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	<title type="text">Left Brain/Right Brain</title>
	<subtitle type="text">Autism news and opinion</subtitle>

	<updated>2012-05-25T04:04:00Z</updated>

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			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
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		<title type="html"><![CDATA[Most Children with ASD Diagnosed After Age 5, Use Multiple Services and Medications]]></title>
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		<id>http://leftbrainrightbrain.co.uk/?p=11437</id>
		<updated>2012-05-25T04:04:00Z</updated>
		<published>2012-05-25T04:04:00Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Autism" /><category scheme="http://leftbrainrightbrain.co.uk" term="NIH" />		<summary type="html"><![CDATA[A study just out from US National Institute of Mental Health researchers analyzes a survey they performed. Even today half of sad children identified are not diagnosed until after age 5. Half of autistic school age kids are using some form of psychotropic medicine. The study is discussed here: Most Children with ASD Diagnosed After [...]]]></summary>
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		&lt;/div&gt;	&lt;p&gt;A study just out from &lt;span class="caps"&gt;US &lt;/span&gt;National Institute of Mental Health researchers analyzes a survey they performed.  Even today half of sad children identified are not diagnosed until after age 5. Half of autistic school age kids are using some form of psychotropic medicine.&lt;/p&gt;

	&lt;p&gt;The study is discussed here:&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://www.nimh.nih.gov/science-news/2012/most-children-with-asd-diagnosed-after-age-5-use-multiple-services-and-medications.shtml"&gt;Most Children with &lt;span class="caps"&gt;ASD &lt;/span&gt;Diagnosed After Age 5, Use Multiple Services and Medications&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;And that discussion is quoted below:&lt;/p&gt;


	&lt;p&gt;&lt;blockquote&gt;Fewer than one out of five school-aged children with special health care needs were diagnosed with &lt;a href="http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-pervasive-developmental-disorders/index.shtml"&gt;autism spectrum disorder (ASD&lt;/a&gt;) by age 2, according to new data from an &lt;span class="caps"&gt;NIMH&lt;/span&gt;-funded study. These diagnoses were made by a variety of health care providers, and most children in the study used multiple health care services (such as speech or language therapy) and multiple medications.&lt;/p&gt;

	&lt;p&gt;Background&lt;/p&gt;

	&lt;p&gt;Identifying &lt;span class="caps"&gt;ASD&lt;/span&gt; at an early age allows children to start treatment sooner, which can improve their later development and learning, and may also reduce a child&amp;#8217;s need for specialized services or treatments later in life.&lt;/p&gt;

	&lt;p&gt;To determine the experiences of school-aged children with special health care needs, Lisa Colpe, Ph.D., M.P.H., and Bev Pringle, Ph.D., of the &lt;span class="caps"&gt;NIMH &lt;/span&gt;Division of Services and Intervention Research, collaborated with colleagues who conducted more than 4,000 telephone interviews with parents or guardians of a child between the ages of 6-17 who had a confirmed diagnosis of &lt;span class="caps"&gt;ASD&lt;/span&gt;, intellectual disability, and/or developmental delay.&lt;/p&gt;

	&lt;p&gt;These survey interviews were a part of the Pathways to Diagnosis and Services Study, sponsored by &lt;span class="caps"&gt;NIMH&lt;/span&gt; using funds available from the American Recovery and Reinvestment Act of 2009 (Recovery Act). Additional collaborators on this project include the National Center for Health Statistics at the Centers for Disease Control and Prevention (CDC) and the Maternal and Child Health Bureau at the Health Resources and Services Administration (HRSA).&lt;/p&gt;

	&lt;p&gt;Results of the Study&lt;/p&gt;

	&lt;p&gt;Key findings include:&lt;br /&gt;
The median age when school aged children with special health care needs and &lt;span class="caps"&gt;ASD&lt;/span&gt; were first identified as having &lt;span class="caps"&gt;ASD&lt;/span&gt; was 5 years.&lt;br /&gt;
Those identified as having &lt;span class="caps"&gt;ASD&lt;/span&gt; at younger than 5 years were diagnosed most often by generalists (such as pediatricians, family physicians, and nurse practitioners) and psychologists. Those identified later than 5 years were diagnosed primarily by psychologists and psychiatrists.&lt;/p&gt;

	&lt;p&gt;Nine out of ten school-aged children with special health care needs and &lt;span class="caps"&gt;ASD&lt;/span&gt; used at least one health care service, such as behavioral intervention or modification services, sensory integration therapy, cognitive based therapy, occupational therapy, physical therapy, social skills training, or speech or language therapy.&lt;/p&gt;

	&lt;p&gt;Social skills training and speech or language therapy were the most commonly used service, each used by almost 60 percent, or three out of five, of these children.&lt;/p&gt;

	&lt;p&gt;More than half of school-aged children with special health care needs and &lt;span class="caps"&gt;ASD&lt;/span&gt; used at least one psychotropic medication. &amp;#8220;Psychotropic medication&amp;#8221; refers to any medication used to treat a mental disorder.&lt;br /&gt;
Almost 33 percent of these children used stimulant medications&lt;br /&gt;
25 percent used anti-anxiety or mood-stabilizing medications&lt;br /&gt;
20 percent used antidepressants.&lt;/p&gt;

	&lt;p&gt;Further findings are available in the &lt;a href="http://www.cdc.gov/nchs/data/databriefs/db97.htm"&gt;&lt;span class="caps"&gt;NCHS &lt;/span&gt;Data Brief&lt;/a&gt; and &lt;a href="http://www.cdc.gov/nchs/data/slaits/PathwaysFAQ.pdf"&gt;Frequently Asked Questions&lt;/a&gt;.&lt;/p&gt;

	&lt;p&gt;Significance&lt;br /&gt;
The new data detail the experiences of young children with &lt;span class="caps"&gt;ASD&lt;/span&gt;, describing when they are first identified as having &lt;span class="caps"&gt;ASD&lt;/span&gt;, who is making those identifications, and the services and medications the children use to meet their developmental needs.&lt;/p&gt;

	&lt;p&gt;What&amp;#8217;s Next&lt;br /&gt;
&lt;span class="caps"&gt;NIMH&lt;/span&gt; encourages researchers to access and analyze the new dataset to produce more studies on the early life experiences and the diagnostic, service, and treatment issues relevant to children with &lt;span class="caps"&gt;ASD&lt;/span&gt; and special health care needs. The Pathways to Diagnosis and Services Study dataset can be accessed at http://www.cdc.gov/nchs/slaits/spds.htm.&lt;/p&gt;

	&lt;p&gt;Reference&lt;br /&gt;
Pringle BA, Colpe LJ, Blumberg SJ, Avila RM, Kogan MD. Diagnostic History and Treatment of School-Aged Children with Autism Spectrum Disorder and Special Health Care Needs. &lt;span class="caps"&gt;NCHS&lt;/span&gt; data brief, no 97. Hyattsville, MD: National Center for Health Statistics. 2012.&lt;/blockquote&gt;&lt;/p&gt;
 
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			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[Join ASAN Seattle in Protesting the Judge Rotenberg Center at the ABAI Convention!]]></title>
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		<id>http://leftbrainrightbrain.co.uk/?p=11428</id>
		<updated>2012-05-24T17:48:27Z</updated>
		<published>2012-05-24T17:48:27Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="ASAN" /><category scheme="http://leftbrainrightbrain.co.uk" term="Autism" /><category scheme="http://leftbrainrightbrain.co.uk" term="Civil Rights" />		<summary type="html"><![CDATA[The Autistic Self Advocacy Network (ASAN) is organizing a protest against the Judge Rotenberg Center. On Sunday, May 27th, the Association for Behavior Analysis International (ABAI) is holding their annual convention in the city of&#160;Seattle, Washington. As they have many times in the past, ABAI is allowing the&#160;Judge Rotenberg Center&#160;(JRC) to exhibit at their convention [...]]]></summary>
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		&lt;/div&gt;	&lt;p&gt;The &lt;a href="http://autisticadvocacy.org/"&gt;Autistic Self Advocacy Network&lt;/a&gt; (ASAN) is organizing a protest against the &lt;a href="http://www.judgerc.org/"&gt;Judge Rotenberg Center&lt;/a&gt;.&lt;/p&gt;

