="http://www.youtube.com/v/fsP5dkNF38w&amp;hl=en&amp;fs=1&amp;rel=0&amp;color1=0x006699&amp;color2=0x54abd6" type="application/x-shockwave-flash"><param name="allowFullScreen" value="true" /><param name="allowscriptaccess" value="always" /><param name="src" value="http://www.youtube.com/v/fsP5dkNF38w&amp;hl=en&amp;fs=1&amp;rel=0&amp;color1=0x006699&amp;color2=0x54abd6" /><param name="allowfullscreen" value="true" /></object></p>
<p>It was noted that many people could not see that Marianne was not in a wheelchair. So even those of us who have &#8220;visible traits&#8221; of a sickness are not given the right to speak out on issues that matter to us all.</p>
<div>
<p style="background: transparent none repeat scroll 0% 0%; font-size: 11px; font-family: Arial,Helvetica,sans-serif; color: #999999; margin-top: 5px; text-align: center; width: 425px;">Visit msnbc.com for <a style="border-bottom: 1px dotted #999999 ! important; text-decoration: none ! important; font-weight: normal ! important; height: 13px; color: #5799db ! important;" href="http://www.msnbc.msn.com">Breaking News</a>, <a style="border-bottom: 1px dotted #999999 ! important; text-decoration: none ! important; font-weight: normal ! important; height: 13px; color: #5799db ! important;" href="http://www.msnbc.msn.com/id/3032507">World News</a>, and <a style="border-bottom: 1px dotted #999999 ! important; text-decoration: none ! important; font-weight: normal ! important; height: 13px; color: #5799db ! important;" href="http://www.msnbc.msn.com/id/3032072">News about the Economy</a></p>
</div>
<p>We all matter.</p>
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		<title>30 Things About My Invisible Illness</title>
		<link>http://feedproxy.google.com/~r/mychroniclife/NuPe/~3/72M92KD8Q3E/</link>
		<comments>http://mychroniclife.com/2009/09/07/30-things-about-my-invisible-illness/#comments</comments>
		<pubDate>Tue, 08 Sep 2009 00:56:03 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Advocacy]]></category>

		<category><![CDATA[Autoimmune Disease]]></category>

		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Fibromyalgia]]></category>

		<category><![CDATA[Myasthenia Gravis]]></category>

		<category><![CDATA[Rheumatoid arthritis]]></category>

		<category><![CDATA[sjogren's syndrome]]></category>

		<category><![CDATA[Ulcerative Colitis]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=725</guid>
		<description><![CDATA[30 Things About My Invisible Illness You May Not Know
1.	The illness I live with is: Myasthenia Gravis, Sjogren&#8217;s Syndrome, Fibromyalgia, Rheumatoid Arthritis and Ulcerative Colitis.
2.	I was diagnosed with it in the year: with UC in 1985, with MG in 2000, the rest 2001 or the year later.
3.	But I had symptoms since: 19844 for the UC
4.	The [...]]]></description>
			<content:encoded><![CDATA[<p><strong>30 Things About My Invisible Illness You May Not Know</strong></p>
<p>1.	The illness I live with is: Myasthenia Gravis, Sjogren&#8217;s Syndrome, Fibromyalgia, Rheumatoid Arthritis and Ulcerative Colitis.<br />
2.	I was diagnosed with it in the year: with UC in 1985, with MG in 2000, the rest 2001 or the year later.<br />
3.	But I had symptoms since: 19844 for the UC<br />
4.	The biggest adjustment I’ve had to make is: not being able to work and giving up my active lifestlye<br />
5.	Most people assume: I&#8217;m not sick<br />
6.	The hardest part about mornings are: waking up because I&#8217;m so tired<br />
7.	My favorite medical TV show is: House<br />
8.	A gadget I couldn’t live without is: my laptop<br />
9.	The hardest part about nights are: pain and insomnia<br />
10.	Each day I take __ pills &amp; vitamins. (No comments, please) 36<br />
11.	Regarding alternative treatments I: am not able to try them because of the medications I am on for Myasthenia Gravis. There are many interactions for a certain prescription I take.<br />
12.	If I had to choose between an invisible illness or visible I would choose: visible so more people would understand<br />
13.	Regarding working and career: I&#8217;m sad that I can&#8217;t continue working in the career I chose for myself. I&#8217;m happy that I can work as a blogger though.<br />
14.	People would be surprised to know: that I&#8217;m in pain almost all the time.<br />
15.	The hardest thing to accept about my new reality has been: that I have to rely on other people for simple things.<br />
16.	Something I never thought I could do with my illness that I did was: attend a conference.<br />
17.	The commercials about my illness: re: Fibromyalgia and RA - make it seem like a pill or shot cures the disease.<br />
18.	Something I really miss doing since I was diagnosed is: dancing, drinking  a few beers, running, walking as much as I want to<br />
19.	It was really hard to have to give up: working<br />
20.	A new hobby I have taken up since my diagnosis is: blogging and photography<br />
21.	If I could have one day of feeling normal again I would: spend it with my family, listening to loud music, dancing, cooking and eating all day long<br />
22.	My illness has taught me: to appreciate every moment<br />
23.	Want to know a secret? One thing people say that gets under my skin is: you look great!<br />
24.	But I love it when people: recognize that most of the things I do take me a lot of effort<br />
25.	My favorite motto, scripture, quote that gets me through tough times is: I can do all things through Christ who strengthens me. Philipians 4:13<br />
26.	When someone is diagnosed I’d like to tell them: find a doctor who is supportive and knowledgeable and a support system<br />
27.	Something that has surprised me about living with an illness is: how understanding my husband and family are<br />
28.	The nicest thing someone did for me when I wasn’t feeling well was: take my daughter, who was much younger for play dates so she didn&#8217;t have to sit home while I slept<br />
29.	I’m involved with Invisible Illness Week because: it&#8217;s so important for people to understand about us, what our lives are like, what we go through each day and how they can support us<br />
30.	The fact that you read this list makes me feel: fantastic!</p>
<p>Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at <strong><a href="http://www.invisibleillnessweek.com/" target="_blank">www.invisibleillness.com</a></strong></p>
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