UCPeople - Journal for the UCP Community

Buying Toys for Children with Disabilities

ecoordinator@ucp.org (United Cerebral Palsy) — Tue, 07 Dec 2010 09:36:48 PST

Holiday time is exciting for all children, and children with disabilities are no different. There are nearly six million children with disabilities (including 12.7% of school children) who will receive holiday gifts this season. Yet because gift givers are afraid of selecting the "wrong" toy, many children with disabilities find pajamas and socks wrapped up in those brightly-colored boxes - not the toy of their dreams.

The National Lekotek Center, the country’s preeminent source for information about adaptive toys and play, is dedicated to making play and learning accessible for children with disabilities. Last year, Lekotek developed the AblePlay toy rating system and Web site , which provides comprehensive information about toys for children with special needs so that parents, special educators, therapists and others can make the best choices for the children with disabilities in their lives.

Choosing toys for children with disabilities can be difficult. AblePlay's independent toy reviews and detailed information help you get "beyond the box" to understand each toy's unique features, creative ways each toy can be used with children with special needs and skills that will be enhanced as a result.

Lekotek has affiliates in seven states across the United States— Illinois, Georgia, New York, New Jersey, Virginia, Michigan and Pennsylvania. Please find the Lekotek program in your state by clicking here.

The National Lekotek Center recommends the following Top Ten Things to Consider When Buying Toys for Children with Disabilities:

Multisensory appeal: Does the toy respond with lights, sounds or movement? Are there contrasting colors? Does it have a scent? Is there texture?
Method of activation: Will the toy provide a challenge without frustration? What is the force required to activate? What are the number and complexity of steps required to activate?
Where will the toy be used: Can the toy be used in a variety of positions such as side-lying or on wheelchair tray? Will the toy be easy to store? Is there space in the home?
Opportunities for success: Can play be open-ended with no definite right or wrong way? Is it adaptable to the child's individual style, ability and pace?
Current popularity: Is it a toy almost any child would like? Does it tie in with other activities like TV, movies, books, clothing, etc?
Self-expression: Does the toy allow for creativity, uniqueness and choice-making? Will it give the child experience with a variety of media?
Adjustability: Does it have adjustable height, sound volume, speed, level of difficulty?
Child's individual characteristics: Does the toy provide activities that reflect both developmental and chronological ages? Does it reflect the child's interests and age?
Safety and durability: Consider the child's size and strength in relation to the toy's durability. Are the toy and its parts sized appropriately? Does the toy have moisture resistance? Can it be washed and cleaned?
Potential for interaction: Will the child be an active participant during use? Will the toy encourage social engagement with others?

For additional information on toys, play and technology for children with disabilities, please call the Lekotek Toy Resource Helpline at 1-800-366-PLAY or visit their Web site.

Additional resources for finding adaptive toys:

Toys "R" Us 2010 Guide for Differently-Abled Kids

Infinitec Toy Guide

Join the My Child Without Limits Support Community and discuss this article with other families of children with disabilities!

Information and Referral: Social Marketing and Health Communications

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 06 Oct 2010 13:26:24 PDT

The UCP national office and its affiliates spend a good deal of time and effort conducting outreach and communicating mission, messages and health information to the media and general public. There is an art and science to effective communications and a growing body of literature on effective social marketing for health and human service related programs.

Simply put, health communication is the study and use of communication strategies to inform and influence individual and community decisions that enhance health. (National Cancer Institute)

I recently had the opportunity to attend the Centers for Disease Control and Prevention's (CDC's) Fourth Annual National Conference on Health Communication, Marketing, and Media. This year's theme was Convergence: Purpose, Programs, & Partners. The fields of health communication, marketing and media are converging with distinct sciences, methodologies, and technologies merging into a unified whole.

We can use the principles of effective health communication to plan and create initiatives at all levels, from one brochure or website to a complete communication campaign. The following resources can help you develop, implement, and evaluate your communication campaigns.

Wednesday, September 29, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 29 Sep 2010 12:09:47 PDT

UCP in the News

UCP National / pittsburghlive.com: Energetic Entrepreneur Defeated Disability
Easter Seals UCP North Carolina & Virginia / triangle.dbusinessnews.com: Easter Seals UCP’s Annual Ride Without Limits Cycling Event Raises $123,000
UCP of Nassau County / merrick.patch.com: North Merrick Agent Paul Della Universita Donates $500 to United Cerebral Palsy Association
UCP Santa Barbara / Santa Barbara Independent: Remembering Craig Hyams

Affiliate Updates & Events

UCP of West Alabama: State Fair Continues Today at Sokol Park (September 29-October 3)
UCP National: Help UCP win $5,ooo! Your information will be kept private and you can opt out of emails. Please Join the My Child Support Network by Thursday (September 30)
National Human Services Assembly: Breakthrough Thinking! Leading Revolutionary Success in Strategy & Mission Impact (September 30)
United Cerebral Palsy of Berkshire County: Buddy Walk to be Hosted by BCARC Group (October 2)
UCP of San Joaquin, Calaveras and Amador Counties: Un-box a Gourmet Lunch for a Good Cause (October 7)
UCP National: Brilliant Strokes, an Art Auction for Independence (October 8)

Advocacy, Disability, Nonprofit, & Social Media News

Disability Scoop: Accessible Parking Tough to Enfore
Disability Scoop: SNL Offers Apologies for Disability Cracks
hhs.gov: HHS Announces the Launch of Healthcare.gov on Facebook
neurofilmfestival.com: Call for Entries: Submit Your Video About a Brain Disorder
Philadelphia Inquirer: Judge Allows Pennhurst Haunted House to Open
Philanthropy Today: New Fund Seeks to Help Charities Collaborate or Merge
Philanthropy Today: Gender Gap in Nonprofit Salaries Persists, Study Finds
Philantrhopy Today: Arts and Culture Leaders Among Winners of MacArthur Prizes

Announcements- September 22, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 22 Sep 2010 09:44:03 PDT

UCP in the News

UCP National / abcnews.go.com: Man With Cerebral Palsy Reaches Summit of El Capitan
UCP of Central Minnesota: SCTimes: 38,000 Pounds of Electronics Collected For Recycling
UCP on Dane County/ host.madison.com: Cookie Bakers Learn Job Skills
UCP of Greater Houston / StockmarketsReview.com: Amegy Bank and FHLB Dallas Award AHP Grant to United Cerebral Palsy of Greater Houston "Home of Your Own Program"
UCP of North Caroline & Virginia / The Sun: Technology Connects NC Patients With Neurologists
UCP of Orlando / cfnews13.com: Was Father Protecting His Daughter on Bus?
UCP of South Carolina / News Channel 7: Mother of Man With Cerebral Palsy Asks for Help To Get Him Medical Attention (UCP National connected mother with affiliate)

Affiliate Updates & Events

UCP National: Getting Real- The 2010 Inclusive Emergency Management National Capacity Building Training Conference / Watch the Live Interactive Webcast (September 22-24)
UCP of Santa Barbara: A Celebration of the Human Spirit (September 29)
UCP of Sarasota: Thai One On (September 29)
UCP National: Michael’s Special 5K Run/Walk – Hollywood Beach (October 16)

Advocacy, Disability, Nonprofit, & Social Media News

The Atlantic: Autism's First Child
Disability Scoop: Actress With Down Syndrome To Return To ‘Glee’
Disability Scoop: Group Home Under Investigation After Resident Dumped At ER
Disability Scoop: Haunted 'Asylum' At Site of Former Institution Has Disability Advocates Cringing
Disability Scoop: House To Vote On Replacing ‘Mental Retardation’ With ‘Intellectual Disability’
EEOC.gov: EEOC Sues Comfort Suites For Disability Discrimination
Energycommerce.house.gov: Hearing on “Medicare’s Competitive Bidding Program for Durable Medical Equipment: Implications for Quality, Cost and Access”
FayObserver: Army Captain's Marathon Effort Honors Stepdaughter
The New York Times: Despite Struggles, Entrepreneurs Find Ways to Give Back
Philanthropy Today: Arrangements Between Charities and Fund-Raising Companies Scrutinized

Announcements- September 15, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 15 Sep 2010 11:48:22 PDT

UCP in the News

UCP National / Lake Wylie Pilot: Saturday Event at Lake Wylie Honors Son, Raises Money for Cerebral Palsy Founation
UCP National / Carels1: Info About Cerebral Palsy
UCP of New York City/ My Fox NY: Timothy Mandala and United Cerebral Palsy of New York City
UCP of Oregon & SW Washinton / The Columbian: Family Takes Steps Against Cerebral Palsy

Affiliate Updates & Events

UCP of Greater Cincinatti: A Canopy of Stars (September 18)
UCP of Texas: Grapes for Good (September 23)
UCP of Suffolk: 5 K Walk & Wheel (September 30)
UCP of Hudson County: Fight for Mike & United Cerebral Palsy of Hudson County Monday Night Football (October 11)
UCP of Suffolk: Gala Dinner Dance (October 29)
UCP of Central California: Bachelors' Ball Benefiting UCP of Central California (October 30)

Advocacy, Disability, Nonprofit & Social Media News

Advertising Age: What Google Instant Means for Marketers: More Ad Impressions
Disability Scoop: School Lifes Homecoming Court Ban on Students With Disabilities
Disability Scoop: Teen Masters Double Back Flip In Wheelchair
Disability Scoop: Feds Infuse Millions To Expand Respite Care
Disability Scoop: Disability Group Targets Senate candidate Who Questioned ADA
Parade: "I Always Wanted To Be A Mom"
Philanthropy Today: Purpose Is a Terrible Thing to Waste
Philanthropy Today: Chamber of Commerce Accused of Using Foundation Money for Politics
Philanthropy Today: Year-End Giving Could Get a Lift From Political Tax Debates

Announcements - September 8, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 08 Sep 2010 17:37:59 PDT

UCP in the News

UCP National / WebMD: Timing of Delivery May Affect Cerebral Palsy Risk (Stephen Bennett quoted)
UCP National / The Medical News: Cerebral Palsy Risk Rises in Post Term Babies: Study (Stephen Bennett quoted)
UCP National / The Hill's The Washington Scene: The Madison Hotel in Support of United Cerebral Palsy
UCP National / GregsListDC: The Madison Hotel in Support of United Cerebral Palsy
UCP National / Washington Life magazine: Please Join The Madison Hotel In Support of United Cerebral Palsy
UCP of Greater Birmingham / UAB Reporter: Biomed engineering students donate life-changing devices

Affiliate Updates & Events

UCP of East Central Florida: United Cerebral Palsy Gets New Leader (Sept. 8)
UCP National: The Madison hotel to support UCP during latest The Real Housewives of DC episode (Sept. 9)
UCP of New York City: Volunteer Appreciation Event - 65 years of Volunteerism (Sept. 15)
UCP of Illinois Prairieland: United Cerebral Palsy’s 3 Mile Cross-Country Run and Walk (Oct. 3)

Advocacy, Disability, Nonprofit, & Social Media News

Disability Scoop: Social Security Proposes Shift Away From 'Mental Retardation'
Disability Scoop: Facebook, Social Networks Opening Doors For People With Disabilities
Philanthropy Today: How Much Must Charities Disclose About Donors?
Philanthropy Today: New Site Seeks to Increase Online Giving With Strong Social Twist
Philanthropy Today: Women and Minorities Lag in Getting Top Fund-Raising Jobs
Philanthropy Today: Tax Debate Could Spark Giving
Philanthropy Today: U.S. Ranks Fifth in New Global Survey on Giving
Rosetta Thurman: Temp Your Way to Your Next Nonprofit Job

ecoordinator@ucp.org (United Cerebral Palsy) — Fri, 03 Sep 2010 13:01:00 PDT

On Thursday evening, The Madison hotel will support United Cerebral Palsy (UCP), while watching the latest episode of Bravo TV’s newest hit, The Real Housewives of DC, featuring The Madison.