	&lt;p&gt;&lt;blockquote&gt;&lt;div&gt;On Sunday, May 27th, the Association for Behavior Analysis International (ABAI) is holding their annual convention in the city of&amp;#160;&lt;strong&gt;Seattle, Washington&lt;/strong&gt;. As they have many times in the past, &lt;span class="caps"&gt;ABAI&lt;/span&gt; is allowing the&amp;#160;Judge Rotenberg Center&amp;#160;(JRC) to exhibit at their convention this year.&lt;/div&gt;&lt;br /&gt;
The Judge Rotenberg Center&amp;#8217;s use of contingent electric shock, food deprivation, mechanical restraint and other &amp;#8220;aversives&amp;#8221; have been called out as abusive on multiple occations. In 2010, their practices were&amp;#160;&amp;#160;&lt;a title="U.N. finds shock treatments at Judge Rotenberg Center in Canton to be torture || Release by Massachusetts Senator Brian Joyce" rel="declared torture by the United Nations" href="http://e2ma.net/go/11047337040/208902125/234176845/1412224/goto:https://app.e2ma.net/go/11046858280/208902107/234176520/1412224/goto:http://brianajoyce.com/pressreleases/un-finds-shock-treatments-judge-rotenberg-center-canton-be-torture" target="_blank"&gt;declared torture by the United Nations&lt;/a&gt;, which then asked the US government to intervene.&amp;#160;&amp;#160;&lt;a title="Shain Neumeier's coverage of the recent civil case against the JRC || ASAN Blog" rel="Recent civil litigation" href="http://e2ma.net/go/11047337040/208902125/234176846/1412224/goto:https://app.e2ma.net/go/11046858280/208902107/234176521/1412224/goto:http://autisticadvocacy.org/tag/aversives-and-judge-rotenberg-center/" target="_blank"&gt;Recent civil litigation&lt;/a&gt; has led to renewed media attention from sources ranging from&amp;#160;the Boston Globe to&amp;#160;Anderson Cooper&amp;#8217;s television shows. The United States Department of Justice has targeted the Judge Rotenberg Center in&amp;#160;&lt;a title="'School of Shock' Under Federal Investigation || Mother Jones News" rel="an ongoing investigation of their abusive practices" href="http://e2ma.net/go/11047337040/208902125/234176847/1412224/goto:http://www.motherjones.com/mojo/2010/02/school-shock-under-federal-investigation" target="_blank"&gt;an ongoing investigation of their abusive practices&lt;/a&gt;. For decades, disability rights advocates have worked towards one simple goal: shut the Judge Rotenberg Center down.&lt;br /&gt;
&lt;div&gt;Still,&lt;strong&gt; ABAI hasn&amp;#8217;t gotten the message&lt;/strong&gt;: the Judge Rotenberg Center&amp;#8217;s use of torture in the name of treatment should never be given a platform. &lt;span class="caps"&gt;ABAI&lt;/span&gt; needs to disavow the Judge Rotenberg Center and other facilities which use abusive treatments.&lt;/div&gt;&lt;br /&gt;
&lt;div&gt;The Autistic Self Advocacy Network&amp;#8217;s Seattle chapter is mobilizing to&amp;#160;&lt;strong&gt;tell &lt;span class="caps"&gt;ABAI&lt;/span&gt; that when it comes to the torture of disabled children and adults, the time has come for them to pick a side, condemn the Judge Rotenberg Center and stop giving them a platform.&lt;/strong&gt;&lt;/div&gt;&lt;br /&gt;
&lt;div&gt;&lt;strong&gt;When: &lt;/strong&gt;Sunday, May 27th, 2012 at 12 &lt;span class="caps"&gt;NOON PDT&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;
&lt;div&gt;&lt;strong&gt;Where: &lt;/strong&gt;Washington Convention &amp;#038; Trade Center Downtown&lt;/div&gt;&lt;br /&gt;
&lt;div&gt;800 Convention Place, Seattle, &lt;span class="caps"&gt;WA 98101&lt;/span&gt;-2350&lt;/div&gt;&lt;br /&gt;
&lt;div&gt;&lt;a title="RSVP on the Facebook Event Page: Judge Rotenberg Center &amp;#038; ABAI Protest with the Seattle Autistic Self Advocacy Network" rel="RSVP on Facebook" href="http://e2ma.net/go/11047337040/208902125/234176848/1412224/goto:http://www.facebook.com/events/131091977026124/" target="_blank"&gt;&lt;/a&gt;&lt;a title="RSVP on the Facebook Event Page: Judge Rotenberg Center &amp;#038; ABAI Protest with the Seattle Autistic Self Advocacy Network" rel="RSVP on Facebook" href="http://e2ma.net/go/11047337040/208902125/234176849/1412224/goto:http://www.facebook.com/events/131091977026124/" target="_blank"&gt;&lt;span class="caps"&gt;RSVP&lt;/span&gt; on Facebook&lt;/a&gt;&lt;/div&gt;&lt;br /&gt;
&lt;div&gt;With pending legislation in New York and&amp;#160;Massachusetts, we are closer now than ever before to ending the Judge Rotenberg Center&amp;#8217;s torture of our people. Please show up to the protest and invite others to attend with you.&lt;/div&gt;&lt;br /&gt;
&lt;div&gt;Places like the Judge Rotenberg Center count on the world not caring about people with disabilities to survive. They count on on society&amp;#8217;s unwillingness to open its eyes and see Americans with disabilities as equal citizens deserving of equal rights. This Sunday, let&amp;#8217;s prove how wrong they are. Let&amp;#8217;s make sure our voices are heard.&lt;/div&gt;&lt;br /&gt;
&lt;div&gt;Sincerely,&lt;br /&gt;
Ari Ne&amp;#8217;eman&lt;br /&gt;
President&lt;br /&gt;
The Autistic Self Advocacy Network&lt;br /&gt;
&lt;a href="http://e2ma.net/go/11047337040/208902125/234176850/1412224/goto:https://app.e2ma.net/go/11046858280/208902107/234176522/1412224/goto:http://autisticadvocacy.org/" target="_blank"&gt;http://autisticadvocacy.org/&lt;/a&gt;&lt;/div&gt;&lt;/blockquote&gt;&lt;/p&gt;


 
				&lt;div&gt;
					&lt;h4&gt;2 comment(s) for this post:&lt;/h4&gt;&lt;ol&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/3db603f4395395c98e4755718b1e334c?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Roger Kulp:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/join-asan-seattle-in-protesting-the-judge-rotenberg-center-at-the-abai-convention/#comment-497172"&gt;2012-May-25&lt;/a&gt;&lt;/small&gt;
							One thing that needs to be stressed over and over,is that The Judge Rotenberg Center may be one of the more extreme examples of abuse,but it is hardly unique.To one degree or another,this sort of stuff goes on every day at "group homes"all over the country.Every one ought to be shut down.Every resident taught to live as independently as possible.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://0.gravatar.com/avatar/cdeb468ca6c9b977f8a976612ba04a05?s=32&amp;amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;stanley seigler:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/join-asan-seattle-in-protesting-the-judge-rotenberg-center-at-the-abai-convention/#comment-497199"&gt;2012-May-25&lt;/a&gt;&lt;/small&gt;
							@Roger Kulp: "...Every one ought to be shut down.Ever resident taught to live as independently as possible..."

