My dream has come true in being able to hear with two ears

noreply@blogger.com (Elaine CI journey) — Tue, 09 Jul 2013 16:16:00 +0000

Advanced Bionics Information Day

Are you considering cochlear implantation?

Do you want to find out more about Advanced Bionics and our latest sound processors? Come along to our Information Day,meet our BEA Mentors and ask all your questions!

Thursday 1st August 2013

from

4.00pm to 7.00pm

Central London

If you're on Facebook, copy and paste the link below into your browser:

https://www.facebook.com/ical/event.php?eid=507873579284667

or

Contact

hear-uk@advancedbionics.com

for further information and a great way of

finding out

what the

latest

lightest

new processor

has to offer

-

you'll be so amazed!

Wheel of York

noreply@blogger.com (Elaine CI journey) — Tue, 09 Jul 2013 15:57:00 +0000

Royal York Hotel

York Train Station

I've never been to York before and I met up with the rest of the Mentor troop and it was great fun! The train station is right next door to the Royal York Hotel.

Come and chat with me to find out how I got on and I was so excited and amazed that Naidia has loads of things to offer for everyone!

Click here to chat with me.

Exciting news!!

noreply@blogger.com (Elaine CI journey) — Mon, 18 Feb 2013 11:03:00 +0000

Neptune - world's only swimmable sound processor makes waves!

noreply@blogger.com (Elaine CI journey) — Tue, 05 Feb 2013 12:54:00 +0000

What is Neptune?

It's a funny word - Neptune. I wondered what it was and it's a cochlear implant device for being able to use in the swimming pool, bath, shower, jacuzzi - anything with water!

Here it is what it looks like:

Cool Neptune makes sounds possible to hear on water

You can choose your own colours on your Neptune (click on the link in) It's great fun!

I can imagine being in the water with the Neptune trying to make sure my boys don't get naughty in the water when we go swimming and I can go to swimming lessons! That would be heaven! I've never been able to swim in the water very well because swimming lessons to deaf children was not available in my old days!

Choose your own Neptune colours

Do you like my colours? Let me know what colours you like. Give it a go! (click on the link above)

Here is more information about Neptune on the Advanced Bionics website - when you go on the website, you'll see on the right hand side a Video Link button that will show you a series of mini-videos. The last mini-video has a video called "Our Breakthrough" and this will be about Neptune. And also on this video link it has a transcript available to download. The transcript file is enormous because it contains various languages and so I've extracted the English version for the "Our Breakthrough" video, here it is below. I can see the Neptune proving to be an invaluable and important device for all to be able to hear in the water. The opportunity to do this is great as it can help us be better swimmers such as having swimming lessons.

Advanced Bionics Neptune

Here in the UK, we have Dave who has a Neptune and he's been getting to grips with how his Neptune works, here is his blog http://davesdeafhead.wordpress.com/

Pink my favourite colour!

noreply@blogger.com (Elaine CI journey) — Sat, 08 Dec 2012 14:52:00 +0000

What lovely pink colour processors and a lovely little dog that pops up and danced with the sound - so cute!

Cute pink colour processors

Looking forward to catch up on Saturday 3rd Nov and bring on 2013!

noreply@blogger.com (Elaine CI journey) — Mon, 29 Oct 2012 09:53:00 +0000

I'm looking forward to 2013 already! It's going to be an exciting year to see how new cochlear implants products will unfold. We've already had Neptune released and lots of adults/children are using them. Wish I had Neptunes but I'm loyal to my Harmony processors!

Here's what's coming.....http://cochlearimplantonline.com/site/advanced-bionics-new-cochlear-implant-to-be-released-in-2013/

Also can't wait to meet up with others at the AGM at SOECIC on Saturday 3rd November. http://soeciug.blogspot.co.uk/

Children needs our help

noreply@blogger.com (Elaine CI journey) — Thu, 05 Jul 2012 12:31:00 +0000

Change.org|Create a Petition

Please help support children who needs help with their education

SBB Meetup on 15th October

noreply@blogger.com (Elaine CI journey) — Wed, 28 Sep 2011 13:47:00 +0000

South of England Cochlear Implant Centre

I'm looking forward to meeting other cochlear implant users on Saturday 15th October at SOECIC (South of England Cochlear Implant Centre, Southampton) at 11.00am as it has been a while.

If you would like to come along, please let me know, that would be great.

A single implant for two ears

noreply@blogger.com (Elaine CI journey) — Wed, 01 Sep 2010 09:12:00 +0000

Southampton to conduct UK's first cochlear implant operation to give sound in both ears

26 August 2010 Southampton, University of

The UK's first operation to fit a single cochlear implant capable of giving sound in both ears takes place this Friday (27 August), thanks to the work of the South of England Cochlear Implant Centre (SOECIC), based at the University of Southampton.

