CHI Patient Perspectives Series

CHI Podcast - In Focus: The FDA and the Future of America's Biomedical Industry

taluban@chi.org (California Healthcare Institute) — Wednesday, 1 June 2011 16:51:22 -0800

In this podcast, CHI CEO David Gollaher, Ph.D., and Boston Consulting Group Partner and Managing Director Simon Goodall discuss highlights of a CHI/BCG report on FDA.

CHI Podcast - Marti Conger and degenerative spinal condition

taluban@chi.org (California Healthcare Institute) — Tuesday, 18 Jan 2011 16:51:22 -0800

Marti Conger, patient advocate, shares the story of her fight to receive adequate care and overseas visit to treat degenerative spinal condition.

CHI Podcast - Stimulus Funding: Helping Entrepreneurs Find New Sources of Funding

taluban@chi.org (California Healthcare Institute) — Tuesday, 22 Sep 2009 10:09:22 -0800

Stimulus Funding: Helping Entrepreneurs Find New Sources of Funding

CHI Podcast - Personalized Medicine is Transforming Healthcare

taluban@chi.org (California Healthcare Institute) — Saturday, 13 Jun 2009 10:09:22 -0800

Danny Levine, editor of The Burrill Report, spoke with to Ed Abrahams, executive director of the Personalized Medicine Coalition about "The Case for Personalized Medicine," a new report from the organization. Levine talked to Abrahams about the promise of personalized medicine, hurdles that need to be overcome, and the critical role it could play in healthcare reform.

CHI Podcast - UC Roundtable

taluban@chi.org (California Healthcare Institute) — Thursday, 21 May 2009 16:51:22 -0800

On May 21, 2009, life sciences industry leaders discussed the future of the UC System with the new President of University of California, Mark Yudof and John Stobo, M.D., UC's senior vice president of health science and services, and how the biomedical industry and UC system can best collaborate to continue to produce highly educated scientists and engineers, the future workforce of California. The following podcast episode with Stobo, was led by CHI's President and Chief Executive Officer, David Gollaher, Ph.D., joined by CHI Chairman, John Martin, Ph.D., chairman of the board and CEO of Gilead Sciences and Dana Mead, partner of Kleiner Perkins Caufield and Byers.

CHI Podcast - Willie Brown Jr. Keynote

taluban@chi.org (California Healthcare Institute) — Tue, 24 Mar 2009 16:00:22 -0800

Honorable Willie Brown Jr., former mayor of the city and county of San Francisco and longest serving Speaker in the California State Assembly, addressed more than 140 patient advocates, industry executives and academic leaders that attended the 2009 California Life Sciences Day in Sacramento, Calif. Brown spoke about his experience in the state Legislature and gave tips on how to best collaborate and educate members of the Legislature on issues that affect the community.

Patient Perspecities in Diabetes Care for Minorities

taluban@chi.org (California Healthcare Institute) — Wednesday, 16 Sept 2009 16:51:22 -0800

In CHI's most recent Patient Perspectives Podcast Series, David Gollaher, Ph.D., CHI's president and CEO, speaks with Gary Puckrein, Ph.D., president and CEO of the National Minority Quality Forum and Kirk Geter, D.P.M., chief of podiatry at Howard University Hospital about Diabetes Atlas (D-Atlas), a unique tool that graphically maps diabetes prevalence, using zip-code-level data, and how community outreach programs can enable prevention, early detection, and treatment of diabetes.

Patient Perspective Episode - New Podcast in Patient Perspectives Series: New Approaches to Treatment Needed in Pediatric Cancer

taluban@chi.org (California Healthcare Institute) — Friday, 24 July 2009 16:51:22 -0800

Susan Cornelius, principal and COO of Scientific Solutions, and business advisor to The Nicholas Conor Institute for Pediatric Cancer Research, speaks about her granddaughter's fight with cancer. Cornelius was frustrated that new medical technology was unavailable to her and that all doctors could offer were surgery, radiation or chemotherapy—what she characterized as cut, burn, or poison—the child for a disease, which was genetically-based. Cornelius lost her granddaughter to cancer in 2008, but now works to bring about changes to the way research is conducted.

Patient Perspective Episode - New Podcast in Patient Perspectives Series: A New Model for Funding Research

taluban@chi.org (California Healthcare Institute) — Friday, 17 July 2009 16:51:22 -0800

Patient Perspectives Podcast Series: A New Model for Funding Research. Beth Anne Baber, Ph.D., co-founder, CEO and president of The Nicholas Conor Institute, speaks about her son's (Conor's) cancer treatment journey when he was diagnosed with stage 3, high-risk neuroblastoma in July 2005. Because of the location of the tumor, surgery and radiation were not options, which left Conor to undergo high intensity chemotherapy. After seeing her son endure the side-effects of the powerful treatment, Baber envisioned an institute that would work with the biomedical community to find therapies that would reduce the severity of side-effects from cancer treatments and provide a better quality of life for children with cancer. Together with her colleagues Baber co-founded The Nicholas Conor Institute.

Patient Perspective Episode - Searching For A Cure: Duchenne

taluban@chi.org (California Healthcare Institute) — Friday, 10 July 2009 16:51:22 -0800

CHI, The Burrill Report and the Children's Rare Disease Network released the latest episode of the Patient Perspectives Podcast Series: Searching for a Cure. Debra Miller, president and founder of Cure Duchenne, speaks about her son's journey through treatment after being diagnosed with Duchenne Muscular Dystrophy (DMD) and how his experiences inspired her husband, Paul, and her to start Cure Duchenne. DMD primarily affects young boys and causes progressive muscle loss; it is the leading genetic killer of children and most patients do not live past their teen years. As Miller and her husband explored treatment options and sought support, they found that existing patient advocacy organizations were often focused on palliative care and focused on academic research rather than working with industry to find a cure. In this episode of the Patient Perspectives Podcast Series, Miller speaks about new approaches to treating DMD and the problems of funding cutting-edge research in search of a cure.

Patient Perspective Episode - Loring Leeds

taluban@chi.org (California Healthcare Institute) — Tue, 07 Apr 2009 16:51:22 -0800

Loring Leeds is a patient from City of Hope, based in Duarte Calif., who was diagnosed with AIDS-related lymphomia in 1998. His long-term prognosis was bleak but that was about to change because of a clinical trial for gene therapy that was pioneered by City of Hope researchers and physicians. In this episode Leeds speaks about his life-saving experience at City of Hope.