as mentioned here too often (apologies)...JRC gets around $250,000/yr per consumer...for $250,000, most all consumers could be provided an independent, supportive living program with 1:1, 24/7, support and appropriate programing...
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&lt;/div&gt;&lt;img src="http://feeds.feedburner.com/~r/LeftBrain/rightBrain/~4/LiYj1yNi6fM" height="1" width="1"/&gt;</content>
		<link rel="replies" type="text/html" href="http://leftbrainrightbrain.co.uk/2012/05/join-asan-seattle-in-protesting-the-judge-rotenberg-center-at-the-abai-convention/#comments" thr:count="2" />
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		<entry>
		<author>
			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[Autism Advocacy: Developing New Markets]]></title>
		<link rel="alternate" type="text/html" href="http://feedproxy.google.com/~r/LeftBrain/rightBrain/~3/kyElxmxS5P0/" />
		<id>http://leftbrainrightbrain.co.uk/?p=11423</id>
		<updated>2012-05-22T22:42:29Z</updated>
		<published>2012-05-23T06:00:36Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Autism" /><category scheme="http://leftbrainrightbrain.co.uk" term="Autism Speaks" /><category scheme="http://leftbrainrightbrain.co.uk" term="Orgs" />		<summary type="html"><![CDATA[Autism Speaks is hiring. You can find their job posts on the Web. Nothing surprising about that. Here is a segment from a recent job post: Autism Speaks is the world&#8217;s largest autism science and advocacy organization, dedicated to funding global biomedical research into the causes, prevention, treatment and cure for autism. We currently have [...]]]></summary>
		<content type="html" xml:base="http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/">&lt;div class="tweetmeme_button" style="float: right; margin-left: 10px;"&gt;
			&lt;a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2012%2F05%2Fautism-advocacy-developing-new-markets%2F"&gt;
				&lt;img src="http://api.tweetmeme.com/imagebutton.gif?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2012%2F05%2Fautism-advocacy-developing-new-markets%2F&amp;amp;source=kevleitch&amp;amp;style=normal&amp;amp;b=2" height="61" width="50" /&gt;
			&lt;/a&gt;
		&lt;/div&gt;	&lt;p&gt;Autism Speaks is hiring.  You can find their job posts on the Web.  Nothing surprising about that.  Here is a segment from &lt;a href="http://www.careerbuilder.com/JobSeeker/Jobs/JobDetails.aspx?Job_DID=J3G7GT69C946DD97Y32&amp;#38;siteid=CBSIMPLYHIRED&amp;#38;ipath=EXGOO"&gt;a recent job post&lt;/a&gt;:&lt;/p&gt;

	&lt;p&gt;&lt;blockquote&gt;Autism Speaks is the world&amp;#8217;s largest autism science and advocacy organization, dedicated to funding global biomedical research into the causes, prevention, treatment and cure for autism. We currently have a rewarding (new) career opportunity available for an experienced Area Director &amp;#8211; South Florida (Miami, Palm Beach, Broward) to join our growing organization.&lt;/p&gt;

	&lt;p&gt;The selected individual will be responsible for driving revenue through walks and events, strengthening existing markets and identifying and developing new markets. Must be experienced in staff management and volunteer leadership development. This position reports to the Executive Director &amp;#8211; South Florida Chapter, which is based in Miami, FL. &lt;/blockquote&gt;&lt;/p&gt;

	&lt;p&gt;Let me highlight the phrase that caught my eye: &amp;#8220;...strengthening existing markets and identifying and developing new markets&amp;#8221;.&lt;/p&gt;

	&lt;p&gt;Before people start talking about &amp;#8220;big Autism&amp;#8221; and all, that&amp;#8217;s not really my point.  More my own naivety.  We&amp;#8217;d like to think of Autism Speaks&amp;#8217; walk-a-thons and other fundraising as being organized by the communities.  But this is a $50M a year charity.  That&amp;#8217;s just not going to happen with an all volunteer organization.&lt;/p&gt;

	&lt;p&gt;Are you happy with what the $50M/year organization does?  That is another question.&lt;/p&gt;
 
				&lt;div&gt;
					&lt;h4&gt;17 comment(s) for this post:&lt;/h4&gt;&lt;ol&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/7715b6bdbebd01c1b8d50c3720539194?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;KWombles:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/#comment-495284"&gt;2012-May-23&lt;/a&gt;&lt;/small&gt;
							Actually, it's closer to $70 million than to $50 million a year unless 2011's fundraising was less than 2010's (I haven't looked to see, but I know we were down locally in our fundraising efforts). And make no mistake, it is a business that is constantly seeking to increase its intake--expecting 10% growth annually in each of its walk markets.

Their argument is that they can't do the research without the money--they can't add to their services without the money. But, never fear, it's not really about the money--it's about what the money can do. 

And that's all well and good if the money is going where it's needed most. I think many people would agree that funding needs to be towards activities, job training, assisted living situations, and research that looks at improving skill sets and increasing the chance of independence, not for research looking at a cure--it's irresponsible not to work to help people now who need it.

Their expectation is for year round fundraising, as well. It's becoming an increasingly hungrier machine and sometimes that means heavy pressure on and a lack of appreciation for their volunteers. 

As several of our online friends and allies have noted in their experiences with AS, people skills are often sorely lacking in their paid staff, as well. Many situations that have been reported have been badly handled.

I would hope that the organization's leaders would be a little more alert to these things and quicker to fix these issues.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://0.gravatar.com/avatar/8d72121b5d3f2c0bd0b8fae13e475e60?s=32&amp;amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Science Mom:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/#comment-495325"&gt;2012-May-23&lt;/a&gt;&lt;/small&gt;
							What is their non-administrative proportion of each dollar? And yes, referring to autism issues and people as a "market" is pretty skeevy.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/7715b6bdbebd01c1b8d50c3720539194?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;KWombles:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/#comment-495347"&gt;2012-May-23&lt;/a&gt;&lt;/small&gt;
							Financial Performance Metrics
 	Program Expenses	 72.5%
 	Administrative Expenses	 4.5%
 	Fundraising Expenses	 22.9%
 	Fundraising Efficiency	$0.22
 	Primary Revenue Growth	 4.5%
 	Program Expenses Growth	 -0.1%
 	Working Capital Ratio (years)	0.25

 http://www.charitynavigator.org/index.cfm?
bay=search.summary&amp;amp;orgid=12720

Apparently, their banner year was 2008 (which is what I was remembering--68 million). 2009 saw it drop to 45 mil, and 2010 went back up to 50 mil. It will be interesting to see what happened for 2011.