A cochlear implant is an electronic device that can help both adults and children who have a severe to profound hearing loss. It has two parts: an internal receiver/stimulator package and electrode array, and an external speech processor that looks like a hearing aid. The device uses small electrical currents to directly stimulate the hearing nerve, which then sends signals to the brain where they are interpreted as sound.

Julie Brinton, Joint Head of the Centre, comments: "Over the past 20 years the South of England Cochlear Implant Centre has implanted over 500 people with different implants. Some adults and children have already received two implants, with one in each ear. The difference with the device being used on Friday is that, although information is delivered to each ear, there is only one implant."

Although around 40 of these devices have been implanted in patients in Europe, this is the first of its kind in the UK.

The operation will be carried out at Southampton General Hospital by Mike Pringle, Consultant Otolaryngologist based at Queen Alexandra Hospital in Portsmouth.

Mike Pringle says: "This is different to other types of implant as it is one implant going into both ears. It's not unusual for children to have two implants, one in each ear, but adults usually just have one.

"This type of device has an internal receiver/stimulator with two wires; one will go directly into one inner ear and the other will go over the top of the head, under the scalp, to reach the other inner ear. There will be a microphone on each ear collecting sounds from both sides.

"The advantage is that it allows adults to have bilateral hearing. Having two ears working makes it easier to hear in noisy backgrounds and also helps with localisation, or hearing where sounds are coming from.

"Also, because there is only one processor and one internal receiver stimulator this makes this device significantly cheaper than two separate implants."

The recipient of the implant is a 44-year old woman from the Isle of Wight. She has been deaf all her life and has used hearing aids until now.

Dr Helen Cullington, Clinical Scientist (Audiology) at the University of Southampton, adds: "Following the surgery she will need to wait for four to six weeks before the device is tuned and she can begin to have auditory rehabilitation to encourage her listening with the new sensation she will experience.

"There is an individual programme for each patient; a computer is used to assess the levels and frequencies of sound that the patient can hear and tune the implant accordingly. This is a very exciting opportunity for a deaf adult to obtain hearing in both ears."

Left handed

noreply@blogger.com (Elaine CI journey) — Wed, 18 Aug 2010 21:15:00 +0000

I'm left handed and I've struggled with scissors in the past but now I don't need to struggle any more with cutting. This great website makes me feel great being left handed! http://www.anythinglefthanded.co.uk

Using Snuggie

noreply@blogger.com (Elaine CI journey) — Mon, 16 Aug 2010 09:57:00 +0000

Using snuggie is great for my implants as I'm an active mum of three boys and a deaf dog. I use it all the time. It's of crucial benefit whilst camping too!

Hearing Journey Chat Room

noreply@blogger.com (Elaine CI journey) — Thu, 11 Mar 2010 23:02:00 +0000

It's great to be talking to other cochlear implant users of all ages from different parts of the UK and in other places, USA.

I decided to make a step by step guide for those who want to come to the Chat room...making it more user friendly to join it. I've put it up on the top right hand side of my blog....click on the guide.....do hope it helps.

BEA Mentor

noreply@blogger.com (Elaine CI journey) — Mon, 08 Feb 2010 11:43:00 +0000

Wow a great picture taken by Amanda Glasspell (http://www.aegphotos.co.uk)

What a fantastic team to represent BEA Mentor team for the UK. It's great that I can give more support to people thinking about a cochlear implant now that I'm an BEA Mentor.

What a great opportunity to be able to help this way and give reassurance that all will be ok because with my cochlear implants I'm able to achieve many things.

So if anybody thinking about a cochlear implant feel free to contact me.

My annual review

noreply@blogger.com (Elaine CI journey) — Sun, 17 Jan 2010 22:31:00 +0000

Crikey, it's been ages since I've updated my blog and life is going by me so fast!! Where does it go?!

Where do I start? Well probably posting my results of my CI hearing tests would probably be best! Ok, here are the results.

No Visual Presentation - just the man's voice out of the speakers.

Speech in quiet

Bilateral CI 98%
Right CI 90%
Left CI 100%

Speech in noise

SNR -0.5dB

Words in quiet

Phonemes 82%
Words 60%

So there you go - it looks like I'm doing really well - I was impressed to find that it's consistent. My right ear, I'm especially amazed with. I should have put my results from the year before but I can't find it. If I do find it I'll put it on here and then see the difference.

I have to go now because I've got get my family packed lunches ready for tomorrow - a busy week ahead again!

I promise to update a bit better in future!

