Gluten Free Winston-Salem

Celiac Disease Clinical Trial

2012-02-28T08:55:00.000-08:00

Do you or someone you know have Celiac Disease?

Follow a Gluten-free diet?
Still experiencing symptoms when exposed to gluten?
Interested in Celiac Research?

The purpose of the research study is to look at how effective and safe an investigational medication is when it is given to subjects who have Celiac Disease. The study will include people who have been diagnosed with Celiac Disease and have been on a gluten-free diet for 12 months or more before study entry.

You may qualify for the study if you:
• Are between the ages of 18 and 75 and have been diagnosed with Celiac Disease
• Have biopsy proven Celiac Disease and positive serology test results for 12 months or more before study entry
• Have been on a gluten-free diet for 12 months or more before study entry
• Are still experiencing symptoms when exposed to gluten
• Have positive serum anti-tTG (IgA or IgG) or DGP (IgA or IgG) antibodies at screening
• Are willing to maintain your current diet for the duration of the study
• Satisfy other inclusion criteria

For more information call 336.714.7672 or visit www.pmgofwinstonsalem.com

Reminder: Next NCPTGIG meeting on Sept. 24

2011-09-08T16:51:00.000-07:00

The NCPTGIG will meet on September 24, 2011 at the Wachovia Scouting Center (6600 Silas Creek Parkway, Winston Salem, 27106) from 11:00 AM to ~1:00 PM. Dr. Marcie Drury Brown, MD, a pediatric endocrinologist, will speak on celiac disease and related disorders. Kathleen Sigler, MS, RD, LDN, will present a 7 day lunch plan for students. There will also be activities for the children and a chance for them to talk individually with Kathleen Sigler. A gluten-free potluck will follow, so bring your favorite gluten-free fare (and 12 copies of your recipe, with a list of potential allergens). Door prizes, including a goodie basket from Anna Lilly, will be presented!

Schedule:
11:00 AM - 11:45 AM, presentation by Marcie Drury Brown, MD
11:00 AM - 11:45 PM, cooking (or board game) activity for the children (led by Debbie and Drew Fisher)
11:45 AM - 12:00 PM, 7 day lunch menu by Kathleen Sigler, MS, RD, LDN

Updates will be posted on the blog (http://www.yadkinvalleyglutenfree.org) and on Facebook (http://www.facebook.com/pages/Yadkin-Valley-Gluten-Free/121404221277323).

Please RSVP at your earliest convenience: yadkinglutenfree@me.com or 336-618-1086
See you on the 24th!

NC Piedmont Triad GIG meeting and picnic this Saturday!

2011-08-01T05:59:00.000-07:00

Reminder: NCPTGIG meeting and picnic

When: Saturday, August 6, 2011 from 11:00AM to ~1PM

Where: Wachovia Scouting Center (Old Hickory Council), 6600 Silas Creek Parkway, Winston Salem, 27106

More details and contact information at www.yadkinvalleyglutenfree.org

Schedule:
11:00 AM to 12:00 PM
Dr. Jillian Sarno Teta, N.D. will discuss Celiac Disease and Osteoporosis

12:00 PM to ~1:00 PM
Gluten-free picnic lunch

Celiac disease is associated with a fourfold increased risk of non-Hodgkin lymphoma

2011-07-22T14:12:00.000-07:00

Click here to read the summary.

Characteristics of people prone to indigestion

2011-07-21T14:23:00.000-07:00

Click here to read the article by Patricia Hill, Winston-Salem Digestive Health Examiner

See you on August 6!

2011-07-21T13:54:00.000-07:00

Hi everone,
I've been busy trying to purchase a farm and have neglected my blogging and site updates for a week or so. Sorry about that. I'll try to catch up this weekend.
Don't forget about the upcoming NCPTGIG August 6th meeting and picnic. Dr. Jillian Teta will talk about celiac disease and osteoporosis. Check the Meetings/Support page at yadkinvalleyglutenfree.org for details.
Hope to see you there!

Next NCPTGIG meeting August 6, 2011

2011-07-05T06:42:00.000-07:00

The North Carolina Piedmont Triad Gluten Intolerance Group will meet on August 6, 2011 at the Wachovia Scouting Center (6600 Silas Creek Parkway, Winston Salem, 27106) from 11:00 AM to ~1:00 PM. Dr. Jillian Sarno Teta, ND will speak on celiac disease and osteoporosis. A gluten-free cookout will follow, so bring your favorite picnic fare (and 12 copies of your recipe, with a list of potential allergens). Hotdogs, burgers and buns will be provided. Check the blog for more details and to RSVP.
See you there!

Researchers and clinicians from across the world discussed the hot new topic of gluten sensitivity

2011-07-01T06:25:00.000-07:00

View the summary here.

The impact of agriculture on the global diet: gluten intolerance and celiac disease

2011-06-28T08:54:00.000-07:00

Click here for the summary and links to the article.

Study links celiac disease to an increased risk of cataracts

2011-06-28T08:52:00.001-07:00

Researchers at the Karolinska University Hospital in Stockholm, Sweden have discovered that persons with celiac disease have a slightly higher risk of cataracts, compared to non-celiac controls. Co-existing autoimmune diseases, such as diabetes, or nutritional deficiencies may be associated with the increased risk. Click here to read more.