Salaries in 2010 equaled grants given out: around 16 mil and some change.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;i&gt;Autism Blog &amp;#8211; Autism Advocacy: Developing New Markets « Left &amp;#8230; | My Autism Site | All About Autism:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/#comment-495380"&gt;2012-May-23&lt;/a&gt;&lt;/small&gt;
							[...] Original post: Autism Blog &amp;#8211; Autism Advocacy: Developing New Markets « Left &amp;#8230; [...]
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/b92e85112ab134168b651873cd73d7d3?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Turok:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/#comment-495398"&gt;2012-May-23&lt;/a&gt;&lt;/small&gt;
							What is that comment above about? Is this some sort of PR person that's doing apologetics above? Actually, forget that question. it is one.
						  &lt;/li&gt;
					  &lt;/ol&gt;
				  &lt;/div&gt;
			  &lt;p&gt;&lt;b&gt;&lt;a target="_blank" href="http://leftbrainrightbrain.co.uk/wp-content/plugins/comments-on-feed/comments-template.php?id=11423"&gt;Write a quick comment&lt;/a&gt;&lt;/b&gt; | View &lt;a href='http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/#comments'&gt;12 more comment(s).&lt;/a&gt;&lt;/p&gt;
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&lt;/div&gt;&lt;img src="http://feeds.feedburner.com/~r/LeftBrain/rightBrain/~4/kyElxmxS5P0" height="1" width="1"/&gt;</content>
		<link rel="replies" type="text/html" href="http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/#comments" thr:count="17" />
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		<thr:total>17</thr:total>
	<feedburner:origLink>http://leftbrainrightbrain.co.uk/2012/05/autism-advocacy-developing-new-markets/</feedburner:origLink></entry>
		<entry>
		<author>
			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[Student placed in cardboard box for time out, others called mentally retarded in their yearbook]]></title>
		<link rel="alternate" type="text/html" href="http://feedproxy.google.com/~r/LeftBrain/rightBrain/~3/UVdXqjChAKc/" />
		<id>http://leftbrainrightbrain.co.uk/?p=11415</id>
		<updated>2012-05-22T18:48:52Z</updated>
		<published>2012-05-22T06:00:08Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Autism" />		<summary type="html"><![CDATA[Two stories out today show In the first (see Teacher gets lengthy suspension after student put in box) as part of a &#8220;time out&#8221; punishment. A large cardboard box was found in a classroom. When a parent asked what the box was for, she was told that the box was for time outs for another [...]]]></summary>
		<content type="html" xml:base="http://leftbrainrightbrain.co.uk/2012/05/student-placed-in-cardboard-box-for-time-out-others-called-mentally-retarded-in-their-yearbook/">&lt;div class="tweetmeme_button" style="float: right; margin-left: 10px;"&gt;
			&lt;a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2012%2F05%2Fstudent-placed-in-cardboard-box-for-time-out-others-called-mentally-retarded-in-their-yearbook%2F"&gt;
				&lt;img src="http://api.tweetmeme.com/imagebutton.gif?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2012%2F05%2Fstudent-placed-in-cardboard-box-for-time-out-others-called-mentally-retarded-in-their-yearbook%2F&amp;amp;source=kevleitch&amp;amp;style=normal&amp;amp;b=2" height="61" width="50" /&gt;
			&lt;/a&gt;
		&lt;/div&gt;	&lt;p&gt;Two stories out today show&lt;/p&gt;

	&lt;p&gt;In the first (see Teacher gets lengthy suspension after student put in box) as part of a &amp;#8220;time out&amp;#8221; punishment.   A large cardboard box was found in a classroom.  When a parent asked what the box was for, she was told that the box was for time outs for another child.  The parent took a picture to document the box.  Good thing as shortly afterwards the box was removed.&lt;/p&gt;

	&lt;p&gt;&lt;script src="http://www.wcnc.com/templates/belo_embedWrapper.js?storyid=152302135&amp;#38;pos=top&amp;#38;swfw=470"&gt;&lt;/script&gt;&lt;object id="bimvidplayer0" width="235" height="132" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000"&gt;     &lt;param value="true" name="allowfullscreen"/&gt;    &lt;param value="always" name="allowscriptaccess"/&gt;    &lt;param value="high" name="quality"/&gt;    &lt;param value="true" name="cachebusting"/&gt;    &lt;param value="#000000" name="bgcolor"/&gt;      &lt;param value="config=http://www.wcnc.com/?j=152302135&amp;#38;ref=http://www.wcnc.com/news/local/Suspension-extended-for-teacher-accused-of-putting-student-in-box-152302135.html" name="flashvars"/&gt;    &lt;embed src="http://swfs.bimvid.com/bimvid_player-3_2_7.swf?x-bim-callletters=WCNC" type="application/x-shockwave-flash" width="235" height="132" allowfullscreen="true" allowscriptaccess="always" cachebusting="true" flashvars="config=http://www.wcnc.com/?j=152302135&amp;#38;ref=http://www.wcnc.com/news/local/Suspension-extended-for-teacher-accused-of-putting-student-in-box-152302135.html" bgcolor="#000000" quality="true"&gt;    &lt;/embed&gt;&lt;br /&gt;
&lt;/object&gt;&lt;script src="http://www.wcnc.com/templates/belo_embedWrapper.js?storyid=152302135&amp;#38;pos=bottom"&gt;&lt;/script&gt;&lt;/p&gt;

	&lt;p&gt;According to the story that goes along with the video:&lt;/p&gt;

	&lt;p&gt;&lt;blockquote&gt;A middle school special education teacher accused of forcing a child with special needs into a cardboard box as punishment has been suspended without pay.&lt;/blockquote&gt;&lt;/p&gt;



	&lt;p&gt;In another school-related story, a high school in Texas handed out year books that cited the disabilities of the special education students attending, including referring to some as mentally retarded:&lt;/p&gt;

	&lt;p&gt;&lt;blockquote&gt;The specific disabilties of students were cited in the yearbook, with some labeled as &amp;#8220;both blind and deaf, as well as mentally retarded,&amp;#8221; &lt;span class="caps"&gt;KDFW&lt;/span&gt; reported.&lt;/blockquote&gt;&lt;/p&gt;

	&lt;p&gt;The yearbooks were collected and new ones are being issued.&lt;/p&gt;

	&lt;p&gt;note: this was edited after publication to improve the formatting of this article on the main &lt;span class="caps"&gt;LBRB&lt;/span&gt; page.&lt;/p&gt;
 
				&lt;div&gt;
					&lt;h4&gt;3 comment(s) for this post:&lt;/h4&gt;&lt;ol&gt;
						  &lt;li&gt;&lt;img alt='' src='http://0.gravatar.com/avatar/c81059bffe2cf0c3b157401ba1defe72?s=32&amp;amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;passionlessDrone:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/student-placed-in-cardboard-box-for-time-out-others-called-mentally-retarded-in-their-yearbook/#comment-494331"&gt;2012-May-22&lt;/a&gt;&lt;/small&gt;
							@Sullivan - 

Weird little WCNC logo hoses up rendering of front page on some browsers. 

Also, very sad stuff. 
- pD
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://0.gravatar.com/avatar/0281adf2ef5dc7a3556ccd2e494ebdb7?s=32&amp;amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Sullivan:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/student-placed-in-cardboard-box-for-time-out-others-called-mentally-retarded-in-their-yearbook/#comment-494350"&gt;2012-May-22&lt;/a&gt;&lt;/small&gt;
							thans pD.  And, yes, sad. I seriously can't express how these stories affect me.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/766b3557377fd8e5260dd2b34f863421?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;David N. Andrews M. Ed., C. P. S. E.:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/student-placed-in-cardboard-box-for-time-out-others-called-mentally-retarded-in-their-yearbook/#comment-496489"&gt;2012-May-24&lt;/a&gt;&lt;/small&gt;
							The teacher must be stupid for thinking that 'time out' is actually a means of punishing. It isn't. It's a means of withholding positive reinforcement (a different matter entirely and certainly not about removing something pleasant or applying something unpleasant!) ... And time out is not something one uses a cardboard box for. 

I'm sickened....
						  &lt;/li&gt;
					  &lt;/ol&gt;
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		<entry>
		<author>
			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[ASAN: URGENT! Ask Your Senators to Support a Ban on Aversives!]]></title>
		<link rel="alternate" type="text/html" href="http://feedproxy.google.com/~r/LeftBrain/rightBrain/~3/P-4wxk3zYEc/" />
		<id>http://leftbrainrightbrain.co.uk/?p=11413</id>
		<updated>2012-05-21T16:06:53Z</updated>
		<published>2012-05-21T16:06:53Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Autism" /><category scheme="http://leftbrainrightbrain.co.uk" term="Civil Rights" />		<summary type="html"><![CDATA[The Autistic Self Advocacy Network has called an urgent action alert to call for the ban of aversives in the state of Massachusetts, home of the Judge Rotenberg Center. Residents of Massachusetts can call their state senators and support legislation that could stop the use of aversives. Ask Your Senators for a Ban on Aversives [...]]]></summary>
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			&lt;/a&gt;
		&lt;/div&gt;	&lt;p&gt;The&lt;a href="http://autisticadvocacy.org/"&gt; Autistic Self Advocacy Network &lt;/a&gt;has called an urgent action alert to call for the ban of aversives in the state of Massachusetts, home of the Judge Rotenberg Center.  Residents of Massachusetts can call their state senators and support legislation that could stop the use of aversives.&lt;/p&gt;