The Palette Restaurant and Lounge at The Madison will have extended happy hour pricing and fun martinis from 7:00 – 11:00 p.m., and 10% of the proceeds will be donated to UCP. (Full detail below)

It’ll be a wonderful way to enjoy the evening while supporting UCP! Please share with friends, family, supporters and anyone you think might like to join us next week.

Please Join The Madison Hotel In Support of United Cerebral Palsy
The Evening of Thursday, September 9th
During Latest Episode of The Real Housewives of DC

Who: Friends and supporters of United Cerebral Palsy (UCP), and fans of Bravo TV’s newest hit, The Real Housewives of DC

What: Join the Palette Restaurant and Lounge at The Madison, A Loews Hotel to Support UCP while watching the latest episode of Bravo TV’s newest hit, The Real Housewives of DC, featuring The Madison

Enjoy extended happy hour pricing & fun martinis:

The State Dinner: house infused basil vodka, triple sec, carrot juice, mixed spices
Who's Who in DC: pomegranate, champagne, flower liquor
Let's Gossip: Baileys, Godiva dark chocolate, milk foam, grenadine, cherry
Martinis $8
Select Wines $6
Domestic Beer $5

When: Thursday evening, September 9
7:00 – 11:00 p.m.

Where: Palette Restaurant and Lounge at The Madison, A Loews Hotel
1177 15th Street, NW
Washington, DC 20005

Phone: (202) 862-1600

Cost: 10% of Palette’s proceeds from 7:00– 11:00 p.m. will be donated to UCP

Invite/RSVP: Open to the general public; no RSVP necessary

About United Cerebral Palsy
Founded more than 60 years ago by parents of children with cerebral palsy, today United Cerebral Palsy (UCP) is a leading service provider and advocate for children and adults with disabilities. The UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. This includes approximately 100 local service providers reaching more than 176,000 individuals daily in the U.S., Canada, Scotland and Australia. The national office in Washington DC supports the affiliate network; advocates on behalf of individuals with disabilities; advances federal disability public policy (Disability Policy Collaboration); provides information and referral; and develops forward-thinking initiatives and programs like Life Without Limits and My Child Without Limits. For more information, please visit www.ucp.org.

Announcements - September 1, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Fri, 03 Sep 2010 11:42:27 PDT

UCP in the News

UCP of the Inland Empire / Mydesert.com: Bowling event raises spare cash

Affiliate Updates & Events

UCP of Dane County: Danny Gokey to perform at Taste of Madison festival (Sept. 5)
UCP of Nassau County: Food-focused fundraiser in Westbury (Sept. 15)
UCP of Southern Maryland: United Cerebral Palsy 5th Annual Golf Challenge (Sept. 17)
UCP of North Bay: Ride of Your Life at Infineon Raceway (Oct. 9-10)
UCP of Greater Houston: The Bash: Halloween Happening for United Cerebral Palsy (Oct. 30)
UCP of Central California: 2010 Bachelor's Ball (Oct. 30)
UCP of Northwest Alabama: Life Without Limits' 1/2 Marathon, 5K & Fun Run (Oct. 30)

Volunteer Opportunity

Center for Assistive Technology and Environmental Access (CATEA) at Georgia Tech: Rehabilitation Engineering Research Center Survey, Workplace Features that Aid Function

Advocacy, Disability, Nonprofit & Web 2.0 News

Disability Scoop: Jobless Rate 60 Percent Higher For Americans With Disabilities, Report Shows
Disability Scoop: Stem Cell Ruling Leaves Some Disability Research In Limbo
Disability Scoop: 'Temple Grandin’ Snags Five Emmys
Philanthropy Today: Raising Money, One City at a Time
Philanthropy Today: How Jargon Can Damage Nonprofit Work
Mashable: How Non-Profits are Exploring Augmented Reality Tech
Philanthropy Today: Hurricane Katrina: Lessons for Charities
DIOSA Communications: Twitter Best Practices

Capitol Insider - August 30, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Mon, 30 Aug 2010 20:07:34 PDT

Volume 15, Issue 34
August 30, 2010

Action Alerts

CELEBRATE SOCIAL SECURITY’S 75TH BIRTHDAY!
PROTECT IT FROM EFFORTS TO REDUCE FEDERAL DEFICIT

Major Events Last Week

Medicaid

The Centers for Medicare and Medicaid Services (CMS) provided states with sample forms to request the temporary federal medical assistance percentage (FMAP) increase approved by Congress earlier in August. In order to receive the additional federal funds for the January 1, 2011 through June 30, 2011 period, states must submit a request by September 24, 2010. See the CMS letter at:http://ccf.georgetown.edu/index/cms-filesystem-action?file=policy/financing/fmap%20extension%20guidance.pdf.

USA Today is reporting that more than 50 million Americans are on Medicaid, according to a survey of state data. This is a 17% increase since December 2007. This is continuing to put a stress on state budgets and Medicaid providers as they try to serve eligible individuals. See the article at:http://www.usatoday.com/news/washington/2010-08-30-1Asafetynet30_ST_N.htm.

The Federal Register published the adjusted FMAP rate for the third quarter of Fiscal Year 2010 (April 1 through June 30, 2010). The chart provided in the notice tells what percentage each state will receive given the temporary increase and the unemployment adjustment. See the document at:http://edocket.access.gpo.gov/2010/pdf/2010-21235.pdf.

Health Care Reform Implementation

The DPC joined the Consortium For Citizens with Disabilities (CCD) Health Task Force in submitting comments on the regulations to implement several health insurance markets reforms that become effective September 23, 21010. CCD strongly urged HHS to strengthen certain provisions about the exclusion of pre-existing conditions clauses and the lifetime and annual limits that may undermine these important changes for people with disabilities. See our comments at: http://www.thearc.org/document.doc?id=2664.

ADA/Employment

The Equal Employment Opportunity Commission (EEOC) filed two employment discrimination lawsuits under title I of the Americans with Disabilities Act (ADA) in the US District Court for the Southern District of Texas in Houston. In the first lawsuit against ENGlobal Engineering, Inc., an energy engineering and professional services company, EEOC alleged the company fired an individual because it regarded him as having a disability. The employer insisted that the employee take a medical leave of absence when he began experiencing symptoms of multiple sclerosis even though he could still work. When the person returned to work with a doctor's clearance, ENGlobal falsely told him his position was no longer available. Three weeks later, the company hired someone else.

In the second employment discrimination lawsuit, EEOC alleged that DynMcDermott Petroleum Operations Company refused to hire someone who had previously worked for the company because his wife had cancer which the company felt would interfere with his ability to do his job. The company later hired someone with no experience for the position. Discrimination based on association with a person who has a disability is prohibited under title I of the ADA. See EEOC's press release at: http://www.eeoc.gov/eeoc/newsroom/release/8-26-10.cfm.

ADA/Public Accommodations

The US Department of Justice (DOJ) entered into a settlement agreement with Oconee County, South Carolina which agreed to make its courthouse accessible to people with disabilities. DOJ conducted a compliance review of the courthouse under title II of the ADA and found numerous problems, including inaccessible restrooms, inaccessible witness stands in courtrooms, absence of wheelchair spaces in jury boxes, inaccessible metal detector at the only designated accessible entrance, and inadequate accessible parking in lots and garages. The courthouse had been built in 2003.

Major Events Ahead

Health Care Reform Implementation

The Department of Health and Human Services continues to publish interim final regulations implementing key provisions of the Affordable Care Act (ACA). Recently the following regulations were published with the opportunity to provide comments. DPC staff will be analyzing the regulations and working with coalition partners to provide comments.
* Regulation on Pre-Existing Condition Insurance Plan. This regulation provides guidance on the administration of the pre-existing condition insurance plans to be offered by the states and the federal government until January of 2014 when the health insurance exchanges begin. To be eligible for the plan a person must have a pre-existing condition and be without insurance for 6 months.
* Request for Comment on Health Insurance Exchanges. This is an opportunity to provide input on how the state health insurance exchanges should be set up.
* Regulation on Consumers' Right to Appeal Health Plan Decisions. This is an opportunity to provide comment on the ways the ACA improved consumer appeal procedures.

Announcements

Education

With the theme "Courage in the Classroom: Honoring America's Teachers," Secretary of Education Arne Duncan has kicked off a Back-to-School Tour, where he will visit schools that are facing challenges and demonstrating success. He will talk with teachers about how they are helping their students achieve and how the federal government can best support educators. The bus route is over 800 miles long, and will span eight states. The hope is to engage in conversations with teachers and other educators about the critical work they're doing to educate America's young people, as well as with parents and students about their goals for the new school year and beyond. The DPC encourages disability advocates to participate in the tour and address issues of particular concern to our community - inclusion, special education teacher training, and restraint and seclusion. Follow the Bus Tour blog at: www.ED.gov/BusTour.

Emergency Management

The National Commission on Children and Disasters, appointed by the President in 2007, approved a report to the President and Congress that highlights on-going gaps in disaster preparedness for children since Hurricane Katrina five years ago. Although the report focuses on children, many of the identified gaps and over 100 recommendations pertain to individuals with disabilities as well. For example, the Commission found poor coordination among federal, state, and local programs and lack of preparedness in the private health care system. The report calls for establishing regional Children's Disaster Coordinators (Regional Disability Coordinator job announcements were recently posted by the Federal Emergency Management Agency); giving priority to the needs of families with children who have disabilities in housing assistance; specifically addressing the evacuation and transportation needs of children with disabilities in congregate care settings, and creating a national data system for keeping track of evacuated children so that they can be reunited with their families. The final report will be available in early October. For the executive summary of the report, see:
www.childrenanddisasters.acf.hhs.gov.