Catching up

noreply@blogger.com (Elaine CI journey) — Mon, 12 Jan 2009 11:44:00 +0000

Well I finally got a good time slot today to catch up on everything since I last posted last year. It's been such a rollercoaster last year with alot to think about on my plate. Since I last posted, my father in law passed away on 30th March. It was a really hard time because he didn't slip away as comfortable as we would like him to. The cancer had caused him so much pain that rapid response team had to regularly come and give him shots of morphine. It was very hard for my hubby to constantly worry about him as there were times when they thought he was going but then hanged on and hanged on until he was told it was ok to go. So he passed away and I was glad that he wasn't suffering any more. However, my late parents passed away on 1st April 1994 and with the date so close together of my father in-law and my parents, I was kind of spooked. It really churned it all up again as it's taken me years to find my grieve for my parents less painful and easier to cope with.

A few weeks after the funeral, my hubby, suffered a horrible flu that was onset by my youngest son's high temperature. The flu made him loose balance and fall over constantly. He had an ear infection and after weeks of getting it clearered up with different brands of antibiotic the dizzy spells weren't going away. In September we went to see an ENT consultant at a private hospital and was told nothing can be done to cure the dizziness. He has labrythinitis. He still has it despite of no sign of it disappearing. He's learning to manage with it. It's changed his life alot as there are certain things he can't do, such as spinning round and round with the kids as this makes the dizziness worse. We've had such a lot of support and prayers from our local church and they've been fantastic. It worries me alot of his illness and dread him going to work every day in the car so early in the morning as I'm sure it makes the dizziness worse but in fact it is worse when he's home in the evenings from work. He never moans about it but there are physical signs of him going dizzy and I can spot them.

On the bright side my bilateral CIs are doing really well as in November last year I had my annual review and just recently had my review report sent in the post to me. It's a bit technical this bit but here goes...

Soundfield Aided Thresholds I had my left and right ear tested separately. My left ear at the following: 250Hz 20dB, 500Hz 15dB, 1000Hz 15dB, 2000Hz 20dB, 4000Hz 15dB. My right ear at the following: 250Hz 40dB, 500Hz 30dB, 1000Hz 35dB, 2000Hz 25dB, 4000Hz 25dB.

I was impressed that they've both improved, especially my right ear!

Speech Perception Tests. These were presented through a computer test station at 65dB(A). Speech tests can be presented in a sound alone condition or on video, with sound and visual presentation. These tests were carried out with both cochlear implants.

I had visual presentation turned off and BKB Sentences (just voice only through the speakers). The BKB Sentences done with Sound of Speech in quiet I scored at 99%. The BKB Sentences done with Sound of Speech in adaptive noise I scored at 2dB SNR!!! AB Words done with Sound of Words in quiet I scored of Phoenemes at 85% and Words at 75%. It's a tough test with just one word said at a time and nothing to help you what the word is about. Overall I was chuffed to bits with my progress. I had hardly any mapping changes because of the progress I've done would ruin all my efforts in learning to hear. The CIs are stable and happy now and even the impendance telemetry and no changes are found on any of the electrodes which shows they are all stable now and working well.

Then December was a horrible month of high temperatures, flu, followed by tummy bugs and it was on Christmas, thankfully, had no bugs but then we had the colds again very soon after that. It's still lingering but lingering less and less each day! Christmas shopping was a really struggle with getting presents etc for people. However it was a good Christmas although a worry about my mother in law as it is her first Christmas without her husband. However she's got fantastic support from her daugher and her family in that she was able to stay at her daughter's house.

My eldest son has just turned 13 recently so we've got the terrible teenage years ahead of us and the terrible twos too! However, thankfully my middle son just turned 4 which is a nice age as he'll be going to school in September so got some exciting months ahead of him and is learning alot. Whereas meal times are a nightmare for my youngest and eldest in that they won't eat properly and yet my middle child is getting better at meal times. It shouldn't be stressful at the table when we have our family supper each night. Hopefully this will improve.

How am I getting on with my bionic ears?

noreply@blogger.com (Elaine CI journey) — Wed, 12 Mar 2008 21:58:00 +0000

It's been a while since I've posted because I'm a busy mum with my three boys and keep trying to find time to do auditory training with my right ear but it's really hard. However , I think it needs a new mapping in both of my ear because I've reached maximum volume again, it started happening since last week and I'm not scheduled until April for the next mapping.

I went to a cochlear implant gathering a couple of weekends ago and it was great fun although over too soon! I travelled for the first time on my own all the way to the other side of the UK - Cambridge! It was a long journey and only stopped once for a loo trip - I was busting! However, I surprised to find that I still had energy for the evening's gorgeous 4-course meal at a lovely old college in Cambridge. Fantastic place, although couldn't see much of it because it was so dark. I really enjoyed my time in Cambridge and it was all over too soon when I had to drive back. I was shattered because this time my driving went into night time driving and had to cope in driving on roads where there was no lights - I wasn't used to that.

On a separate note, I have a friend who is deaf and is doing a race for life running event in Bath and I've got a link shown on the right hand side so that anybody can put in a donation for her. I've started the ball rolling by putting in my first donation. I really hope that it doesn't rain on that day - I think it is 1st June that the event is going to happen.