	&lt;p&gt;&lt;blockquote&gt;&lt;strong&gt;Ask Your Senators for a&lt;br /&gt;
Ban on Aversives in Massachusetts!&lt;/strong&gt;&lt;/p&gt;

	&lt;p&gt;Last Friday, Massachusetts State Senator Brian Joyce filed two amendments to the Senate Ways &amp;#38; Means Budget currently pending in the Massachusetts State Senate. One of these amendments calls for a complete ban of aversives &amp;#8211; also called &amp;#8220;aversive therapy&amp;#8221; &amp;#8211; while the other would restrict their use. If passed, this would ban or limit the use of practices like the contingent electric shock used at the Judge Rotenberg Center (JRC).&lt;/p&gt;

	&lt;p&gt;But it takes more than one senator to get an amendment passed. We urge you to contact your Massachusetts State Senator and ask him or her to sign on to the Joyce amendments banning or restricting the use of aversives. But please hurry, the deadline has been extended to noon (12pm &lt;span class="caps"&gt;EST&lt;/span&gt;) on May 23rd!&lt;/p&gt;

	&lt;p&gt;You can find your Senator&amp;#8217;s phone number or email at  http://www.malegislature.gov/People/Senate. Because of the urgent deadline, calling their office will be the most effective way to contact them.&lt;/p&gt;

	&lt;p&gt;Thank you for your support for the rights and safety of Autistics and other people with disabilities in the great state of Massachusetts.&lt;/p&gt;

	&lt;p&gt;Nothing About Us, Without Us!&lt;/p&gt;

	&lt;p&gt;Sincerely,&lt;br /&gt;
Autistic Self Advocacy Network&lt;br /&gt;

http://autisticadvocacy.org/&lt;/blockquote&gt;&lt;/p&gt;

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		<entry>
		<author>
			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[TPGA: IMFAR 2012: An Update on the ASD DSM-5 Recommendations]]></title>
		<link rel="alternate" type="text/html" href="http://feedproxy.google.com/~r/LeftBrain/rightBrain/~3/Br7OVEY7oNM/" />
		<id>http://leftbrainrightbrain.co.uk/2012/05/tpga-imfar-2012-an-update-on-the-asd-dsm-5-recommendations/</id>
		<updated>2012-05-19T16:57:53Z</updated>
		<published>2012-05-19T16:57:53Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Autism" /><category scheme="http://leftbrainrightbrain.co.uk" term="IMFAR" /><category scheme="http://leftbrainrightbrain.co.uk" term="Science" /><category scheme="http://leftbrainrightbrain.co.uk" term="Thinking Person's Guide to Autism" />		<summary type="html"><![CDATA[There is much discussion on the DSM 5 at IMFAR. This includes talks from Sue Swedo at the stakeholder&#8217;s lunch and a formal (and highly attended) conference talk The Thinking Person&#8217;s Guide to Autism has four of their editors at the conference and has an article on the DSM 5 discussion. IMFAR 2012: An Update [...]]]></summary>
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			&lt;/a&gt;
		&lt;/div&gt;	&lt;p&gt;There is much discussion on the &lt;span class="caps"&gt;DSM 5 &lt;/span&gt; at &lt;span class="caps"&gt;IMFAR&lt;/span&gt;.  This includes talks from Sue Swedo at the stakeholder&amp;#8217;s lunch and a formal (and highly attended) conference talk  The Thinking Person&amp;#8217;s Guide to Autism has four of their editors at the conference and has an article on the &lt;span class="caps"&gt;DSM 5&lt;/span&gt; discussion.&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://thinkingautismguide.blogspot.ca/2012/05/imfar-2012-update-on-asd-dsm-5.html"&gt;&lt;span class="caps"&gt;IMFAR 2012&lt;/span&gt;: An Update on the &lt;span class="caps"&gt;ASD DSM&lt;/span&gt;-5 Recommendations&lt;/a&gt;&lt;/p&gt;


	&lt;p&gt;&lt;blockquote&gt;We spoke with Sue [Swedo] at length both at the &lt;span class="caps"&gt;IMFAR &lt;/span&gt;Stakeholder&amp;#8217;s lunch, and after her &lt;span class="caps"&gt;IMFAR&lt;/span&gt; talk. Any errors or omissions in this summary of her talk are on &lt;span class="caps"&gt;TPGA&lt;/span&gt;. -SR &lt;/blockquote&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://thinkingautismguide.blogspot.ca/2012/05/imfar-2012-update-on-asd-dsm-5.html"&gt;More at the &lt;span class="caps"&gt;TPGA&lt;/span&gt; site. &lt;/a&gt;&lt;/p&gt;

 
				&lt;div&gt;
					&lt;h4&gt;1 comment(s) for this post:&lt;/h4&gt;&lt;ol&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/539aefeba7aa7eaafc2b4cdeaf0847f0?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;RAJensen:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/tpga-imfar-2012-an-update-on-the-asd-dsm-5-recommendations/#comment-492242"&gt;2012-May-20&lt;/a&gt;&lt;/small&gt;
							What impact will DSM5 have on prevelance rates or access to services in toddlers? Matson et al diagnosed a very large group of toddlers currently diagnosed with autism (DSM-IV). 2,721 toddlers participated in the study. The result: 47% of toddlers currently diagnosed with autism would not be diagnosed with autism according to the new DSM5 proposal. This replicates two previous studies that found DSM5 will diagnose fewer people with autism. The previous studies looked at older children and adolescents and adults. This is the first study that looked at toddlers:
 
http://www.ncbi.nlm.nih.gov/pubmed/22582849

So far, four groups have looked at the impact of DSM5 as it relates to autism. Only one group found little change, the DSM5 group. All three other groups found that large numbers of toddlers, adolescents and adults will no longer meet diagnostic criteria for autism. Only DSM5 own field trials have reported no difference.

The ICD-11 working group for autism, chaired by Sir Michael Rutter, also disagrees with the entire DSM5 concept and methodolgy.

Time to put DSM5 on hold for a few more years?
						  &lt;/li&gt;
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		<entry>
		<author>
			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[Some first-hand reports from IMFAR]]></title>
		<link rel="alternate" type="text/html" href="http://feedproxy.google.com/~r/LeftBrain/rightBrain/~3/py6ZzlyMDKQ/" />
		<id>http://leftbrainrightbrain.co.uk/?p=11408</id>
		<updated>2012-05-19T00:04:03Z</updated>
		<published>2012-05-18T22:07:24Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Autism" /><category scheme="http://leftbrainrightbrain.co.uk" term="IMFAR" />		<summary type="html"><![CDATA[Here are some reports that have been written on IMFAR so far. IMFAR is a three day conference, with one pre-conference day. Saturday (tomorrow) is the last day. Thinking Person&#8217;s Guide to Autism IMFAR 2012: Genetic Variants in ASD IMFAR 2012: On Communicating Autism Science Autism: Friendships in Adolescence from IMFAR 2012 IMFAR 2012 Press [...]]]></summary>
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			&lt;a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2012%2F05%2Fsome-first-hand-reports-from-imfar%2F"&gt;
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		&lt;/div&gt;	&lt;p&gt;Here are some reports that have been written on &lt;span class="caps"&gt;IMFAR&lt;/span&gt; so far.  &lt;span class="caps"&gt;IMFAR&lt;/span&gt; is a three day conference, with one pre-conference day.  Saturday (tomorrow) is the last day.&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://thinkingautismguide.blogspot.com"&gt;Thinking Person&amp;#8217;s Guide to Autism&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://thinkingautismguide.blogspot.com/2012/05/imfar-2012-genetic-variants-in-asd.html"&gt;&lt;span class="caps"&gt;IMFAR 2012&lt;/span&gt;: Genetic Variants in &lt;span class="caps"&gt;ASD&lt;/span&gt;&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://thinkingautismguide.blogspot.com/2012/05/imfar-2012-on-communicating-autism.html"&gt;&lt;span class="caps"&gt;IMFAR 2012&lt;/span&gt;: On Communicating Autism Science&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://thinkingautismguide.blogspot.com/2012/05/autism-friendships-in-adolescence-from.html"&gt;Autism: Friendships in Adolescence from &lt;span class="caps"&gt;IMFAR 2012&lt;/span&gt;&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://thinkingautismguide.blogspot.com/2012/05/imfar-2012-press-conference.html"&gt;&lt;span class="caps"&gt;IMFAR 2012 &lt;/span&gt;Press Conference&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://autismsciencefoundation.wordpress.com"&gt;Autism Science Foundation&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://autismsciencefoundation.wordpress.com/2012/05/18/reactions-from-imfar-travel-grantees-day-2/"&gt;Reactions from &lt;span class="caps"&gt;IMFAR &lt;/span&gt;Travel Grantees: Day 2&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="http://autismsciencefoundation.wordpress.com/2012/05/17/reactions-from-imfar-travel-grantees-day-1/"&gt;Reactions from &lt;span class="caps"&gt;IMFAR &lt;/span&gt;Travel Grantees: Day 1&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;Follow Twitter streams&lt;/p&gt;