----------------

Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

Announcements - August 25, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 25 Aug 2010 16:13:10 PDT

UCP in the News

UCP of Eastern Connecticut / Hartford Courant: Kostin, Ruffkess Foundation Gives Back
UCP of West Central Wisconsin / Wqow.com: Big Rigs Roll into Town to Show Off
Easter Seals UCP / Wbtv.com: Lives Changed, One Step at a Time

Affiliate Updates & Events

UCP of Dane County Concert: Danny Gokey to perform at Taste of Madison festival (Sept. 5)
UCP of Central California: 2010 Bachelor's Ball (Oct. 30)
UCP of Northwest Alabama: Life Without Limits' 1/2 Marathon, 5K & Fun Run (Oct. 30)

Volunteer Opportunity

Center for Assistive Technology and Environmental Access (CATEA) at Georgia Tech: Rehabilitation Engineering Research Center Survey, Workplace Features that Aid Function

Advocacy, Disability, Nonprofit & Web 2.0 News

Candistar: Josh Blue, Multi-Talented Disable Comedian of America
Philanthropy Today: Recession Prompts Many Young Lawyers to Turn to Public-Interest Work
Disability Scoop: Jennifer Aniston Criticized For Using ‘R-Word’
Disability Scoop: Accessibility Comes Standard At First-Of-Its-Kind Dorm
The Washington Post: Bill seeks to make electronics accessible to blind, deaf
Green Biz: Green or Not, Content Is King on Your Company Website
The New York Times: The Charitable-Giving Divide
Disability Scoop: Autism Helps Scientists Understand Complexity Of Social Development

Capitol Insider - August 23, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Thu, 26 Aug 2010 09:47:18 PDT

Volume 15, Issue 33
August 23, 2010

Action Alerts

CELEBRATE SOCIAL SECURITY’S 75TH BIRTHDAY!
PROTECT IT FROM EFFORTS TO REDUCE FEDERAL DEFICIT

Major Events Last Week

FY 2011 Appropriations

The Obama Administration requested new funding for the fiscal year that starts on October 1 to fund training for primary care doctors and health care workers on treating the elderly ($250 million); additional funding to states to operate their high risk insurance pools ($55 million); and increased funding to educate consumers about the new health insurance coverage from the Affordable Care Act ($30 million). The new funding would be offset by cuts to the National Institutes of Health building program and the Centers for Disease Control and Prevention pandemic flu program.

Medicaid and Education

On August 16, Health and Human Services Secretary Sebelius wrote to state governors announcing that they must request the available $16.1 billion in additional Federal Medical Assistance Percentage (FMAP) just authorized by the Education Jobs and Medicaid Assistance Act recently signed into law by President Obama. Secretary Sebelius states: "These funds are only available for your state if you request them within 45 days of enactment, or by September 24, 2010. As a former governor and current partner with states in running Medicaid, I urge you to act." See Secretary Sebelius' letter at:
http://www.thearc.org/document.doc?id=2659.

In a similar letter to governors, Education Secretary Arne Duncan told governors that they must apply for education funding under the law by September 9. See:
http://www2.ed.gov/policy/gen/guid/secletter/100813.html.

Employment/ADA

The Equal Employment Opportunity Commission (EEOC) settled a discrimination lawsuit against Axiom Staffing Group, Inc. and Axiom Staffing Group of Virginia for refusing to hire a person due to a back impairment and for making derogatory remarks about the person's disability. The agencies agreed to train staff about the non-discrimination provisions of the Americans with Disabilities Act in order to prevent future discrimination and to pay the person with the disability who experienced the discrimination $35,000.

EEOC filed a lawsuit against KobeWieland Copper Products, LLC for rescinding its offer of employment due to a perceived disability in its Pine Hall, North Carolina facility. The individual applied for a position as a caster. Due to an accident as a child, he had lost fingers on one hand. When the man appeared for work on the first day, the employer noticed the missing fingers and revoked the offer of employment. EEOC alleged that the company violated the ADA by discriminating against an individual due to a perceived disability even though he was able to do the job.

ADA / Public Accommodations

The Department of Justice (DOJ) entered into two settlement agreements with private entities for violations of Title III of the Americans with Disabilities Act (ADA). DOJ found that the Southern New Hampshire Medical Center in Nashua, NH discriminated against an individual who is deaf and his companion who is not a qualified interpreter by not providing a sign language interpreter and asking the companion to provide interpreter services. The hospital agreed to modify its policies, train its staff, and provide necessary auxiliary aids and services in order to provide effective communication services to people with disabilities as well as their companions. See the settlement agreement at: http://www.ada.gov/so_nh_medctr.htm.

DOJ entered into a settlement agreement with The Sheraton Grand Sacramento Hotel in California for its discrimination against a person who used a service animal. The hotel required the individual to stay on a "pet floor" in the hotel and to pay a pet deposit. The hotel agreed to modify its policies so that individuals with disabilities who use service animals may enjoy the services of the hotel on an equal basis with any other guests. The hotel also agreed to pay the person with the disability $500. To read the settlement agreement, see:
http://www.ada.gov/sheraton_sacramento.htm.

Social Security

The Social Security Administration published proposed rules on revisions to the criteria for mental impairments, including intellectual disability/mental retardation. These criteria, or "listings", are the first major step in determining whether an individual is eligible for disability benefits under the Supplemental Security Income (SSI) and Social Security disability programs. The proposed rules are available for public comment until November 17, 2010. The DPC staff and other advocates will be analyzing the proposed regulations over the next several weeks in preparation for submitting comments. See the proposed rules at:
http://edocket.access.gpo.gov/2010/pdf/2010-20247.pdf.

Major Events Ahead

U.S. Congress

Washington remains fairly quiet as the Congress remains in recess until September 14.

Announcements

Medicaid/Money Follows the Person (MFP) Funding Availability

Funding is available for all states that want to help balance their long-term services and supports systems. The Affordable Care Act provided an additional $2.25 billion for the MFP Demonstration program. States receive an enhanced federal medical assistance percentage (FMAP) for a one-year period for each individual they transition from an institution to a qualified home and community-based program. The 29 states which currently have MFP awards can modify and expand their existing grants. For example, they could propose to add additional populations, expand the number of transitions, or expand geographic scope. See the FY 2011 MFP demonstration grant application at:
http://www.cms.gov/CommunityServices/Downloads/MFP2011SolicitationFinalJuly29RH.pdf.

States without current MFP awards are also eligible to apply for new FY11 MFP demonstration grants. These are: AL, AK, AZ, CO, FL, ID, ME, MA, MN, MS, MT, NV, NM, RI, SD, TN, UT, VT, WV, WY as well as the following territories: PR, USVI, AS, and NMI. The deadline for applications is January 7. However, states are encouraged to submit an optional letter of intent by August 25. CMS will provide extensive technical assistance to help states complete successful applications.

In addition, states without current MFP grants are also eligible to apply for FY10 Planning Grants. These grants will provide up to $200,000 to states for them to work with stakeholders and submit successful applications. CMS is prepared to award up to 20 planning grants. The deadline for planning grants is September 7. See the planning grant application at:
http://www.cms.gov/CommunityServices/Downloads/MFP_Planning_Grant_Solicitation_2010.pdf.

Medicaid/Children's Health Insurance Program

In the August 11th Federal Register, the Centers for Medicare and Medicaid Services (CMS) published a final regulation for calculating payment error rates in Medicaid and the Children's Health Insurance Program (CHIP). The error rates measure the percentage of payments that are made incorrectly. The purpose of the rates is to establish a baseline for improvements in payments leading to less waste of taxpayer money. The final regulation also extends the time frame for providers to submit documentation of claims and gives states more time to submit plans to improve error rates. See the regulation at:
http://www.cms.gov/PERM/Downloads/Fin_Rule_Aug_1.pdf

Community Living/Olmstead

Assistant Attorney General for Civil Rights, Sam Bagenstos, laid out the new commitment of the U.S. Justice Department to implement the 1999 Olmstead Supreme Court decision. That decision found, for the first time, a Constitutional right of people with disabilities to live in the community and not in institutions. Mr. Bagenstos explained the justice Department's position in his keynote speech at the August 8-10 Reinventing Quality conference in Baltimore, Maryland. Watch Mr. Bagenstos' speech at:
http://www.vimeo.com/14309540

Accessibility

The US Access Board announced that it will develop guidelines to address acoustics in classrooms that are newly constructed or significantly renovated. For additional information, please see:
http://www.access-board.gov/acoustic/index.htm.

Emergency Management

The Federal Emergency Management Agency (FEMA) in the Department of Homeland Security announced that it was hiring Regional Disability Integration Specialists in each of its 10 regional offices. Advocates have urged FEMA to put disability specialists in the regions to help ensure that the needs of individuals with disabilities are addressed during disaster planning, response, and recovery efforts. Job notices are posted on the Federal Government's one-stop USAJOBS website at:
http://jobsearch.usajobs.gov/search.aspx?FedEmp=N&FedPub=Y&vw=b&re=0&caller=basic.aspx&jbf574=HSCB&pg=1&q=regional%20disability.

----------------

Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

Announcements - August 18, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 18 Aug 2010 14:18:07 PDT

The 2010 Toys“R”Us Toy Guide for Differently-Abled Kids Has Arrived!
Toys“R”Us, Inc. has released the 2010 edition of the Toys“R”Us Toy Guide for Differently-Abled Kids®, an easy-to-use toy selection resource that can help parents of children with special needs select toys that develop skills through the power of play. This year, actress, author, philanthropist and mother of a son with autism, Holly Robinson Peete appears on the cover, along with Tommy Austing, a 5-year-old boy from Beverly Hills, CA.

All toys featured in the Guide are available at Toys“R”Us® stores nationwide and online at Toysrus.com/DifferentlyAbled, which also offers “flippable” and downloadable digital versions in both English and Spanish.