However, another separate note, sadly my father in law is facing his last few days after battling bowel cancer since about two years ago. It has been a rollercoaster time for him and to see him the way he is at present is so hard to put into words. I couldn't face seeing him when my husband went with my younger son to visit. I had learnt from the death of my parents (they passed away 14 years ago on 1st April - on a Good Friday) and of my grandmother in that same year of August, in that it is best to remember as they were. It reminds me of the poem - a thousand winds - here are the words http://bijolab.com/song/english/poem/wind.html I've always remembered since then - it is a beautiful poem so easy to remember and meaningful too.

See me on Deafness Research!

noreply@blogger.com (Elaine CI journey) — Mon, 18 Feb 2008 15:39:00 +0000

Click here as it's a story about my bilateral implants.

3 months tuning/hearing tests

noreply@blogger.com (Elaine CI journey) — Thu, 10 Jan 2008 14:57:00 +0000

Well, I can't believe that Christmas was very busy and also gone very quick. It was a lovely Christmas although it would have been brilliant with my eldest son, here with us but unfortunately he was with his father for the week. However we had him home from the day before his birthday for a week so that was nice as it meant that he was here for my younger son's birthday who turned 3. Two birthdays in one week! But it was a good Christmas because I enjoyed hearing again and didn't miss out on anything.

Well I went for my 3 months tuning session on Monday 7th January and wasn't expecting hearing tests but I should have known really because it happened when I had my first implant but this time it was loads and loads of tests because having two ears for testing and not one ear!

Anyway, the tests were:

All sound tests at level of 65dB

Cuny sentences (lipreading and listening to the man) left CI score of 99%

BKB sentences (listening to man only & no lipreading) left CI in quiet score of 95%
BKB sentences ( -----------ditto --------------------) left CI in noise score of 85%

CUNY sentences (lipreading & listening to the man) right CI score of 75%
BKB sentences (-----------ditto---------------------) right CI in quiet score of 19%

BKB sentences (listening to man only & no lipreading) right and left adptive noise of speech v noise SNR of 0.5 dB
BKB ---------------------------ditto-----------------left adoptive noise of speech v noise SNR of 2.5dB

AB words (listening to man say one word at a time & no lipreading) right and left CI in quiet 81%
AB words (----------------------ditto----------------------------) left CI only in quiet 62%

So all in all the two implants are working together and the right ear having had tests of just listening to the man with no lipreading at 19% might not sound much but having never heard out of that ear ever since I was little is showing that I'm practising hard with my right ear. And to lipread with the right ear on its own is brilliant too. I am so chuffed how well I did in these tests after a hectic Christmas and birthdays!!

I am beginning to enjoy being bilateral more now whereas the last three months was hard because of the sounds in my right ear wasn't very much information but am now making out some words as you can see from my results with the right ear. I shall continue to work hard with my right ear.

I also had some other changes to my mapping in that with the t-coil I've asked for it to include the built in mic which is a 50/50 setting. I'm trying this out but at the moment I'm not that happy with it as it is including sounds around me and I can't fully concentrate on what is said coming through the t-coil. I'll give it another go for a while. Am trying to get around the "hissing" sound that I get from the t-coil.

My fourth mapping on Monday 26th Nov

noreply@blogger.com (Elaine CI journey) — Thu, 29 Nov 2007 19:34:00 +0000

I had my fourth mapping on Monday. It was not as I expected the tuning
session to be. I had expected to have both processors tuned and
mapped. Instead it was only my right ear that was mapped. I was
puzzled why they didn't do my left ear.

Interestingly it was because my left ear doing so well that it didn't
need mapping and that my right ear was mapped to try and balance both
ears. So I had each electrode checked for loudness levels and then each
electrode compared with the next electrode to check for loudness level
between the two. This was the same with all the others. All the
electrodes apart from electrode one is all stable, thank goodness! When
I had these electrodes sorted out, the audiologist then got lots of
musical instruments and a had a good go and testing each one near my
ear! Blime me, I felt like a child!

Anyway, I had an aided threshold hearing tests to see how my right ear
was getting on, the last hearing tests three weeks ago was around
40-60dB across the speech range whereas now it is 30-40dB across the
speech range! I was stunned! I didn't think I did that well. Although
I still have a dip in the middle of the speech range but a lot better
than what it was before.

So good news about the right ear's progress. I did some speech therapy
too with just my right ear and the speech therapist was impressed!

My belated switch on experiences and journey since then...

noreply@blogger.com (Elaine CI journey) — Tue, 27 Nov 2007 08:27:00 +0000

I can't believe how fast time has flown since I've been switched on.

It's just hectic and always is still.. I feel really dreadful in not being able to keep up to date with my own blog and when I read other people's CI blogs - they are so good at keeping at it.