	&lt;p&gt;&lt;a href="https://twitter.com/#!/search/imfar"&gt;&lt;span class="caps"&gt;IMFAR&lt;/span&gt;&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;a href="https://twitter.com/#!/search/%23imfar2012"&gt;#IMFAR2012&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;Edit to add:&lt;/p&gt;

	&lt;p&gt;Here&amp;#8217;s an article by Estee Klar:&lt;br /&gt;
&lt;a href="http://www.esteeklar.com/2012/05/18/my-first-impressions-of-imfar-2012/"&gt;My First Impressions of &lt;span class="caps"&gt;IMFAR 2012&lt;/span&gt;&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;I hope to have some articles by autistics soon.&lt;/p&gt;
 
				&lt;div&gt;
					&lt;h4&gt;12 comment(s) for this post:&lt;/h4&gt;&lt;ol&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/fa269533fc7efeb75d6b7b0eb3eee4c5?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Kassiane:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/some-first-hand-reports-from-imfar/#comment-492204"&gt;2012-May-20&lt;/a&gt;&lt;/small&gt;
							"I hope to have some articles by autistics soon."

Oh that's adorable. You think we can afford IMFAR. It costs more than an awful lot of us (most of us?) make in a month or 6.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://0.gravatar.com/avatar/0281adf2ef5dc7a3556ccd2e494ebdb7?s=32&amp;amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Sullivan:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/some-first-hand-reports-from-imfar/#comment-492395"&gt;2012-May-20&lt;/a&gt;&lt;/small&gt;
							

A careful eye would note that autistic reports are already included in the links above. The Autism Science Foundation links include brief reports from Melissa Shimek, for example. 

http://autismsciencefoundation.wordpress.com/2012/05/14/better-know-an-imfar-grantee-melissa-shimek-and-meagan-thompson/

Are you unaware that your fellow TPGA editor Corina Becker attended?  Carol Greenburg?

Alex Plank, John Robison, Kerry (fb.me/ZXi3AvsE) all should report back soon or have already .

I'd love to see IMFAR more accessible financially to autistics, but let's stick to facts. 
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/fa269533fc7efeb75d6b7b0eb3eee4c5?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Kassiane:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/some-first-hand-reports-from-imfar/#comment-492483"&gt;2012-May-20&lt;/a&gt;&lt;/small&gt;
							Yeah I'm aware.
I also know that it is financially inaccessible to the vast majority of autistics. I know that it was like right next door to Corina (and that it was a struggle). I know that Alex is on the Autism Speaks payroll, as is John Robison. I know that JER has been classist since before he heard the word autism. I know Stephen Shore was also there, and that like the rest of this group, with the possible exception of Corina, he can more or less pass. 
I know that for your average autistic I am doing financially pretty well, even though I live well below the poverty line. I know how much I *didn't* eat to afford every conference I ever made it to-and those are the ones with rates specifically for autistics, and that was being 4+ to a hotel room.

IMFAR, like all autism conferences (with the exception of AutCom) is financially inaccessible, and that's not even going into the fun of paying all that money to hear how broken you are.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/9e5afb3e3eac6dc0abe1acde4413b6bb?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Marjorie Madfis:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/some-first-hand-reports-from-imfar/#comment-492942"&gt;2012-May-21&lt;/a&gt;&lt;/small&gt;
							I am a parent who was a grantee of Autism Science Foundation.  They cover $1000 of the cost, which for me covered registration, hotel and airfare.  I paid for meals and airport transfers, etc.  So I recommend that you apply for next year. It was very techinical but I found sessions that were appropriate for my interests.  The posters were really informative.  I started a blog so perhaps that may be informative from a parent perspective.  Let me know what you think.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://0.gravatar.com/avatar/0281adf2ef5dc7a3556ccd2e494ebdb7?s=32&amp;amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Sullivan:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/some-first-hand-reports-from-imfar/#comment-493170"&gt;2012-May-21&lt;/a&gt;&lt;/small&gt;
							Kassiane,

I hope this reads sincerely--I wish I had the money to sponsor you to go to IMFAR.  I'd like to see researchers get your perspective.

Not all of IMFAR is the "broken autistic" message, but it is there.  

Yes, IMFAR is out of the financial realm of possibility for a lot of people.  My guess is that Marjorie Madfis stayed someone fairly inexpensive to make the $1000 cover so much.  Of course this is even more difficult for autistics.  Interesting how soon this came following on Paul Shattuck's study on unemployment and underemployment for autistics.  The &lt;a href="http://www.autism-insar.org/imfar-pre-conference" rel="nofollow"&gt;pre-conference event&lt;/a&gt; this year was a good move.  I heard talk of trying to put some of the talks online last year.  

One thing that needs to be added to this discussion is the fact that for many autistics no amount of money would make the IMFAR accessible.
						  &lt;/li&gt;
					  &lt;/ol&gt;
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		<entry>
		<author>
			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[Adult Outcomes in Autism: A Prospective Longitudinal Examination of the Effects of Early Intensive Intervention: A 20 Year Follow-Up]]></title>
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		<id>http://leftbrainrightbrain.co.uk/?p=11402</id>
		<updated>2012-05-18T00:37:25Z</updated>
		<published>2012-05-18T06:00:56Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Autism" />		<summary type="html"><![CDATA[It&#8217;s been over 25 years since Ivar Lovaas published a study on Applied Behavioral Analysis which would made ABA therapy (for good or bad, you can find vocal proponents of both opinions) the &#8220;gold standard&#8221; for young autistic children. Now, some of the children who participated in the early studies and ABA programs are adults. [...]]]></summary>
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			&lt;a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2012%2F05%2Fadult-outcomes-in-autism-a-prospective-longitudinal-examination-of-the-effects-of-early-intensive-intervention-a-20-year-follow-up%2F"&gt;
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			&lt;/a&gt;
		&lt;/div&gt;	&lt;p&gt;It&amp;#8217;s been over 25 years since Ivar Lovaas &lt;a href="http://homepage.psy.utexas.edu/homepage/class/Psy394Q/Research%20Design%20Class/Assigned%20Readings/Validity%20Lecture/Lovass87.pdf"&gt;published a study&lt;/a&gt; on Applied Behavioral Analysis which would made &lt;span class="caps"&gt;ABA&lt;/span&gt; therapy (for good or bad, you can find vocal proponents of both opinions) the &amp;#8220;gold standard&amp;#8221; for young autistic children.&lt;/p&gt;