UCP in the News

UCP of Michigan / ucpmichigan.org : Cerebral palsy group gets $12K grant
UCP of San Diego / The Daily Transcript: Firefighters sponsor UCP's 27th annual luncheon
UCP of the Mid-South / Wmctv.com: Thousands turn out for Elvis Presley race
UCP National / OandP.com: Prosthetists and Technicians: Tell Us What Tools You Need to Innovate

Affiliate Updates & Events

UCP of Dane County: Concert: Danny Gokey to perform at Taste of Madison festival (Sept. 5)
UCP of Central California: 2010 Bachelor's Ball (Oct. 30)
UCP of Northwest Alabama: Life Without Limits' 1/2 Marathon, 5K & Fun Run (Oct. 30)

Advocacy, Disability, Nonprofit & Web 2.0 News

Disability Scoop: Brain Scan Could Simplify Autism Screening
Disability Scoop: Airline Under Investigation For Turning Away People With Disabilities
Philanthropy Today: The Economy and Fund Raising: What's Next
Philanthropy Today: What Inspires Donors to Give: Lessons From a New Research Study
Business Week: How to Redesign Health Care
Philanthropy Today: Philanthropy Becomes Status Symbol for Rich, Experts Say
The Washington Post: D.C. teams boosting focus on charitable giving
Disability Scoop: Family, Special Olympics At Odds After Teen Excluded From Program

Capitol Insider - August 16, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Mon, 16 Aug 2010 16:02:35 PDT

Volume 15, Issue 32
August 16, 2010

Action Alerts

NEW: CELEBRATE SOCIAL SECURITY'S 75TH BIRTHDAY!
PROTECT IT FROM EFFORTS TO REDUCE FEDERAL DEFICIT

Major Events Last Week

Medicaid/Education

On August 10, President Obama signed into law legislation that includes a six-month extension of the Medicaid's temporary enhanced Federal Medical Assistance Percentage (FMAP) for the states. The House returned last week from recess to pass the Teacher Jobs and State Fiscal Relief bill passed earlier by the Senate. The FMAP extension is scaled back from the proposed 6.2% increase for six months to the following: a 3.2% increase for January 2011 through March 2011and a 1.2% increase for April 2011 through June 2011. The total cost of the increased Medicaid assistance to states is $16.1 billion. Another $10 billion was aimed at providing educational assistance in the states. This law is a great victory for the disability community that has been bracing for additional budget cuts in 2011 for home and community based services as well as special education teacher layoffs. The additonal funding provided by the law is expected to lessen, but not entirely eliminate, budget cuts for FY 2011 by the majority of states that continue to face severe shortfalls in revenue.

Employment

AT&T Services, Inc. (AT&T), the largest communications holding company in the world by revenue, was ordered to pay an employee $60,000 to settle an employment discrimination lawsuit that was filed by the Equal Employment Opportunity Commission (EEOC). EEOC alleged that AT&T refused to hire a person with Type 2 Diabetes, who used insulin, to work as a cable splicer technician in Austin, Texas. The person had the required expertise and experience having performed a similar job for AT&T for many years. AT&T also agreed to provide training to its non-management staffing managers about the employment discrimination prohibitions of the Americans with Disabilities Act (ADA). The managers will be required to sign statements acknowledging that insulin use does not automatically disqualify someone from performing a job. An EEOC press release about the case is available at: http://www.eeoc.gov/eeoc/newsroom/release/8-5-10a.cfm.

Housing

The US Department of Justice (DOJ) filed a lawsuit against the owners, developers, architects, and civil engineers who designed and built an apartment complex in Louisville, Kentucky. In the lawsuit, DOJ alleges that the 276-unit apartment complex does not include the required number of accessible units. There are no apartments with doorways wide enough to accommodate a person who uses a wheelchair, bathrooms and kitchens that are accessible, or thermostat controls that are at appropriate heights. In addition, the apartment complex does not have accessible routes from the parking lot to the apartments or to other areas available to tenants, such as the swimming pool and clubhouse. The Fair Housing Act has required newly build multi-family housing complexes to be accessible since 1991. DOJ has asked the Federal District Court in Louisville to order accessibility retrofits of the apartment complex, to approve monetary damages to individuals with disabilities who were denied access to the complex, and to order the owners, developers, architects and engineers to refrain from future discriminatory conduct. To see a copy of DOJ's complaint, go to: http://www.justice.gov/crt/housing/documents/cogancomp.pdf.

ADA/Olmstead

DOJ filed a comment in support of final approval of a consent decree in an ADA Title II Olmstead enforcement case. Under the consent decree, the state of Illinois agrees to offer and to provide services and supports to people with mental illness who are living in private institutions but who could live in more integrated settings and who wish to do so. There are several thousand people with mental disabilities living in Institutions for Mental Diseases (IMDs) in Illinois (some for decades) who could live in the community. Under the consent decree, Illinois agrees to offer community living opportunities to all people with mental disabilities living in institutions within 5 years and to move 640 individuals who want to move from the institution into community settings within 2 years. DOJ addressed the objections of some of the class of individuals living in IMDs which DOJ alleged were based on misleading information given to them by their attorney and by the IMD facilities. Class members were told by the IMDs that under the consent decree the facilities might close and residents would be living on the street without basic necessities. In urging the court to approve the consent decree, DOJ emphasized that under its terms, individuals with mental disabilities living in private IMDs would be given the choice of leaving or remaining. To see a copy of DOJ's comment filed with the court, go to:
http://www.ada.gov/briefs/williams_quinn_br.doc.

ADA/Public Accomodations

DOJ settled a complaint against a day care center in California that allegedly refused to provide routine care for a five-year old with Type I diabetes. According to the child's parents, the daycare had required them to come to the facility at lunch time and snack time to administer insulin via pump and prohibited the child from participating in field trips. DOJ found that the practices violated Title III of the ADA. The Rainbow River Child Development Center in Hawthorne, CA agreed to train its staff, provide the necessary Type I diabetes care to the child and change its policies, procedures and practices. To see a copy of the agreement, go to:
http://www.ada.gov/rainbow_river/rainbow_river_sa.htm

Major Events Ahead

U.S. Congress

Following two unscheduled votes last week, the House and Senate are now in summer recess until September 14.

Announcements

Emergency Management

The Office of Disability Integration and Coordination in the Federal Emergency Management Agency (FEMA) of the Department of Homeland Security is looking for delegates to attend a conference September 22-24 in Washington, DC. The conference will jointly train members of the emergency management and disability communities in inclusive emergency preparedness. Conference participants will receive training so that they can return to their communities and act as leaders in collaborative emergency preparedness and disaster response and recovery planning efforts. Applications are due on August 19, 2010. See the application at: http://www.nationaltechcenter.org/Uploads/2010/08/2010-getting-real-application.pdf.

----------------

Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

Announcements, August 11, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Fri, 13 Aug 2010 16:17:23 PDT

UCP in the News

UCP of East Central Alabama / Anniston Star: United Cerebral Palsy hosts fundraising telethon
UCP of Greater Cleveland / Cleveland.com: Brecksville and Broadview Heights families prepared to support United Cerebral Palsy of Greater Cleveland in the Cleveland Triathlon
UCP of Greater Cleveland / WKYC.com: Cleveland Triathlon to include 'special needs' kids
UCP National / MonicaandDavid.com: Monica & David won Best Documentary Feature at Tribeca!
UCP of San Diego County / La Jolla Light: La Jolla golf tournament held in honor of United Cerebral Palsy volunteer

Affiliate Updates & Events

UCP of Greater Texas: Run, Walk, Roll (Aug. 14)
UCP of Dane County: Concert: Danny Gokey to perform at Taste of Madison festival (Sept. 5)
UCP of Central California: 2010 Bachelor's Ball (Oct. 30)
UCP of Northwest Alabama: Life Without Limits' 1/2 Marathon, 5K & Fun Run (Oct. 30)

Advocacy, Disability, Nonprofit & Web 2.0 News

Disability Scoop: Unemployment Nears Record Levels Among People With Disabilities
Philanthropy Today: Health-Care Endowments Saw Modest Signs of Improvement in 2009, Report Says
Philanthropy Today: Federal Nonprofit Management Grants Announced
Disability Scoop: Bill Removing ‘Mental Retardation’ From Law Clears Senate
Philanthropy Today: Corporate Giving During Uneasy Times
Rosetta Thurman's Blog: How to Use Social Media to Build a Better Nonprofit Event

Showcases & Conferences

Capitol Insider - August 9, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Tue, 10 Aug 2010 10:48:01 PDT

Volume 15, Issue 31
August 9, 2010

Action Alerts

Help Pass The ABLE Act in This Congress! Contact Your Representatives to Convene a Hearing and Vote on the ABLE Act

Major Events Last Week

Medicaid FMAP/Education

After several unsuccessful attempts, the U.S. Senate passed the Education Jobs and Medicaid Assistance Act by a vote of 61-39 on August 5. This bill provides $16.1 billion to extend the Medicaid federal medical assistance percentage (FMAP) from January 1 to June 30, 2011. The bill also sends another $10 billion to school systems to avoid teacher layoffs before the new school year starts. The bill is fully paid for but it reduces the amount of federal support for FMAP from the $24 billion that would have been available under previous versions of the extension.

Passage was finally secured in the Senate when the two Republican Senators from Maine (Snowe and Collins) voted in favor of the measure. A Medicaid FMAP increase of 3.2% will be in effect from January through March and then lowered to 1.2% from April through June. The bill must now be passed by the full House of Representatives before being sent to President Obama for his signature.

The DPC has actively supported the FMAP extension and the education funding as they are both critically needed to prevent harmful cuts to services and schools. However, we are concerned that it is partially paid for by scaling back future food stamp benefits which serve many people with disabilities.

Health Care Reform/ Medicaid

On August 6, The Center for Medicaid, CHIP and Survey & Certification released a letter in their series of guidance on implementation of the Affordable Care Act of 2010. This letter provides information about several changes to Section 1915(i) of the Social Security Act as a result of the passage of the Affordable Care Act. These changes, which become effective October 1, 2010, include revised and new options for offering home and community-based services (HCBS) through the Medicaid State plan. Among other things, section 1915(i) removes the requirement that individuals meet an institutional level of care in order to qualify for HCBS through Medicaid. Section 1915(i) provides States an opportunity to offer services and supports before individuals need institutional care, and also provides a mechanism to provide State plan HCBS to individuals with mental health and substance use disorders. In order to promote State utilization of 1915(i), the Affordable Care Act includes changes that enable states to target HCBS to particular groups of people, to make HCBS accessible to more individuals, and to ensure that individuals receive high quality care. See the letter at: http://www.nacdd.org/documents/Improved%20Access%20to%20HCBS%20SMD%20letter%20Final%208-6-10.pdf

Terminology

Late in the evening of August 5, the Senate adopted, by unanimous consent, Rosa’s Law (S. 2781). This bill would change the terms “mental retardation” and “mentally retarded” to “intellectual disability” and “intellectually disabled” in various federal laws that primarily relate to education and employment. The bill is solely intended to eliminate antiquated terminology. Rosa’s Law would not affect eligibility for services or expand or reduce service availability. Attention now shifts to the House where a similar bill, known as the Elizabeth A. Connelly Act (H.R. 4544), is still awaiting committee action.

Employment

House Oversight and Government Reform Committee Chairman Edolphus Towns (D-NY) introduced legislation (H.R. 5983) to modernize the Javits-Wagner-O’Day Act, known as the Ability One program. This act has not been changed in decades. The Ability One program provides employment for over 40,000 individuals with significant disabilities, the majority of whom have intellectual and developmental disabilities. Numerous chapters of The Arc and several affiliates of United Cerebral Palsy participate in the Ability One program.

Social Security/Medicare

The Social Security and Medicare Trustees issued their annual report on August 5. The 2010 Trustees report was released late this year in order to adjust estimates based on enactment of the Affordable Care Act in March. According to the Trustees report, the Social Security trust funds will have an annual surplus of $77 billion in 2010 and annual surpluses will continue until 2024. As also reported by the National Academy of Social Insurance, the trust funds surplus will grow from its current $2.6 trillion to $4.2 trillion in 2024. Beginning in 2024, reserves will be used to help pay benefits until the trust funds are expected to be depleted in 2037. At that point, benefits will be paid through in-coming taxes, which would cover about 78 percent of scheduled benefits.