I have two little boys that keeps me on my toes all the time and by the time I've got them to bed, all I want to do is chill out. As well as my little ones I have a big boy too look after - my eldest son who is nearly 12 does stress me out a lot especially with his moods and unwilling to do these. He's rather lazy and winds the little ones up alot that there are lot of screaming sessions - there are times when I would love silence. Now to say that is strange because I've wanted to hear again after so long but when you have screaming kids - who wants to hear that kind of sound when learning to hear with the cochlear implants.

Anyway, as I say it's been hectic and so I'm going to put down as much as I can remember since the switch on and then try and keep it up to date.

My switch on day. I was very nervous and thought I was going to cry and everything but I didn't for some strange reason. I think it is because I know what to expect at a switch on as I've done it before. My left ear was dealt with first and then my right ear. At first they did some programming to condition the implant and to stimulate it then I had some beeps going on. Then it was ready for the switch on. The sounds I heard was very much like I heard before - high pitch voices and Nigel's voice was deeper. A few twigs here and there adjusted by the audiologist was sounding a lot better. I was put on Hi-Res S Fidelity 120 for my left ear. It did take a while to sort my left ear out. Now my right ear was a different story because it was being switched on for the first time and never heard out of that ear since I was a baby, I think. I can't remember ever hearing out of that ear and heard some beeps but not in the same way as my left ear. When they switched my right on, I just got "thump thump" etc. Each thump was representing each syllable, so if I heard a word like brother, it would be sounding like "thump thump" - two syllable. It was so weird but heard something. I was just really pleased to just get something than nothing. I was impressed! I, too had Hi-Res S Fidelity 120 for my right ear as well. A long time for my right ear to be sorted out too. When I had both on together it sounded better. I don't know why but it sounded alot better. Strange! I think that is why I didn't cry cos I was so overwhelmed with the strange experience. It's like a dream - it is still a dream. It hasn't quite sunk in yet.

I've been using the loop by using a RF TV Listener, which I attach a microphone to the TV and pick up the sounds from the TV although I prefer to hear sounds directly plugged into the TV, however it isn't possible at present due to some electrical fault of the device attaching to the TV. However, I do hear it directly linked to the Hi-Fi and that is nice especially a bit of Jazz!

Mon (5th Nov) I had another mapping for both processors and aided threshold hearing tests and the results are amazing! Here is what my audiologist said.....

Cuny sentences with lip reading both implants: 97%
Cuny sentences with lip reading right implant only: 43%

BKB sentences in quiet without lip reading, both implants: 89%
BKB sentences in noise (noise 10dB less than speech) without lip reading, both implants: 75%

AB words in quiet without lip reading, both implants: 61% phonemes, 36% words

Your aided results with the left implant were 15-35dB across the speech frequency range.

Your aided results with the right implant were 40-60dB across the speech frequency range.

The aided results for the right ear are likely to improve with time and were good for this stage post implant for a newly implanted ear. Also you mentioned that the tinnitus was making it more difficult for you to do this test on the right ear which could also have affected the results.

Overall these results are brilliant so well done.

I was tickled pink that I was doing so well so early on .... one week!!! I think it is fantastic results. Anyway to explain about the above Cuny sentences means a man on the video with a straight face and no facial expressions. He just speak in a plain flat voice!

BKB sentences are sentences sent through the speakers - no man and no lip reading involved.

AB words are words that are spoken through the speakers with just one word at a time, eg, cat. This is a harder test because with the sentences spoken you have an idea of what the sentence is about. With just single words without lip reading or seeing a man on the screen can be a real challenge!

Today (26th Nov) I had a mapping for my right ear only with my left right ear processor untouched. I was puzzled why they didn't do both processors to balance. I realise it is because they want to bring my right ear processor to balance alot more as the past few weeks since 5th Nov my left ear processor had been more dominant and the right ear processor had been fading into the background. They even said that my left ear processor might prefer to have the volume decreased at some point as the right ear processor might find it too loud with the left ear processor. It's interesting that when I had my right ear processor only on it was louder than having both on! Weird, I thought!

Anyway, I had my right ear aided threshold hearing test and amazing it has shifted from 40 - 60dB to 30 - 40dB across the speech frequency range, it still has a dip in the middle of the speech frequency range but I reckon it is because I've got number 5 electrode turned off and not able to pick the middle sounds up as well without this electrode. I could be wrong. However, I'm not worried about that electrode any more cos I've been doing so well lately and I hope to continue on my right ear. I'm so pleased to be able to hear something with it. I've just got to keep practising listening with just my right ear and work on it alot more. I've been so lucky with funding for my 2nd ear that I have to pinch myself sometimes to say yes you have got your 2nd ear. I've been living with one ear practically all my life and so it will take a long time to get used to have two ears. It's amazing with two ears. I only wish some people protect their ears especially with loud music, etc. Believe me, ears are precious because if you hear out of them and then to lose all your hearing it is heart breaking, like I had experienced twice. The first time was in Feb 2004 and the second time in June 2006.