	&lt;p&gt;Now, some of the children who participated in the early studies and &lt;span class="caps"&gt;ABA&lt;/span&gt; programs are adults.  &lt;a href="http://anp.ucsf.edu/aboutus/faculty/bsiegel"&gt;Bryna Siegel&lt;/a&gt;, a professor at the Univerisity of California at San Francisco is presenting preliminary results on adult outcomes at &lt;span class="caps"&gt;IMFAR&lt;/span&gt;.  I&amp;#8217;ve been waiting for the abstract for some time since reading the title of the talk online.  Unfortunately, the work is obviously very preliminary.  One can hope that more will be presented at &lt;span class="caps"&gt;IMFAR&lt;/span&gt; and more will come.&lt;/p&gt;

	&lt;p&gt;&lt;blockquote&gt;B. Siegel1, T. Sendowski2, O. Park3, S. Radhakrishna3 and W. Phuchareon3, (1)University of California, San Francisco, University of California, San Francisco, San Francisco, CA, United States, (2)Child and Adolescent Psychiatry, University of California, San Francisco, San Francisco, CA, (3)Children&amp;#8217;s Center at Langley Porter, Child and Adolescent Psychatiry, University of California, San Francisco, San Francisco, CA&lt;/p&gt;

	&lt;p&gt;Title: Adult Outcomes in Autism: A Prospective Longitudinal Examination of the Effects of Early Intensive Intervention: &lt;span class="caps"&gt;A 20 &lt;/span&gt;Year Follow-Up&lt;/p&gt;

	&lt;p&gt;Background: In the past 15 years, estimates of autism prevalence have increased to as high as 1:110 presently (2008, &lt;span class="caps"&gt;CDC&lt;/span&gt;).  Utilization of special education, speech and language therapies, social skills training and occupational therapy by individuals with autism has increased dramatically, yet little is known about long-term effectiveness of this costly resource allocation (GAO, 2005). It is known that 95% of California adults with autism are unemployed and not living independently (SMART, 2010).  Young adults with autism who are now 21-26 years old are the first cohort to have received early intensive behavioral interventions (EIBI), now the legal standard for a &amp;#8216;free and appropriate public education&amp;#8217; (IDEA, 2004).  It is now critical to ascertain whether this cohort, the first to receive &lt;span class="caps"&gt;EIBI&lt;/span&gt;, is better prepared for adulthood as it makes this transition.&lt;/p&gt;

	&lt;p&gt;Objectives: This preliminary study will examine whether 1) pre-treatment diagnosis and cognitive characteristics, or 2) receipt of &lt;span class="caps"&gt;EIBI&lt;/span&gt; or not, accounts for the most variance in adult outcomes.&lt;/p&gt;

	&lt;p&gt;Methods:  We used a prospective longitudinal methodology relying on archival data from the &lt;span class="caps"&gt;UCSF &lt;/span&gt;Autism Archive. The archive includes initial diagnostic and cognitive assessments gathered by primary clinicians when these, now adult, subjects were 0-5 years old, as well as data indicating whether &lt;span class="caps"&gt;EIBI&lt;/span&gt; or less intensive interventions were then being used.  Ss were re-contacted as adults, along with their caregivers, and new diagnostic (DSM-IV, &lt;span class="caps"&gt;ADOS&lt;/span&gt;), adaptive behavior (VABS), and status variables (living situation, employment) were collected.  Data on interim treatment intervention were collected based on caregiver report. Intensity of services were indexed by numbers of a) one-to-one treatment hours per week b) total treatment hours, and c) ratio of one-to-one hours/ total treatment hours. This is an important study as pre-treatment data and treatment status data were collected prospectively.&lt;/p&gt;

	&lt;p&gt;Results:  To date, we have identified 49 Ss initially seen at 0-5 years of age, before initiation of any &lt;span class="caps"&gt;EIBI&lt;/span&gt; who remain in our catchment area.  We so far, have re-contacted 8 families scheduled for the post-test assessment.  Telephone interviewing suggests some of these Ss were 1) low functioning initially, received &lt;span class="caps"&gt;EIBI&lt;/span&gt; and remain low functioning, 2) that some were high functioning, did not receive &lt;span class="caps"&gt;EIBI&lt;/span&gt; and remain high functioning, and 3) that some were high functioning, received &lt;span class="caps"&gt;EIBI&lt;/span&gt; and remain high functioning.&lt;br /&gt;
&lt;/blockquote&gt;&lt;/p&gt;


	&lt;p&gt;Conclusions: We will present preliminary findings on a small sample of at least 20 Ss that represent these three groups and provide preliminary discussion of pre-test and treatment data that may explain outcomes.&lt;/p&gt;
 
				&lt;div&gt;
					&lt;h4&gt;6 comment(s) for this post:&lt;/h4&gt;&lt;ol&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/78ed731b2f4abb13f489b685a5e26c2b?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Anne:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/adult-outcomes-in-autism-a-prospective-longitudinal-examination-of-the-effects-of-early-intensive-intervention-a-20-year-follow-up/#comment-489985"&gt;2012-May-18&lt;/a&gt;&lt;/small&gt;
							Am I getting the right impression that (at least in this tiny group studied), EIBI was not found to improve daily functioning of autistics?

Is this because autistics can't improve their skills, or because EIBI tends to focus on "quiet hands" and similar normalization instead of improving useful communication and real-life skills? 

I know of (personally and through their writing) more autistics than were interviewed for this study who definitely improved as a result of parents and teachers working with them in ways that may not qualify as EIBI.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://1.gravatar.com/avatar/3f71b6fdc7db38bb45245acece8ac833?s=32&amp;amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Laurentius Rex:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/adult-outcomes-in-autism-a-prospective-longitudinal-examination-of-the-effects-of-early-intensive-intervention-a-20-year-follow-up/#comment-490686"&gt;2012-May-18&lt;/a&gt;&lt;/small&gt;
							Aha it is that time of year again is it.

I call this the "IMFAR effect"

Oh well I can't see my ever getting a paper accepted at IMFAR, I did not even bother this year. I'm content to do the disability studies circuit, I have an interesting one coming up in September, "The social construction of the Savant" it won't be what some people want to hear, and if I am lucky I will be doing a political later on.
						  &lt;/li&gt;
						  &lt;li&gt;&lt;i&gt;Autism Blog &amp;#8211; Adult Outcomes in Autism: A Prospective Longitudinal &amp;#8230; | My Autism Site | All About Autism:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/adult-outcomes-in-autism-a-prospective-longitudinal-examination-of-the-effects-of-early-intensive-intervention-a-20-year-follow-up/#comment-490748"&gt;2012-May-18&lt;/a&gt;&lt;/small&gt;
							[...] Go here to see the original: Autism Blog &amp;#8211; Adult Outcomes in Autism: A Prospective Longitudinal &amp;#8230; [...]
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://0.gravatar.com/avatar/cdeb468ca6c9b977f8a976612ba04a05?s=32&amp;amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;stanley seigler:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/adult-outcomes-in-autism-a-prospective-longitudinal-examination-of-the-effects-of-early-intensive-intervention-a-20-year-follow-up/#comment-491010"&gt;2012-May-19&lt;/a&gt;&lt;/small&gt;
							@LBRB It’s been over 25 years since Ivar Lovaas published a study on Applied Behavioral Analysis which would made ABA therapy (for good or bad, you can find vocal proponents of both opinions) the “gold standard” for young autistic children...

25 years would be 1987...my daughter and some of her peers received lovaas' ABA at UCLA around 1968-80...anecdotal evidence does not indicate ABA was a gold standard...except in the opine of the ABA promotional scientists...

any studies to indicate long term result of ABA (1968-80) on classic kanner autism...specifically the non verbals...
						  &lt;/li&gt;
						  &lt;li&gt;&lt;img alt='' src='http://0.gravatar.com/avatar/0281adf2ef5dc7a3556ccd2e494ebdb7?s=32&amp;amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /&gt;&lt;i&gt;Sullivan:&lt;/i&gt;
							&lt;br /&gt;
							&lt;small&gt;&lt;a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2012/05/adult-outcomes-in-autism-a-prospective-longitudinal-examination-of-the-effects-of-early-intensive-intervention-a-20-year-follow-up/#comment-492105"&gt;2012-May-20&lt;/a&gt;&lt;/small&gt;
							Stanley seigler,

I think you hit on the reason I put "gold standard" in quotes.  