The outlook for the Medicare trust fund has improved substantially since enactment of the Affordable Care Act and it is now expected to remain solvent until 2029, 12 years longer than projected last year. However, the Trustees point out that further reforms will be needed for long range solvency. See the report at: http://www.ssa.gov/OACT/TRSUM/index.html.

Technology

By unanimous consent, the Senate passed the Equal Access to 21st Century Communications Act (S. 3304). The House version of the bill, H.R. 3101, passed on the 20th Anniversary of the ADA on July 26, 2010. The bill would require captioned television programs to also be captioned when delivered over the Internet; televised emergency information to be accessible to individuals who are blind or have low vision; accessibility of advanced communications equipment and services, such as text messaging and e-mail; hearing aid compatibility of Internet-enabled phones; accessible user controls for televisions and set-top boxes and easy access to closed captioning and video description; a clearinghouse of information on accessible products and services with public education and outreach, and Advisory Councils that must include people with disabilities in developing the objectives and protocols for accessibility of Internet-enabled TV and phone technologies. Since the provisions of the Senate bill are an improvement over the House bill, advocates support and expect the House of Representatives to pass S. 3304. For a section by section description of S. 3304, see:
http://www.coataccess.org/node/9776.

Major Events Ahead

Medicaid FMAP/Education

The U.S. House of Representatives will interrupt its summer recess by returning to Washington for a one day session tomorrow to vote on the Education Jobs and Medicaid Assistance Act. This is the identical bill that passed the Senate last week.

U.S. Congress

Congressional Leaders have announced that the Congress will return to work on September 14. A four week session is planned, ending on October 8. Within that timeframe, the Congress will need to address the Fiscal Year 2011 Appropriations bills and the Bush tax cuts that are scheduled to expire on September 30.

The Congress is expected to return for a post election lame duck session on November 15 for one week prior to Thanksgiving. The Congress is expected to return on November 29. The length of that lame duck session has not been determined, although the impact of the election results is likely to affect that decision. One possible outcome of the lame duck session is a vote on the recommendations, should there be any, from the presidentially appointed deficit reduction commission.

Announcements

Employment

The Department of Labor's Office of Federal Contract Compliance Programs (OFCCP) is seeking input from the public on ways to strengthen its regulations requiring federal contractors to take affirmative action to employ and advance in employment qualified individuals with disabilities. In an Advance Notice of Proposed Rulemaking (ANPRM), the agency invited the public to help revise the regulations implementing Section 503 of the Rehabilitation Act of 1973. Although the Section 503 regulations have required equal employment opportunity and affirmative action since the 1970s, the rate of unemployment among people with disabilities is significantly higher than those without disabilities. OFCCP is asking for information about recruitment of people with disabilities by contractors, setting hiring goals, and strengthening agreements between contractors and organizations that promote the hiring of people with disabilities. Comments are due by September 21, 2010. To see the ANPRM go to:
http://www.regulations.gov/search/Regs/home.html#docketDetail?R=OFCCP-2010-0001.

The Department of Labor's Employment and Training Administration (ETA), in coordination with the Department's Office of Disability Employment Policy (ODEP), has announced the availability of approximately $22 million for cooperative agreements to state Workforce Investment Act (WIA) administering entities. This funding is being used to implement the Disability Employment Initiative (DEI), under which the Department intends to make 6 to 10 grant awards that are designed to: (1) Improve educational, training, and employment opportunities and outcomes of youth and adults with disabilities who are unemployed, underemployed and/or receiving Social Security disability benefits; and (2) help these individuals find a path into the middle class through exemplary and model service delivery by the public workforce system. Application deadline is September 8, 2010. For more information see: http://www.disability.gov/employment/news_%26_events.
Medicaid/CHIP

The U.S. Department of Health and Human Services (HHS) recently launched the “Get Covered. Get in the Game.” initiative in seven pilot states across the country – Colorado, Florida, Maryland, New York, Oregon, Ohio and Wisconsin. The initiative seeks to find and enroll roughly five million uninsured children in the U.S. who are currently eligible for Medicaid and the Children’s Health Insurance Program (CHIP). “Get Covered. Get in the Game.” brings together coaches, schools, and communities to educate families with children who are eligible for Medicaid or CHIP about the immediate availability of children’s health coverage programs. Uninsured kids often miss out in organized youth sports because they cannot afford the necessary physical often required to participate in youth sports or because their families are concerned they would be unable to pay for treatment if their kids get hurt. For more information about enrolling in children’s health insurance programs, please call 1-877-KIDS-NOW (1-877-543-7669) or visit www.InsureKidsNow.gov.

Education

The Office of Special Education and Rehabilitative Services (OSERS) will be hosting a webinar on Thursday, August 12, from 1:00-2:30 p.m. (Eastern) entitled “OSERS Roadmap: Charting the Course.” OSERS leadership has revised its goals to strengthen their commitment to improving outcomes for people with disabilities of all ages. During this session, OSERS will continue its overview of their newly set goals, and describe how OSERS’ programs and services are helping to achieve them. Following the presentation, participants will have the opportunity to pose questions to OSERS’ leadership team. Pre-registration is not required for this Webinar. Information necessary for participation in the Webinar is available at:
http://ncrtm.org/mod/resource/view.php?id=2226

Developmental Disabilities

The Administration on Developmental Disabilities (ADD) in the Department of Health and Human Services is seeking information about the needs of people with developmental disabilities. ADD funds projects of national significance (PNS) designed to foster systems change in meeting the needs of people with developmental disabilities and their families. ADD is asking people to complete a short on-line survey about the types of programs and projects that would be most helpful to people and their families. The survey can be completed on line until September 1, 2010 at:
http://www.acf.hhs.gov/programs/add/survey/survey_coded_final.html.

----------------

Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

Join our My Child Without Limits Online Community Today!

ecoordinator@ucp.org (United Cerebral Palsy) — Tue, 28 Sep 2010 08:26:37 PDT

My Child Without Limits (MCWL) is an authoritative early intervention resource for families of young children ages 0-5 with developmental delays or disabilities, in addition to professionals looking for a single, trusted, aggregate source of information that relates to their needs and interests.

United Cerebral Palsy (UCP) would like to invite you and your loved ones to join our My Child Without Limits Support community in partnership with Inspire, a company that builds and manages online healthcare communities. We have created a place where you can connect with others who want to talk and support one another.

Among the many exciting features our community offers, you can:

Post personal profiles - share as much or as little as you'd like about yourself
Post personal photos or videos (optional)
Invite other members to be friends
Participate in discussion groups - or even just read what others have to say
Create a personal journal (or blog) where you can express your feelings and allow others to comment
Read others' journals to learn about their experiences

You'll also find coping strategies and answers to your questions, as well as vital support, compassion, encouragement and inspiration from others sharing experiences similar to yours. Upon joining, you'll have complete control of your privacy options and can communicate with others like you in a safe, secure environment.

To get started please visit our community and click on the "Join Now" button.

We encourage you to join the community and start building your own online support network today. Registration is free and only takes a minute.

Announcements August 4, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Fri, 06 Aug 2010 13:36:36 PDT

UCP in the News

UCP of NYC / Northjersey.com: Verona teacher to climb Mount Washington
UCP of Michigan / Battle Creek Enquirer: Recycling program allows residents to support people with disabilities

Affiliate Updates & Events

UCP of Greater Sacramento: Rocklin 70's Party (Aug. 7)
UCP of East Central Alabama: Woodstock 5K (Aug. 7)
UCP of Greater Texas: Run, Walk, Roll (Aug. 14)
UCP of Dane County: Concert: Danny Gokey to perform at Taste of Madison festival (Sept. 5)
UCP of Central California: 2010 Bachelor's Ball (Oct. 30)
UCP of Northwest Alabama: Life Without Limits' 1/2 Marathon, 5K & Fun Run (Oct. 30)

Advocacy & Disability News

The Washington Post: Anniversary of ADA brings presidential order to hire more disabled workers
The Washington Post: Recession deals a double blow to those both disabled and unemployed
Pittsburgh Live: Disabilities can be overcome when it comes to casting ballot
Disability Scoop: Move Over Dogs: Cats Offer Therapeutic Benefit Too
Disability Scoop: Obama Signs Bill Ensuring Funding For Independent Living Centers
The Examiner: Hyperbaric Oxygen Therapy For Cerebral Palsy Making Grand News

Philanthropy, Nonprofit & Web 2.0 News

Mashable: Why You Need to Monitor and Measure Your Brand on Social Media
Philanthropy Today: Real-Life Stories of Haitian Children Help a YMCA Chapter Raise Money
Business Week: B-Schools All A-Twitter Over Social Media

The Capitol Insider - August 2, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Mon, 02 Aug 2010 14:02:04 PDT

Volume 15, Issue 30
August 2, 2010

Action Alerts

Help Pass The ABLE Act in This Congress! Contact Your Representatives to Convene a Hearing and Vote on the ABLE Act

Major Events Last Week

Congress

The House of Representatives has begun the August recess. The Senate is expected to adjourn at the end of the week. Both the House and Senate will return after Labor Day with a full agenda of issues to address before adjourning in early October to campaign. The current prediction is that after the November elections Congress will reconvene to finish up the appropriation's process. Prior to the start of FY 2011 on October 1st, Congress will likely pass a continuing resolution to keep the federal government running until they reconvene in November.

Appropriations

Prior to leaving, the House approved the Department of Transportation, and Housing and Urban Development and Related Agencies Appropriations bill and the Supplemental Appropriations bill. The bill includes $300 million for the Section 811 Supportive Housing for Persons with Disabilities. On the transportation side, over $11.3 billion is provided for public transportation programs, an increase of $508 million above the President's request.

The Senate Appropriation's Committee approved the Labor, Health and Human Services, Education, and Related Agencies appropriations bill. Full details on the funding levels for the bill are not yet available.

National Commission on Fiscal Responsibility and Reform

The National Commission on Fiscal Responsibility and Reform met in Washington on July 28 and spent substantial time discussing Social Security issues. The Commission has not yet reached any recommendations on its charge to identify policies to improve the nation's fiscal situation and to achieve fiscal sustainability over the long run. According to the White House and Commission members, everything remains on the table including Social Security, Medicare, Medicaid, tax revenues, and defense spending. The DPC will continue to monitor the Commission's deliberations.

Affordable Care Act Implementation

Last week the Department of Health and Humans Services released more regulations implementing the ACA and is seeking comments in several critical areas including:

publishing rules outlining administrative and eligibility details on an interim high-risk insurance pool for uninsured persons with pre-existing conditions; and
requesting comments on the process of establishing state insurance exchanges, a prominent feature of the new health insurance overhaul law.