It is so nice to hear again, to hear with nothing and just the tinnitus is a really life quality reduced life, e.g depressing, isolating and stressful. It is because I once had something beautiful with my CI before and it was snatched away from me, hence the reduced quality of life. Now my quality of life is so much more relaxing, inspiring, exciting, not isolating. I don't want to go all religious but I thank God for listening to my prayers.

I shall try and keep more up to date in future! ;-)

My belated switch on experiences and journey since then...

noreply@blogger.com (Elaine CI journey) — Tue, 27 Nov 2007 08:23:00 +0000

I have two little boys that keeps me on my toes all the time and by the
time I've got them to bed, all I want to do is chill out. As well as my
little ones I have a big boy too look after - my eldest son who is
nearly 12 does stress me out a lot especially with his moods and
unwilling to do these. He's rather lazy and winds the little ones up
alot that there are lot of screaming sessions - there are times when I
would love silence. Now to say that is strange because I've wanted to
hear again after so long but when you have screaming kids - who wants to
hear that kind of sound when learning to hear with the cochlear implants.

Anyway, as I say it's been hectic and so I'm going to put down as much
as I can remember since the switch on and then try and keep it up to date.

My switch on day. I was very nervous and thought I was going to cry and
everything but I didn't for some strange reason. I think it is because
I know what to expect at a switch on as I've done it before. My left
ear was dealt with first and then my right ear. At first they did some
programming to condition the implant and to stimulate it then I had some
beeps going on. Then it was ready for the switch on. The sounds I
heard was very much like I heard before - high pitch voices and Nigel's
voice was deeper. A few twigs here and there adjusted by the
audiologist was sounding a lot better. I was put on Hi-Res S Fidelity
120 for my left ear. It did take a while to sort my left ear out.

Now my right ear was a different story because it was being switched on
for the first time and never heard out of that ear since I was a baby, I
think. I can't remember ever hearing out of that ear and heard some
beeps but not in the same way as my left ear. When they switched my
right on, I just got "thump thump" etc. Each thump was representing
each syllable, so if I heard a word like brother, it would be sounding
like "thump thump" - two syllable. It was so weird but heard
something. I was just really pleased to just get something than
nothing. I was impressed! I, too had Hi-Res S Fidelity 120 for my
right ear as well. A long time for my right ear to be sorted out too.

When I had both on together it sounded better. I don't know why but it
sounded alot better. Strange! I think that is why I didn't cry cos I
was so overwhelmed with the strange experience. It's like a dream - it
is still a dream. It hasn't quite sunk in yet.

I've been using the loop by using a RF TV Listener, which I attach a
microphone to the TV and pick up the sounds from the TV although I
prefer to hear sounds directly plugged into the TV, however it isn't
possible at present due to some electrical fault of the device attaching
to the TV. However, I do hear it directly linked to the Hi-Fi and that
is nice especially a bit of Jazz!

Mon (5th Nov) I had another mapping for both processors and aided
threshold hearing tests and the results are amazing! Here is what my
audiologist said.....

Cuny sentences with lip reading both implants: 97%
Cuny sentences with lip reading right implant only: 43%

BKB sentences in quiet without lipreading, both implants: 89%
BKB sentences in noise (noise 10dB less than speech) without
lipreading, both implants: 75%

AB words in quiet without lip reading, both implants: 61% phonemes, 36%
words

Your aided results with the left implant were 15-35dB across the speech
frequency range.
Your aided results with the right implant were 40-60dB across the
speech frequency range.

The aided results for the right ear are likely to improve with time and
were good for this stage post implant for a newly implanted ear. Also
you mentioned that the tinnitus was making it more difficult for you to
do this test on the right ear which could also have affected the
results.

Overall these results are brilliant so well done.

I was tickled pink that I was doing so well so early on...one week!! I
think it is fantastic results. Anyway to explain about the above Cuny
sentences means a man on the video with a straight face and no facial
expressions. He just speak in a plain flat voice!

BKB sentences are sentences sent through the speakers - no man and no
lipreading involved. AB words are words that are spoken through the
speakers with just one word at a time, eg, cat. This is a harder test
because with the sentences spoken you have an idea of what the sentence
is about. With just single words without lipreading or seeing a man on
the screen can be a real challenge!