Word from the conference is that the poster was still very preliminary. 
						  &lt;/li&gt;
					  &lt;/ol&gt;
				  &lt;/div&gt;
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		<entry>
		<author>
			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[ASAN: Urge For the Ban on Aversives in Massachusetts!]]></title>
		<link rel="alternate" type="text/html" href="http://feedproxy.google.com/~r/LeftBrain/rightBrain/~3/-TFJxtFs0XY/" />
		<id>http://leftbrainrightbrain.co.uk/2012/05/asan-urge-for-the-ban-on-aversives-in-massachusetts/</id>
		<updated>2012-05-18T04:13:19Z</updated>
		<published>2012-05-18T04:13:19Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Advocacy" /><category scheme="http://leftbrainrightbrain.co.uk" term="Autism" /><category scheme="http://leftbrainrightbrain.co.uk" term="Civil Rights" /><category scheme="http://leftbrainrightbrain.co.uk" term="Disability" /><category scheme="http://leftbrainrightbrain.co.uk" term="Politics" />		<summary type="html"><![CDATA[This action alert is from ASAN: Urge For the Ban on Aversives in Massachusetts! Tomorrow, May 18th, 2012, Massachusetts State Senator Brian Joyce will be filing two amendments to the Senate Ways &#38; Means Budget currently pending in the Massachusetts State Senate. One of these amendments calls for a complete ban of aversives &#8211; also [...]]]></summary>
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			&lt;/a&gt;
		&lt;/div&gt;	&lt;p&gt;This action alert is from &lt;span class="caps"&gt;ASAN&lt;/span&gt;:&lt;/p&gt;


	&lt;p&gt;&lt;blockquote&gt;Urge For the Ban on Aversives in Massachusetts!&lt;/p&gt;

	&lt;p&gt;Tomorrow, May 18th, 2012, Massachusetts State Senator Brian Joyce will be filing two amendments to the Senate Ways &amp;#38; Means Budget currently pending in the Massachusetts State Senate. One of these amendments calls for a complete ban of aversives &amp;#8211; also called &amp;#8220;aversive therapy&amp;#8221; &amp;#8211; while the other would restrict their use. If passed, this would ban or limit the use of practices like the contingent electric shock used at the Judge Rotenberg Center (JRC).&lt;/p&gt;

	&lt;p&gt;But it takes more than one senator to get an amendment passed. We urge you to contact your Massachusetts State Senator and ask him or her to sign on to the Joyce amendments banning or restricting the use of aversives. But please hurry- they have to have signed on by the noon (12pm &lt;span class="caps"&gt;EST&lt;/span&gt;), May 18th deadline!&lt;/p&gt;

	&lt;p&gt;You can find your Senator&amp;#8217;s phone number or email at  http://www.malegislature.gov/People/Senate. Because of the urgent deadline, calling their office will be the most effective way to contact them.&lt;/p&gt;

	&lt;p&gt;Thank you for your support for the rights and safety of Autistics and other people with disabilities in the great state of Massachusetts.&lt;/p&gt;

	&lt;p&gt;Nothing About Us, Without Us!&lt;/p&gt;

	&lt;p&gt;Sincerely,&lt;br /&gt;
Autistic Self Advocacy Network&lt;br /&gt;

http://autisticadvocacy.org&lt;/blockquote&gt;&lt;/p&gt;

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		<entry>
		<author>
			<name>Sullivan</name>
						<uri>http://leftbrainrightbrain.co.uk</uri>
					</author>
		<title type="html"><![CDATA[Study Finds Early Childhood Educators Can Effectively Screen Students For Autism In Underserved Communities]]></title>
		<link rel="alternate" type="text/html" href="http://feedproxy.google.com/~r/LeftBrain/rightBrain/~3/gtxKjdD1amY/" />
		<id>http://leftbrainrightbrain.co.uk/?p=11396</id>
		<updated>2012-05-17T17:42:31Z</updated>
		<published>2012-05-17T17:42:31Z</published>
		<category scheme="http://leftbrainrightbrain.co.uk" term="Autism" /><category scheme="http://leftbrainrightbrain.co.uk" term="Epidemiology" /><category scheme="http://leftbrainrightbrain.co.uk" term="Science" />		<summary type="html"><![CDATA[Studies presented at IMFAR this year addresses the problem of how to effectively screen children for autism in underserved communities. Many studies have shown that the rates of identified autism are lower in racial and ethnic minorities and those with lower socio-economic status. For example, CDC autism prevalence estimates routinely show lower estimated prevalence for [...]]]></summary>
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		&lt;/div&gt;	&lt;p&gt;Studies presented at &lt;a href="http://www.autism-insar.org/imfar-annual-meeting/imfar-2012"&gt;&lt;span class="caps"&gt;IMFAR &lt;/span&gt;&lt;/a&gt; this year addresses the problem of how to effectively screen children for autism in underserved communities. Many studies have shown that the rates of identified autism are lower in racial and ethnic minorities and those with lower socio-economic status.  For example, &lt;a href="http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6103a1.htm"&gt;&lt;span class="caps"&gt;CDC&lt;/span&gt; autism prevalence estimates&lt;/a&gt; routinely show lower estimated prevalence for Hispanic or African American students.  This suggests the possibility that a large fraction of the autism population remains unidentified and under served.&lt;/p&gt;

	&lt;p&gt;The study authors propose using teachers to actively participate in the community screening efforts. From &lt;a href="http://www.childrens-specialized.org/Newsroom/News/Study-Finds-Early-Childhood-Educators-Can-Effectiv.aspx"&gt;Study Finds Early Childhood Educators Can Effectively Screen Students For Autism In Underserved Communities&lt;/a&gt;&lt;/p&gt;

	&lt;p&gt;&lt;blockquote&gt;In a study with national implications, researchers at Children&amp;#8217;s Specialized Hospital found that in underserved communities using teachers to screen for autism in preschools and day care centers is more effective than the current system that relies solely on parents and pediatricians to identify the disorder.&lt;/blockquote&gt;&lt;/p&gt;

	&lt;p&gt;Two studies from this group presented at &lt;span class="caps"&gt;IMFAR&lt;/span&gt; are: &lt;a href="http://imfar.confex.com/imfar/2012/webprogram/Paper10929.html"&gt;Parent-Teacher Agreement on An Autism Screener in An Underserved Preschool Population&lt;/a&gt; and &lt;a href="http://imfar.confex.com/imfar/2012/webprogram/Paper11288.html"&gt;Feasibility of Autism Screening in Underserved Populations&lt;/a&gt;.&lt;/p&gt;

	&lt;p&gt;From the news story:&lt;/p&gt;

	&lt;p&gt;&lt;blockquote&gt;&amp;#8220;We found that unless we go out into underserved communities we are going to be missing many children who have autism,&amp;#8221; said lead researcher Dr. Yvette Janvier, developmental/behavioral pediatrician and medical director &amp;#8211; Toms River, Children&amp;#8217;s Specialized Hospital. &amp;#8220;This is the first study to look at using teachers in preschools and day care centers to screen for autism.&amp;#8221;&lt;/blockquote&gt;&lt;/p&gt;

	&lt;p&gt;The idea is so simple.  Probably not surprising to many of us.  From my own experience, I recall early intervention therapists telling us that they couldn&amp;#8217;t tell parents about suspicions of autism for the children.  They weren&amp;#8217;t just not being engaged in the screening process, they were being told to keep quiet.&lt;/p&gt;

	&lt;p&gt;If the name of Dr. Yvette Janvier sounds familiar, she was a member of the previous Interagency Autism Coordinating Committee (IACC).&lt;/p&gt;
 
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