Fragile X Association of Australia https://www.fragilex.org.au/ Jala Design Tue, 23 Dec 2025 04:31:21 +0000 en-AU hourly 1 FX News Summer 2025 https://www.fragilex.org.au/fx-news-summer-2025/ Tue, 23 Dec 2025 04:31:21 +0000 https://www.fragilex.org.au/?p=7135 FX News Summer 2025 edition, published December 2025. Catchup on our latest news. Achievement Awards. Update on FX research, and information on FXTAs and FXPOI. Resources which support the Fragile X learning style. Thanking our volunteers. And some great photos from 2025.

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]]> FXAA Annual Report 2024-2025 https://www.fragilex.org.au/annual-report-2024-2025/ Sun, 21 Dec 2025 23:34:46 +0000 https://www.fragilex.org.au/?p=7097 Our Annual Report for 2025 was tabled at the Annual General Meeting held on 23 November 2025.  The work of Fragile X Association of Australia as a Health Promotion charity remains guided by our Strategic Plan 2022-2025 and we continued to make good progress against each of the four strategic pillars - Support & Connection, Empowerment, Advocacy and Education.  The Annual Report is a comprehensive roundup of our programs and activities in financial year 2024-2025. It covers:   Supporting the Fragile X community through advocacy, counselling, and peer connections.  Progress of the first Australian study to explore the health, wellbeing and support needs of adults with Fragile X syndrome as they grow older:  Fragile X Care | Adults and Ageing study.  Improving understanding of Fragile X syndrome and Fragile X Premutation Associated Conditions across the disability and health sectors.   Building knowledge and connections through our educational FX webinar series.   Lighting up Australia for World Fragile X Day on 22 July. A report from the Treasurer. And a thank you to our Supporters who make it possible for us to keep working towards our vision that people living with Fragile X are connected, included, understood and empowered to live their best possible lives.

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]]> Annual General Meeting 2025 | Sunday 23 November 3pm AEDT online https://www.fragilex.org.au/annual-general-meeting-2025-sunday-23-november-3pm-aedt-online/ Mon, 27 Oct 2025 06:37:19 +0000 https://www.fragilex.org.au/?p=6977 Dr Cynthia Roberts PhD, President of Fragile X Association of Australia, and the Board invite you to join us for the Annual General Meeting 2025, Sunday 23rd November 3:00-4:15pm (online). The AGM is always an important opportunity to reflect and report to our members on the past year and look to what’s ahead. This year we'll cover: FXAA’s programs and impact in 2025 - supporting our members, educational webinars, HelpLine, raising awareness of Fragile X and advocating for improvements in testing and diagnosis for Fragile X. Treasurer's Report. Celebration of the Fragile X community, including ACHIEVEMENT AWARDS and thanking our VOLUNTEERS for the wonderful work they do. Election of members to the Board, with voting by online poll. And we'll take a look at what’s on the horizon for FXAA in 2025.

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]]> Board nominations open to 19 October 2025 https://www.fragilex.org.au/board-nominations-open-to-19-october-2025/ Mon, 29 Sep 2025 07:29:46 +0000 https://www.fragilex.org.au/?p=6941 Serving on the Board of FXAA as a volunteer director is a rewarding way to support the Fragile X community and to help shape the future direction and impact of Fragile X Association of Australia. Nominations are now open for Board members to be appointed at the Annual General Meeting on Sunday 23 November. If you're keen to make a difference for the Fragile X community, submit a Nomination form and Expression of Interest by end of day Sunday 19 October.

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]]> 22 July 2025 | Lighting up for World Fragile X Day https://www.fragilex.org.au/22-july-2025-australia-lights-up-for-world-fragile-x-day/ Sun, 20 Jul 2025 05:33:56 +0000 https://www.fragilex.org.au/?p=6876 Thanks to strong support from Councils, infrastructure operators, NGOs and businesses around the country - we have an incredible 124 landmarks involved in our lightup for World Fragile X Day!  Brisbane City Council has promised an early kickoff on the night of Monday 21st - with Story Bridge, Victoria Bridge and other key city landmarks  leading us into World Fragile X Day. What's lighting up near you?? Check out our list of supporters.