Today (26th Nov) I had a mapping for my right ear only with my left
right ear processor untouched. I was puzzled why they didn't do both
processors to balance. I realise it is because they want to bring my
right ear processor to balance alot more as the past few weeks since 5th
Nov my left ear processor had been more dominant and the right ear
processor had been fading into the background. They even said that my
left ear processor might prefer to have the volume decreased at some
point as the right ear processor might find it too loud with the left
ear processor. It's interesting that when I had my right ear processor
only on it was louder than having both on! Weird, I thought! Anyway, I
had my right ear aided threshold hearing test and amazing it has shifted
from 40 - 60dB to 30 - 40dB across the speech frequency range, it still
has a dip in the middle of the speech frequency range but I reckon it is
because I've got number 5 electrode turned off and not able to pick the
middle sounds up as well without this electrode. I could be wrong.

However, I'm not worried about that electrode any more cos I've been
doing so well lately and I hope to continue on this fantastic CI
journey. It is so nice to hear again, to hear with nothing and just the
tinnitus is a really life quality reduced life, e.g depressing,
isolating and stressful. It is because I once had something beautiful
with my CI before and it was snatched away from me, hence the reduced
quality of life. Now my quality of life is so much more relaxing,
inspiring, exciting, not isolating. I don't want to go all religious
but I thank God for listening to my prayers.

I shall try and keep more up to date in future! ;-)

Waiting......for the switch-on

noreply@blogger.com (Elaine CI journey) — Thu, 04 Oct 2007 13:56:00 +0000

It was great on Saturday 29th Sept, to finally being able to wash my hair. I thought it was safer to do this in the bath rather have a shower. Glad I did because I slept really well that night and didn't have any aches that night from my left ear. I did have a lot of aches from the moment I was discharged up until the day I was my hair. In fact since then my ears don't hurt at all now, so strange! I still sleep with my pillows in a "V" shape but occasionally I can sleep on my right side with any problems. The left I am bit conscious of because it seems to be more sensitive than my right.

I shall be waiting for my switch on which is on the 29th October. It'll have been 6 and a half weeks since I had the op. Usually the switch on is between 3 and 6 weeks whereas for some reason my switch on is a bit beyond! Well, at least the swelling on my implants will have gone down and it'll give my ears a chance to heal from the wounds a bit more.

In fact I can't believe how well I've recovered from the op. It's almost as if hasn't taken place. The only reminder is at night when I put my head down to sleep.

I'll be kept busy between now and until the switch on because it'll be my birthday soon and also my youngest son's first birthday too. Loads to look forward to although not chuff to bits about being a year older myself. Time has gone by really quick since last year, it is my eldest son that has made it whizzed by! Being kept busy with him as he suffers from ADD. At times he's brilliant and at other times a real nuisance! But then boys will be boys!

Got some really gorgeous Autumn weather lately in fact it is really mild weather. Most unusual, I think because it is normally cold and wet at this time of year. Just love the autumn leaves and the conkers falling down and the blackberries for puddings, yum. In fact I had better go and bake one for the weekend, a real treat!

My 10 days post op checkup

noreply@blogger.com (Elaine CI journey) — Mon, 24 Sep 2007 21:08:00 +0000

I saw the consultant today and he was happy with my scars. He took the dressings out of each of my ear and took off the steristrips each of my ears. And said they look great, the operation went OK and the electrode test went great too. So all in all everything went great - phew! I'm relieved!

Whilst he took the dressings out of my ear canal, the right ear that he did, cor, didn't half hurt when he pulled it out - it felt like a cork stopper pulling out of a wine bottle. I even said "bloody hell" and jerked and banged the surgeon's knee! Also the steristrips were definitely stuck to my head as he pulled them off and that was a bit sore too.

However, the consultant still hasn't received the x-ray results and is waiting for the ex-planted ear implant report. So I hope to hear from him at some point, perhaps by letter or to see him. However it is always only ever a 5 minute chat with him and it's over. He's always straight to the point and never messes about. However he gave me an interesting insight in that the dressings in my ears and steristrips and the bandage all helps to make the wounds heal faster, that is why the dressings are left in my ear. I have to say he is right because the scars are very clean!

So glad that the dressings and strips all taken off as I feel a human being again!

All that remains now is a date for the switch on, x-ray results and ex-planted ear implant report. I'm really curious to know what they find in the report and to hope that the x-rays are all ok. Perhaps I'll chase up on that next week and see if there is any news about it.

Post op appointment - seeing my surgeon today

noreply@blogger.com (Elaine CI journey) — Mon, 24 Sep 2007 09:53:00 +0000

Well, I hope to finally have my dressings removed from the ear canals and maybe the steristrips can be removed as well?

I'm hoping that my scars are healing well however have to wait and see my Consultant today.

Oh and managed to lie down on my sides last night to sleep although it wasn't very easy at first but eventually went to sleep as am fed up sleeping upright! It's hard work sleeping upright. My right side was more comfortable than my left side. I'll find the knack of getting my pillows right in the shape of comfort for my implanted ears.