Centers for Medicare and Medicaid Services (CMS) is also requesting public comments as it begins developing legislative changes to be recommended by the HHS Secretary, for improving quality in the Medicaid and the Children's Health Insurance Program. In particular, CMS is interested in the quality of care provided for: preventive health care services; health care for acute conditions; chronic health care; and health services to ameliorate the effects of physical and mental impairments and to aid in the growth and development of infants, young children, school-age children, and adolescents with special health care needs.

Employment

On July 30, Representative Edolphus Towns (D-NY), Chair, House Oversight and Government Committee with Representative Brian Bilbray (R-CA) introduced the Javits-Wagner-O'Day (JWOD) Act of 2010 (H.R. 5983). The bill modernizes the JWOD act by updating the definition of significant disability, expanding federal agency participation, adding a process for quicker additions to the procurement list and other changes. The Arc and UCP both have seats on the NISH board (the nonprofit that helps run the JWOD program) and have been involved in the development of these improvements.

President Obama issued an executive order directing federal agencies to step up efforts to hire 100,000 employees with disabilities over the next five years. Ten years ago this month, President Bill Clinton laid out the same goal in a similar order, but according to the President, "few steps were taken to implement [the order] in subsequent years."

The order directs the Office of Personnel Management, in consultation with the Labor Department, the Equal Employment Opportunity Commission and the Office of Management and Budget, to design strategies within 60 days for recruiting and hiring workers with disabilities. Personnel managers at government agencies must be trained in employing people with disabilities. Agencies will then be required to develop plans for recruiting and keeping the workers. A copy of the executive order can be found at http://www.whitehouse.gov/the-press-office/executive-order-increasing-federal-employment-individuals-with-disabilities.

The US Department of Labor Office of Federal Contract Compliance Programs released an advance notice of proposed rulemaking (ANPRM) inviting the public to provide input on how OFCCP can strengthen the affirmative action requirements of the regulations implementing section 503 of the Rehabilitation Act of 1973, as amended (Section 503). Strengthening affirmative action requirements will help increase the employment opportunities of people with disabilities in the Federal contractor sector. Comments are due by September 21, 2010. To see the ANPRM, go to http://www.regulations.gov/search/Regs/home.html#documentDetail?R=0900006480b1fd5a.

Americans with Disabilities Act

The Department of Justice (DOJ) issued final regulations covering Titles II and III of the ADA to incorporate the changes made by passage of the ADA Amendments Act (ADAAA) in 2008. Title II prohibits discrimination on the basis of disability in state and local government services and Title III prohibits discrimination on the basis of disability by public accommodations and in commercial facilities. Copies of the final rules with new language in bold typeface are available at http://www.ada.gov/regs2010/titleII_2010/titleII_combined.html and http://www.ada.gov/regs2010/titleIII_2010/titleIII_combined.html.

DOJ announced plans to develop ADA regulations addressing the accessibility of websites, the provision of captioning and video description in movies shown in theaters, accessible equipment and furniture, and the ability of 9-1-1 centers to take text and video calls from individuals with disabilities. The announcements were in the form of advance notices of proposed rulemaking (ANPRMs), which provide information on the ADA issues and ask questions seeking comments and information from the public. Comments are due in January 2011. To see copies of the ANPRMs, go to http://www.ada.gov/anprm2010.htm.

Transportation

On July 26th, the U.S. Access Board issued for public comment a proposal to update sections of its ADA Accessibility Guidelines for Transportation Vehicles that cover access to buses and vans. This update includes revisions to requirements for vehicle ramps, onboard circulation routes, wheelchair spaces, and securement systems, as well as new provisions for automated announcements and bus rapid transit systems. Comments on the proposed rule are due by November 23, 2010.

Autism

Last week, the House Energy and Commerce Committee approved legislation (H.R. 5756) that amends the Developmental Disabilities Act to create a national training initiative within the University Centers on Excellence focused on autism research and training. Additional grants are also authorized to conduct research and education focused on racial and ethnic minority populations.

Celebrations

In addition to all of the celebrations last week in honor of the 20th Anniversary of the Americans with Disabilities Act, there were numerous celebrations in honor of the 75th Anniversary of Social Security and the 45th Anniversary of Medicaid and Medicare. On behalf of the Consortium for Citizens with Disabilities, Marty Ford joined Members of the House of Representatives and other advocates speaking in support of Medicaid and Medicare at a 45th birthday celebration event.

Major Events Ahead

Medicaid FMAP, Education, Food Stamps

The Senate is expected to vote today on a $26 billion dollar bill providing aid to states that includes an extension of the increase in the federal medical assistance percentage (FMAP) of $16.1 billion and $10 billion in education funding intended to prevent teacher layoffs. The bill is fully paid for but it reduces the amount of federal support for FMAP from the $24 billion that would have been available under previous versions of the extension. The provision would phase out the enhanced FMAP during the six-month period from January 2011 through June 2011, providing states with a 3.2 percentage point increase in the second quarter of fiscal year 2011 and a 1.2 percentage point increase in the third quarter of FY 2011. One of the legislative changes the bill would make is that effective 2015 food stamp benefits would return to the levels that individuals would have received under pre-Recovery Act law. This change is expected to save $6.7 billion over ten years. The DPC has actively supported the FMAP extension and the education funding as they are both critically needed to prevent significant cuts to services and schools. However we are concerned that it is partially paid for by taking funding away from a critical hunger program that serves people with disabilities.

Announcements

Money Follows the Person Funding

Cindy Mann, Director of the Center for Medicaid, CHIP, and Survey & Certification has sent a letter to State Medicaid Directors about the improvements in the Money Follows the Person (MFP) program made by the Affordable Care Act, including preliminary information for non-participating states that may be interested in pursuing new funding. In her letter, Mann states, "The MFP Demonstration Program is an important tool that states can use to make greater progress in achieving the promise of the ADA and Olmstead." MFP funds provide additional federal funds to assist states to move people from institutional settings into community settings. Twenty-nine states and the District of Columbia have already implemented MFP programs. They are: AR, CA, CT, DC, DE, GA, HI, IA, IL, IN, KS, KY, LA, MD, MI, MO, NC, ND, NE, NH, NJ, NY, OH, OK, OR, PA, TX, VA, WA, WI. The letter can be found at: http://www.cms.gov/smdl/downloads/SMD10012.pdf.

Employment

The Equal Employment Opportunity Commission (EEOC) issued its 2009 annual report on the Federal workforce. For the first time since FY 1995, the percentage of people with targeted disabilities in federal jobs held steady, halting a 13-year decline. However, despite a modest net gain of 236 employees in FY 2009 over FY 2008, people with targeted disabilities still remain below one percent (0.88 percent) of the total workforce. Targeted disabilities include deafness, blindness, missing extremities, partial or complete paralysis, convulsive disorders, intellectual disability, mental illness, and distortion of the limb and/or spine. An EEOC press release with a link to the full report can be found at http://www.eeoc.gov/eeoc/newsroom/release/7-26-10.cfm.

The Department of Labor Office of Disability Employment Policy announced the availability of approximately $2.3 million to fund up to four cooperative agreements ranging from $500,000 to $625,000 in support of the Add Us In initiative. Add Us In is designed to increase the ability of businesses owned, operated and controlled by African Americans; Asian Americans; Latino or Hispanic Americans; members of federally recognized Tribes and Native Americans; Lesbian, Gay, Bisexual and Transgender individuals; and women to employ adults and youth with disabilities. Applications are due September 1, 2010. For more information visit http://www.dol.gov/odep/index.htm.

----------------

Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

Information and Referral: Ask Lara about the ADA

ecoordinator@ucp.org (United Cerebral Palsy) — Thu, 29 Jul 2010 07:57:26 PDT

United Cerebral Palsy Commemorates the 20th Anniversary of the Americans with Disabilities Act (ADA) & Looks Forward to Future Efforts to Achieve Life Without Limits for People with Disabilities

Q: Where can I find information and resources related to the ADA?

A: The Department of Justice sponsors ADA.gov which provides in depth information about regulations and standards as well as Q&A, Guide to Disability Laws and Rights, technical assistance and information about the Mediation Program that helps resolve ADA related disputes before they are escalated to the legal system.

The ADA National Network provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of business, government and individuals at local, regional and national levels. The ADA National Network consists of ten Regional ADA National Network Centers located throughout the United States that provides personalized, local assistance to ensure that the ADA is implemented wherever possible. ADA Centers often provide trainings and information on assistive technology and employment for people with disabilities.

New ADA Resources:

UCP Information Online:

Announcements July 28, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 28 Jul 2010 15:40:56 PDT

Americans With Disabilities Act (ADA) 20th Anniversary in the News

Disability Scoop: Disability Rights Take Center Stage As President, Stars Honor ADA Birthday
Disability Scoop: In House First, Congressman In Wheelchair To Preside On ADA Anniversary
The Hill: Langevin set to preside as first member in wheelchair
C-Span: Video - Americans With Disabilities Act Anniversary, Historical Perspective
C-Span: Video - Americans With Disabilities Act Anniversary, Looking Ahead (Marty Ford from the Disability Policy Collaboration is a keynote speaker)
Disability.gov: Disability.gov Celebrating the 20th Anniversary of the ADA

UCP National Office Covers ADA Anniversary

UCP in the News

UCP/Class / Post Gazette: People with disabilities celebrating ADA's 20th
UCP/Class / Whirl Magazine: United Cerebral Palsy Community Living and Supports Services Merger
UCP of West Alabama / Tuscaloosa News: Cross-country cyclists visit UCP

Affiliate Updates & Events

UCP of Greater Birmingham: Vino & Van Gogh (Aug. 5)
UCP of Greater Sacramento: Rocklin 70's Party (Aug. 7)
UCP of East Central Alabama: Woodstock 5K (Aug. 7)
UCP of Dane County: Concert: Danny Gokey to perform at Taste of Madison festival (Sept. 5)
UCP of Central California: 2010 Bachelor's Ball (Oct. 30)
UCP of Northwest Alabama: Life Without Limits' 1/2 Marathon, 5K & Fun Run (Oct. 30)

Volunteer Opportunities

The Indiana University, Bloomington: Participants requested in a research study to understand how parents adjust to caring for a child with a developmental disability

Advocacy & Disability News

BusinsessWeek: Sorting Fact from Fiction on Health-Care Reform
OSU.edu: Engineering, Occupational Therapy Students Join Forces in Cerebral Palsy Project
Disability Scoop: Public Largely Ignorant Of Those With Developmental Disabilities, Survey Finds
California Newswire: Calif. Gov. Schwarzenegger Announces Appointments for 7.26.10
Disability Scoop: Breaths Could Offer Communication, Mobility For Those With Severe Disabilities

Philanthropy, Nonprofit & Web News

Philanthropy Today: How Small Charities Can Make Web Sites Click With Supporters
Business Week: Twitter, Twitter, Little Stars
Community Organizer 2.0: Nonprofit Facebook Welcome Tabs: Inspiration and Innovation
Realeconomicimpact.org: Voices of Americans with Disabilities Video Contest

The Capitol Insider - July 26, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 28 Jul 2010 15:18:53 PDT

Volume 15, Issue 29
July 26, 2010

Action Alerts

What Will Happen to Medicaid? Urge your Senators to support the extension of the FMAP increase

Help Pass The ABLE Act in This Congress! Contact Your Representatives to Convene a Hearing and Vote on the ABLE Act

Major Events Last Week

ADA

Last Thursday, the House Judiciary Committee held a hearing on the Americans with Disabilities Act. The first panel featured House Majority Leader Steny Hoyer (D-MD) and Representative James R. Langevin (D-RI). The next three panels included distinguished witnesses such as Thomas Perez, the Assistant Attorney General for Civil Rights at the Department of Justice and Richard Thornburgh, former Governor of Pennsylvania and former U.S. Attorney General. Implementation and enforcement of the ADA were among the topics discussed.