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]]> New FX webinar recordings available https://www.fragilex.org.au/new-fx-webinar-recordings-available/ Thu, 24 Apr 2025 04:20:39 +0000 https://www.fragilex.org.au/?p=6745 Catchup on our most recent webinars:
* FXPOI | What Do I Need to Know? * Medications and Fragile X syndrome * Fragile X FMR1 Premutation Update

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]]> FX Webinars in April & May https://www.fragilex.org.au/fx-webinars-in-april-may/ Tue, 22 Apr 2025 04:06:47 +0000 https://www.fragilex.org.au/?p=6735 Terrific webinars coming up on topics associated with Fragile X syndrome, the Fragile X premutation and planning for the future for a family member with Fragile X syndrome.

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]]> Webinar/Q&A | Medications & Fragile X syndrome, 20 February 2025 https://www.fragilex.org.au/webinar-qa-medications-fragile-x-syndrome-20-february-2025/ Sun, 09 Feb 2025 09:49:46 +0000 https://www.fragilex.org.au/?p=6534 Our 2025 Webinar/Q&A series commences with a discussion by Dr Jonathan Cohen MD on Medications and Fragile X syndrome on 20th February 2025, 8pm AEDT. We're delighted to co-host this event with Fragile X New Zealand, and we also thank the Qantas Side by Side Program grant for supporting the production of the webinar.

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]]> Manly Wharf Bridge to Beach race supports Fragile X https://www.fragilex.org.au/manly-wharf-bridge-to-beach-race-supports-fragile-x/ Mon, 03 Feb 2025 06:39:26 +0000 https://www.fragilex.org.au/?p=6516 Prepare for an adrenaline-fuelled spectacle as Sydney Harbour prepares to host many of the country’s finest paddlers for the 24th annual Manly Wharf Bridge to Beach on Sunday, February 23rd. This iconic 11km race, one of the biggest on Australia’s paddling calendar, promises thrills and spills while supporting our fundraising for our FX Family Support Counsellor role.  The race is sponsored by Manly Wharf and Shaw and Partners Financial Services. Are you a paddler? Race registration is open until 21 February. Not a paddler? Come down to Manly Wharf and watch all the action as the paddlers cross the finish line.

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]]> FXAA Office re-opens Tuesday 28 January 2025 https://www.fragilex.org.au/fxaa-office-re-opens-tuesday-28-january-2025/ Sun, 22 Dec 2024 04:50:09 +0000 https://www.fragilex.org.au/?p=6468 We wish everyone joy and happiness for the holiday season! The FXAA team is taking a break and will be back on deck on Tuesday 28th January 2025.
We're looking forward to another great year ahead in 2025 - with a new webinar series, continuing to improve understanding of Fragile X-associated conditions through participation in medical conferences and Disability Expos, catching up with our members, and providing information and support where we can.

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]]> FX Newsletter December 2024 https://www.fragilex.org.au/fx-newsletter-december-2024/ Mon, 16 Dec 2024 02:58:50 +0000 https://www.fragilex.org.au/?p=6452 Our latest news!   2024 Lookback - Meet the FXAA Achievement and Volunteer of the Year Award recipients for 2024, and catch up on photo highlights from 2024. Read a tribute to Prof Gillian Turner AO, whose work in understanding the genetics of Fragile X made a difference for so many Australian families. You'll find an update on our Adults & Ageing research study, and a link to the recording of the FX Premutation Update webinar we ran in November.
Looking to 2025: You'll find dates for new webinars in our series, and links to some handy Back to School resources for parents & educators.  Check out the dates for Disability Expos FXAA will participate in throughout 2025.  Meet our Board members, and read about what might be on the horizon for advances in treatments for Fragile X syndrome in the future.

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]]> Annual Report 2023-2024 https://www.fragilex.org.au/annual-report-2023-2024/ Mon, 02 Dec 2024 01:18:26 +0000 https://www.fragilex.org.au/?p=6374 Our Annual Report 2023-2024 is a terrific wrapup of our programs and activities over the past financial year. Providing support through counselling, peer support and connection, educational webinars, our FX Adults & Ageing study, raising awareness of Fragile X associated conditions, getting involved in Disability Expos and medical professional education forums, our fundraising fun. And more...

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