My operation experiences on 14th September 2007

noreply@blogger.com (Elaine CI journey) — Thu, 20 Sep 2007 16:13:00 +0000

I was so nervous with this op because it is the longest I've had since last year when I had the caesarian and the hysterectomy - I was in that op room last year for a very long time. Not as long as this op I've had last week - 5 hours I think it is. That's why I was nervous cos of all the drugs and been under the knife for so long. In fact it is a half a day of my life!

Anyway, I was delirious when I came out of the op. I remember bits of the recovery room and this lady. I was in and out of my sleep like a yo yo! You wouldn't believe it but later that evening around 9pm I managed to go to the loo by myself! I was proud of myself! Although did go to the loo earlier around 5pm-6pm when Nigel was there with me and I wanted to go then because I felt safe with him there but of course I've had an injected needle still in my left foot! I still don't know why to this day that I had that needle in my left foot but I'll find out more when I see Mr Pringle at the Post op appointment on Monday to check my ears out and they are ok surgically. Well, they took the needle out so that I could go to the loo but it bled as I was walking and had to sit down again to stop the bleed! It did stop and went back to bed. I even managed to have supper that night, it was a beef stew with carrots and mash. It was hard work eating that cos I was sweating with this woolly hat on my head. It was not a brilliant night sleep because they kept waking me up for blood pressure checks in the night and drugs. It was a long night! Next day I got up and made sure I had a walk now and again
to stop the DVT etc I ate fine in hospital although kept snacking on my dried apricots, raisins and prunes to keep my bowels in working order cos of all the drugs I had etc I did drink loads and loads and loads of water cos it is hot in hospital and it makes you really thirsty. Strange thing is on when I came home on Monday, it stopped this thirstiness, weird! On Saturday evening Nigel brought the boys to see me and their face expression when they saw me with my woolly hat! Bless them it did frighten them, especially Oliver who was agogged! It was great to see them as I really missed them so much, it gave me an inspiration to get better faster ready for Monday to come home. It was such a long weekend in hospital. Anyway, there was an incident on the ward that I was in. A patient came towards my next door's patient's bed holding on to the drug trolley stand and this next door's patient who was a Chinese lady was getting very concerned and I buzzed for a nurse to help calm the situation. This patient holding on to the drug trolley was an older lady, I reckon in her seventies going do dally. It was frightening. She wouldn't calm down. The Chinese lady expressed her concern to a few nurses and it was decided that us three; the Chinese lady, me and another older lady who had surgery on her face to move to another ward. Luckily there was another ward that was empty and so we went there and settled down for the night. It was much more peaceful and I was able to get a bit more sleep. Luckily I had my eye blind to cover my eyes to get some kip. The eye blind is what you use on aeroplanes so I was very pleased to have that, very useful. After that incident, the Chinese lady was relieved but she didn't half fuss about everything, her bed, the window, the medication etc. She moaned about it to me a lot. I just took it on the chin and not took it personally. On Sunday morning the doctors came round and said that I could have the bandage off. Golly I was so chuffed to bits to have it taken off - it was a lovely breeze and the weight so much lighter. I slept much better that night. Come Monday morning, I couldn't wait to leave. Although was stunned that I had to walk to the X-ray department by myself! I know I was better but to go on my own in a strange hospital! I was a bit nervous however I did get there ok and it took ages to have this x-ray. I won't know of the results of that until we see Mr Pringle on Monday. However, I do know that from what Nigel told me about the electrode tests of each implant works fine. In fact it is really good in my left, better than what it was before originally. Apparently, that is quite often the case with re-implants!! However, my right implant is OK too, just not as good as my left. I was really pleased because it sounds as if the op went well although I have got some strange bruising
on my left eye, my left wrist and my left foot! Bizarre! It leaves me curious to know how the op went - I guess I'll know more from Mr Pringle on Monday. The only thing I've got left in my ears now is the dressings in my ear canals. They don't half itch inside them and it makes you want to wriggle your finger in there and give it a scratch and you can't! Don't worry I can grin and bear it until Monday cos I know Mr Pringle will take them out and it will feel so much better. I do have some steri-strips behind my ears so I guess they'll eventually come off when I have a hair wash which I can do in a week or so time.

I can't believe it is a week today that I went to Southampton. How time flies!

It is great to be back home. However, I was a bit disorientated on Monday and it is taking me a few days to get my bearings. I think it is because the whole op has given me a new perspective on things. Especially with two ears. I just don't know what I'm going to be feeling when I get switched on. I know I'm going to cry because I never heard out of my two ears. It is like a dream come true. I've always wondered all my life and yes there were times in my left that I wished that I was a normal hearing person. I'm trying to prepare myself now for the next step towards being switched on. It's been so long since I've heard and I have such a mixed bag of emotions; so hard to describe it. I'll definitely write up about it when the big day comes.