Appropriations

Last Wednesday, the Senate Transportation, Housing and Urban Development, and Related Agencies Appropriations Subcommittee approved the FY 2011 Appropriations bill. It included $200 million for Section 811 Supportive Housing for Persons with Disabilities. This is $100 million below the FY 2010 level. In addition, the budget includes $113 million mainstream vouchers that is shifted to the Tenant-Based Rental Assistance account, consistent with the Administration's request.

Affordable Care Act Implementation

DPC staff joined other health care advocates in a meeting with Cindy Mann, Director of the Center for Medicaid, CHIP and Survey & Certification (CMCS) to discuss issues around implementation of the Affordable Care Act. She provided an update on the agency's activities and an opportunity for advocates to raise issues around eligibility determination given the Medicaid expansion and the beginning of the health insurance exchanges in 2014.

Transportation

Last week, William Millar, president of the American Public Transportation Association (APTA), hosted a summit on the funding crisis affecting public transit programs. It was attended by a small gathering of disability community leaders, including DPC staff. Those present explored ways that the public transit and the disability communities might work together to address the funding shortages that are causing reductions in paratransit and other service cuts in communities all across the nation.

Department of Education Appointments

Last week, Dr. Alexa Posney, Assistant Secretary of the Offfice of Special Education and Rehabilitative Services (OSERS), announced that in mid-August Sue Swenson will become the Deputy Assistant Secretary of OSERS and Melody Musgrove will become the Director of the Office of Special Education Programs (OSEP).

Sue Swenson currently runs a company specializing in management, payment technologies and social entrepreneurship to support people with disabilities and their families. Previously Swenson was Executive Director of The Arc of the United States and the Joseph P. Kennedy, Jr. Foundation, as well as the Commissioner of the Administration on Developmental Disabilities (ADD) in the U.S. Department of Health and Human Services.

Melody Musgrove is currently the Director of Business Development with LRP Publications. Formerly, she was the State Director of Special Education in Mississippi, a due process hearing officer, an Assistant Superintendent for Curriculum and Federal Programs, an Assistant Principal, and a special education teacher at the elementary, middle and high school levels.

Autism

Last week, the House Energy and Commerce's Subcommittee on Health approved legislation (H.R. 5756) that amends the Developmental Disabilities Act to create a national training initiative within the University Centers on Excellence focused on autism research and training. Additional grants are also authorized to conduct research and education focused on racial and ethnic minority populations.

Major Events Ahead

ADA Anniversary Events

Today, on the 20th Anniversary of the signing of the Americans with Disabilities Act, President Obama is hosting a commemoration on the White House South Lawn. Invited guests include Cabinet Secretaries, Members of Congress, disability advocates including Paul Marchand and Marty Ford from the DPC staff, The Arc's Executive Director Peter Berns, and UCP's President and CEO Stephen Bennett. In addition to the President's remarks there will be performances by Nathaniel Anthony Ayers, Patti Labelle, and Marlee Matlin. The celebration, which begins at 5:30 Eastern time, will be streamed live at www.whitehouse.gov/live. Please log in and share in the celebration.

Today Senator Tom Harkin (D-IA), Chair of the Senate Health, Education, Labor, and Pensions Committee, is holding an ADA event featuring a panel of leaders who were responsible for the original passage of the ADA, and a panel looking ahead to highlight recent successes that fulfill the promise of the ADA (ADA Amendments Act, the Community First Choice Option and other community integration initiatives). DPC staffer Marty Ford is participating in the second panel.

On July 30th, Secretary of Labor Hilda L. Solis and Assistant Secretary for Disability Employment Policy Kathleen Martinez will commemorate the anniversary in an event that will include the induction of Justin Dart, Jr. and Helen Keller into the Department's Labor Hall of Fame. The Labor Hall of Fame honors, posthumously, those Americans whose distinctive contributions to the field of labor have enhanced the quality of life of America's workers. Notable members of the Labor Hall of Fame include Cesar Chavez, Mother Jones, and Frances Perkins, among others.

Appropriations

The House plans to begin the August recess on Monday August 2. Before adjourning, the House is expected to vote on the Department of Transportation, and Housing and Urban Development and Related Agencies Appropriations bill and the Supplemental Appropriations bill. The bill includes $300 million for the Section 811 Supportive Housing for Persons with Disabilities. On the transportation side over $11.3 billion is provided for public transportation programs, an increase of $508 million above the President's request.

The House is also expected to consider the Supplemental Appropriations bill also known as the war supplemental, The House had previously voted on this bill and had added $10 billion in aid to states intended to help prevent teacher layoffs and funding for other domestic priorities. The Senate refused to include it and returned the war supplemental to the House with an understanding that Democratic leaders there will have to drop the $22.8 billion the House added to the Senate's $58.8 billion in funding for military operations in Iraq and Afghanistan, veterans' programs and natural disaster relief.

In the Senate, the Labor, Health and Human Services, Education, and Related Agencies Subcommittee will mark up draft legislation that would make FY 2011 appropriations for programs under its jurisdiction. The full Committee is expected to consider the bill on Thursday. Funding levels in the bill are not yet publically available.

ADA and Congress

On Monday, July 26, 2010, the 20th anniversary of the signing of the Americans with Disabilities Act, the Speaker's rostrum in the U.S. House of Representatives, which hosts the Speaker pro tempore and the House clerks, will finally be able to accommodate a person who uses a wheelchair. Representative Jim Langevin (D-R.I.) will ascend the rostrum using a mechanical lift and will be the first person who uses a wheelchair to serve as Speaker pro tem.

Langevin said that the newly altered rostrum was important for the next generation of people with disabilities, including the military men and women returning from combat in Iraq and Afghanistan who can see it and know that their physical condition doesn't limit the scope of their accomplishments. "I think it's an incredibly important moment for the country and the message that it sends to people with disabilities that nothing is impossible and that we should let no barriers stand in our way," said Rep. Langevin..

Announcements

ADA Title II

The U.S. Department of Justice (DOJ) reached settlement agreements with several local governments under its Project Civic Access initiative which is designed to ensure that cities, towns, and counties comply with Title II of the Americans with Disabilities Act (ADA). Pearl River County in Mississippi, which is the seventh fastest growing county in the US; Pomfret, Connecticut, and Wilson County, North Carolina agreed to make services and facilities accessible to people with disabilities, train staff in the use of relay services and text telephones (TTY), amend employment policies, and ensure equal, integrated access to emergency management. To see press releases about these agreements, see http://www.justice.gov/.

DOJ has filed a statement of interest in US District Court in a case against the State of Illinois concerning its alleged failure to provide community based services and supports to individuals with exceptional medical needs once they turn 21 and age out of services for children. The suit claims that there is a class of individuals that is at risk of institutionalization due to the state's failure to provide community services. A copy of the legal brief is available at http://www.ada.gov/briefs/interest_Hampe_br.pdf.

ADA Title III

DOJ entered into an agreement with Blockbuster, Inc. to ensure equal access to individuals who use service animals at its more than 3,000 retail stores throughout the country under Title III of the ADA. Blockbuster agreed to train all of its employees on the rights of service animal users, pay $12,000 in damages to the individual who filed the original complaint, and pay a $10,000 civil penalty. See the DOJ press release at http://www.justice.gov/opa/pr/2010/July/10-ag-831.html.

DOJ and the Mount Vernon Ladies Association of the Union which owns and maintains Mount Vernon, home of George Washington, reached an agreement to settle a complaint concerning the accessibility of the National Historic Landmark. The Association agreed to provide physical access to the facilities and grounds and programmatic access to the exhibits. In order to provide access to areas that cannot be modified, the Association agreed to provide a photographic album with pictures of the mansion's rooms in the basement and on the second and third floors. For more information, see http://www.justice.gov/opa/pr/2010/July/10-ag-841.html.

DOJ and the Department of Health and Human Services released a new technical assistance guide for medical providers that addresses their responsibility to make health care services accessible for people with mobility disabilities under Title III of the ADA and Section 504 of the Rehabilitation Act. Access to Medical Care for Persons with Mobility Disabilities will assist medical care providers in understanding how the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act of 1973 apply to them. This 19-page document includes an overview of general ADA requirements, commonly asked questions, and illustrated examples of accessible facilities, examination rooms, and medical equipment. For a copy of the guide, see http://www.ada.gov/medcare_ta.htm.

Emergency Management

The Federal Emergency Management Agency (FEMA) signed a Memorandum of Agreement (MOA) with the National Council on Independent Living (NCIL) to coordinate public engagement efforts on preparedness, response, and recovery. The MOA concerns ways that FEMA, NCIL, and state, local and private sector partners can ensure that emergency management is inclusive of the community as a whole, including people with disabilities. (See agreement at :http://www.fema.gov/pdf/media/2010/agreement-060110-final.pdf text-only version -- http://www.fema.gov/txt/media/2010/agreement-060110-final.txt.

Section 508/Accessibility of Government Information

The Office of Management and Budget in the White House sent a memo to all information and acquisition officers in every agency of the Federal Government reminding them of their obligation to buy and use electronic and information technology that is accessible to people with disabilities. This is a requirement of Section 508 of the Rehabilitation Act of 1973. The memo listed existing resources to assist agencies to improve their acquisition and implementation of accessible technology. OMB also informed agencies that for the first time since 2004, the Department of Justice will issue a report on Federal agency compliance with Section 508 in spring 2011. Advocates have been urging DOJ to comply with the Section 508 requirement that it conduct compliance reviews every two years. Implementation of Section 508 by Federal agencies has been sporadic.

Transportation

The Easter Seals Project ACTION is sponsoring the Paratransit Dialogue. It is an opportunity to discuss paratransit issues with public and private transportation providers, paratransit providers, federal, state, and local transportation professionals, disability services organizations, members of the disability community, human services agencies, aging services agencies, volunteer transportation program coordinators, planners, advocates, and policymakers. Register for the dialogue now at www.easterseals.com/dialogue and join the conversation!

The Federal Transit Administration (FTA) has published Topic Guides on ADA Transportation. It is a series of guides that brings together the requirements of the Americans with Disabilities Act and the U.S. Department of Transportation's ADA regulations, FTA determinations, and operational practices that comply with the ADA. View the Topic Guide Home Page, which offers each Topic Guide in HTML, a PDF download, and a plain text option, at http://dredf.org/ADAtg/index.shtml. The FTA Office of Civil Rights has also linked to the Topic Guide series on its ADA website at www.fta.dot.gov/ada.

Voting

DOJ reached an agreement with the state of New York and its public university systems concerning the responsibility under the National Voter Registration Act to provide voter registration services at disability services offices at each public university and college campus in the state. Under the agreement, New York public university and college disability services offices will provide voter registration services by the start of the 2010-2011 school year. For more information, see http://www.justice.gov/opa/pr/2010/July/10-crt-803.html.

----------------

Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.

ADA Celebration to Stream LIVE Online at 5:30 p.m. ET

ecoordinator@ucp.org (United Cerebral Palsy) — Mon, 26 Jul 2010 13:55:22 PDT

Today’s ADA celebration, which begins at 5:30 p.m. ET, will be streamed LIVE at www.whitehouse.gov/live. Barring any technical difficulties, the stream will have available captioning either as picture in picture or another technical setup.

United Cerebral Palsy Commemorates 20th Anniversary of the Americans with Disabilities Act (ADA)

ecoordinator@ucp.org (United Cerebral Palsy) — Mon, 26 Jul 2010 10:47:36 PDT

United Cerebral Palsy (UCP) commemorates the 20th anniversary of the Americans with Disabilities Act (ADA) and looks forward to future efforts to achieve life without limits for people with disabilities. Read the story on the UCP website at www.ucp.org.

Announcements - July 21, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Wed, 21 Jul 2010 15:45:58 PDT

UCP in the News

UCP of Los Angeles / Press-Telegram: Long Beach RDA delays vote on developing housing for disabled
UCP of Greater Cleveland / Charity Vault: United Cerebral Palsy to be official charity of Cleveland Triathlon

Affiliate Updates & Events

UCP of Huntsville: Paint the Streets for UCP (Jul. 24)
UCP of Georgia: Golfers hit links for cerebral palsy at Laurel Springs (Jul. 26)
UCP of Greater Birmingham: Vino & Van Gogh (Aug. 5)
UCP of Greater Cleveland: Cleveland Triathlon 2010 (Aug. 8)
UCP of Greater Texas: Run, Walk, Roll (Aug. 14)
UCP of Greater Cincinnati: Fox and Hound 5K - Who Let the Dogs Out? (Aug. 19)
Cerebral Palsy Association in Alberta: Life Without Limits Challenge 2010 (Sept. 18)
UCP of Central Minnesota: 2nd Annual Lanes Without Limits (Sept. 25)

Opportunity

International Siblings Conference: exploring rewards and challenges of having family members with disabilities (Hyatt Regency Hotel, Old Greenwich, CT; E-mail Dr. DiDomenico (drdidomenico@siblingconference.org) for information; Aug. 7-8)

Advocacy & Disability, Fundraising & Web 2.0 News

BusinessWeek: Sorting Fact from Fiction on Health-Care Reform
The New York Times: Cuts in Home Care Put Elderly and Disabled at Risk
Disability Scoop: Many Underestimate Those With Intellectual Disabilities, Poll Finds
Disability Scoop: At $1.6 Million Per Person Annually, Medicaid Spending Draws Scrutiny
Disability Scoop: New Group To Raise Cash For Disability-Friendly Candidates

Disability Scoop: Advocates Urge Congress To Address Growing Needs Of Adults With Autism
Fast Company: Social Networking Affects Brains Like Falling in Love
The Chronicle of Philanthropy: Audio: Why Twitter Matters to Nonprofit Groups
The Chronicle of Philanthropy: Online Giving Grew Fast This Spring, 2 Studies Find
RosettaThurman.com: 50 Young Nonprofit Influencers You Should Be Following on Twitter

The Capitol Insider - July 21, 2010

ecoordinator@ucp.org (United Cerebral Palsy) — Thu, 22 Jul 2010 13:43:19 PDT

Volume 15, Issue 28
July 19, 2010

Action Alerts

What Will Happen to Medicaid? Urge your Senators to support the extension of the FMAP increase

Help Pass The ABLE Act in This Congress! Contact Your Representatives to Convene a Hearing and Vote on the ABLE Act

Major Events Last Week

U.S. Senate

Carte Goodwin, an attorney and former gubernatorial aide, was nominated by West Virginia Gov. Joe Manchin to temporarily fill the seat of the late Sen. Robert Byrd (D-WV). Goodwin will be sworn into the Senate on Tuesday. Goodwin's appointment will improve the Democrat's prospects for passing legislation, though the Democrats will still have less than the 60 votes needed to prevent a filibuster. Goodwin is expected to serve until the end of the 111th Congress. A special election is in the works for voters to choose a replacement at the polls in November.

Health Care Reform

House Minority Leader John Boehner (R-OH) endorsed a one-year moratorium on almost all new federal regulations. Boehner made the suggestion in the Capitol after a session with a group of business leaders gathered to solicit ideas for the House Republican's fall campaign platform. Such a moratorium would stop implementation of the new health care overhaul as well as the financial regulation package. Boehner has already said he wants both those laws repealed and replaced.

The Departments of Health and Human Services (HHS), Labor, and Treasury issued interim final regulations on July 14 requiring new plans and issuers to cover certain preventive services without any cost-sharing for the enrollee when delivered by in-network providers. The interim final regulations do not apply to grandfathered plans and issuers. The types of preventive services include immunizations, health screenings and other procedures that are recommended by medical experts. A copy of the rule can be found in the implementation center of:
www.healthcare.gov

FY 2011 Appropriations

Last Thursday, the Labor, Health and Human Services, Education and Related Agencies Subcommittee marked up the FY 2011 spending bill. It appears that the total amount for special education programs is $12.99 million or about $153 million above the President's Request. The Social Security Administration's (SSA) Limitation on Administrative Expenses, is $12.4 billion which is equal to the President's Request. The detailed bill is expected to be available at the full Committee mark up. Chairman David Obey (D-WI) has not announced the date of the full Committee markup. A summary of the bill is available at:
http://appropriations.house.gov/

ADA

The US Department of Justice (DOJ) reached a settlement agreement with QuikTrip Corporation which owns and operates more than 550 gas stations, convenience stores, truck stops, and travel centers in the Midwest, South, and Southwest US. DOJ filed a lawsuit alleging that QuikTrip violated the Americans with Disabilities Act (ADA) by failing to make stores and store restrooms accessible, provide accessible parking, make gas pumps at each store accessible to people who use wheelchairs and provide accommodations to shoppers with disabilities. QuikTrip agreed to bring its facilities into compliance with accessibility requirements and to ensure that all future stores are built in compliance with accessibility requirements. It also agreed to make at least two gas pumps accessible at its current stores and in the interim to provide assistance in its stores and at its gas pumps to customers with disabilities who ask for help and to make sure that remote systems for requesting assistance at gas pumps work. QuikTrip agreed to set up a $1.5 million fund to compensate individuals who were denied access or services and to pay a $55,000 penalty. See the DOJ fact sheet about the settlement, at:
http://www.ada.gov/quiktrip_factsht.htm.

DOJ reached a settlement agreement with Ventura County, California in a case alleging employment discrimination under Title I of the Americans with Disabilities Act (ADA) against an individual who is deaf. Ventura County allegedly refused to hire the individual for a children's social services job because she is deaf even though she had successfully held the same job in Los Angeles County for more than eight years. The county agreed to pay the individual $45,000 in damages and agreed to train staff about reasonable accommodations for individuals who are deaf. A copy of DOJ's brief can be found at:
http://www.ada.gov/ventura_ca.htm.

Major Events Ahead

Medicaid

The status of the Senate tax extenders bill that also included the federal medical assistance percentage (FMAP) increase extension is unclear. The extra federal funding for Medicaid expires December 31, 2010. The Senate appears ready to pass an extension of the unemployment insurance which was also included in the tax extenders bill. It seems unlikely that FMAP will be included in the vote on unemployment insurance but many Governors, advocates, and others continue to push the Senate to pass the FMAP extension as soon as possible. Thirty states have already factored in extensions of the FMAP increase into their FY 2011 budgets, and twenty three of these states have already passed their budgets. If an FMAP increase extension is not enacted in the coming weeks, these states are expected to make significant cuts in their Medicaid programs.

ADA Celebrations

Today, the Department of Commerce, in partnership with the White House and the Federal Communications Commission, will commemorate and celebrate the 20th anniversary of the Americans with Disabilities Act and highlight technologies developed to empower the daily lives of Americans with disabilities. The program will include a technology showcase and the launch of the FCC's new Accessibility and Innovation Forum. On Thursday, the Equal Employment Opportunity Commission (EEOC) will be commemorating the anniversary with an awards program and briefing. Click here for a national directory of the ADA's 20th anniversary events.

Announcements

Medicaid report

Senator Chuck Grassley (R-IA) urged the Department of Health and Human Services to finish and release a congressionally mandated report on Medicaid's financial and enrollment status. The report was due Jan. 1, 2010. Senator Grassley is the ranking member of the Committee on Finance which has jurisdiction over health care programs including Medicaid. He wants to see the report to get a true picture of Medicaid's financial state in order to ensure that services are funded adequately for the millions of people who rely on the program.

Transportation

Easter Seals Project ACTION (ESPA) will be hosting a Paratransit Online Dialogue from July 26 - August 6, 2010. ESPA Talks is a series of discussions on accessible transportation held online. This virtual town hall forum is free and open to anyone with knowledge or perspective to share on the topic. During the dialogue, participants will submit, comment on, and rate ideas related to paratransit service provision. This dialogue is being held in support of the Federal Transit Administration to gather information, best practices, trends, and ideas relating to paratransit service. A summary report will be made available by email to all who register for the dialogue. A one-page information sheet is available here. For more information and to register on July 26, visit:
www.easterseals.com/dialogue.

Research

On Friday, the National Organization on Disability (NOD) will be releasing the Kessler/NOD Survey of Americans with Disabilities. The survey interviews 1,000 adults with disabilities and 1,000 adults without disabilities by telephone and is intended to identify participation gaps between people with and without disabilities. Topics include employment, income, education, access to transportation, access to health care, political participation, life satisfaction, and technology.

----------------

Previous issues of the Capitol Insider may be viewed at www.ucp.org under "Public Policy." If you have any questions, feel free to contact Annie Acosta at acosta@thedpc.org.