Consider celiac disease in autoimmune disorder patients

2011-06-24T07:33:00.002-07:00

Link to full story here.

Should athletes without celiac disease go gluten free?

2011-06-24T07:33:00.000-07:00

Link to full story here.

1 of every 13 children in the US have food allergies

2011-06-22T09:57:00.000-07:00

Read more on the YVGF blog and at ScienceDaily.

Studies affirm role of food sensitivity in skin and GI disorders

2011-06-21T11:22:00.001-07:00

See blog for link and story.

Grieving gluten?

2011-06-21T11:21:00.001-07:00

Be sure to read "Grieving gluten: the five stages of loss of gluten, plus a new one". Great post on this important topic from the Gluten Free Easily blog. Very inspirational and beautifully written!

Untreated celiac disease results in early menopause

2011-06-20T06:23:00.000-07:00

A new study by clinicians at the Department of Clinical and Experimental Medicine, Federico II University of Naples, has characterized the influence of celiac disease (CD) and the gluten-free diet on the fertile life span and onset of menopause among a cohort of 103 women. Read the summary.

Gluten causes GI symptoms in non-celiac individuals

2011-06-17T08:18:00.000-07:00

In a study by J.R. Biesiekierski et al. "Gluten Causes Gastrointestinal Symptoms in Subjects Without Celiac Disease: A Double-Blind Randomized Placebo-Controlled Trial", investigators at the Monash University Department of Medicine and Gastroenterology have found evidence that gluten intolerance can cause gastrointestinal symptoms in non-celiac individuals. Read the summary.

Am J Gastroenterol. 2011 Mar;106(3):508-14; quiz 515. Epub 2011 Jan 11.

Betty Crocker® Baker’s Challenge Gluten Free Recipe Contest

2011-06-14T08:20:00.000-07:00

Calling all gluten-free bakers! Get an early taste of the holidays with the Betty Crocker^® Baker’s Challenge Gluten Free Recipe Contest!
We’re looking for the most creative and inspired gluten-free holiday recipe made with a Betty Crocker Gluten Free dessert mix or Bisquick^® Gluten Free baking mix. Share how you’ve made your classic favorites work for a gluten-free holiday celebration or created new traditions of your own! It’s your turn to shine!
Entry deadline is June 30, 2011, so grab your favorite mix and get creative! In September, ten finalists will be announced and the Gluten Freely community will vote to decide the $5,000 grand-prize winner.

Upcoming NCPTGIG Meetings for August and September

2011-06-14T05:55:00.000-07:00

The next NCPTGIG meeting will be held on August 6, 2011 at the Wachovia Scouting Center (6600 Silas Creek Parkway, Winston Salem) from 11:00 AM to 2:00 PM. The September meeting will be held on 9/24 at the same location and time. The programs for each will be announced later this week. See the Yadkin Valley Gluten Free local meetings page or Facebook for more details.

Yadkin Valley Gluten Free is now on Facebook

2011-06-13T15:56:00.000-07:00

Click here to visit the new Yadkin Valley Gluten Free Facebook page.

I have a new blog! Yadkinvalleyglutenfree.org!

2011-06-11T17:45:00.000-07:00

Due to ongoing problems with the reliability of the Blogger service, as well as my wish for a site that is of my own creation, I have started a new gluten-free resource at YadkinValleyGlutenFree.org (dot com works also).

Please visit the new site and let me know what you think. I am hoping to create a comprehensive site for all things gluten-free for greater Winston Salem, so please be sure to let me know what you would like to see.

Thanks to everyone for visiting this site and reading my posts these last few months! I really appreciate the feedback. Special thanks to Zach for allowing me to participate as a blogger here at glutenfreewinstonsalem and learn my way around the blogosphere.

I will continue to post here in addition to the new site, so feel free to continue visiting this site for blog updates. In addition to the blog, the new site will have local support group information, area GF events, restaurant listings, recipes, online shopping options, and other useful GF resources.

Thanks!

Deb

Celiac disease quadruples risk of osteoporosis

2011-06-10T06:32:00.000-07:00

Though the association of celiac disease and an increased risk of osteoporosis has been known for some time, a study by researchers at the Lancaster University School of Health and Medicine has shown that having celiac disease increases your risk of osteoporosis by more than four times that of the general population (read more at the jump break below). That is a truly staggering increase.
What can you do to decrease your risk of osteoporosis? Eat a well-balanced diet, get plenty of weight-bearing exercise, maintain a healthy lifestyle (don't smoke and limit alcohol intake), get regular bone density tests to determine your immediate risk, and use preventative medications when necessary. For more information visit the NIH Osteoporosis and Related Bone Diseases National Resource Center.

Source: http://www.endocrineweb.com/news/osteoporosis/6023-celiac-disease-quadruples-risk-osteoporosis

For individuals who are not otherwise at risk for osteoporosis, having celiac disease puts them at more than four times the risk of developing progressive bone loss, according to researchers from the Lancaster University School of Health and Medicine.

This association was announced at the European League Against Rheumatism's 2011 Annual Congress. The UK scientists who discovered the correlation said they did so after collecting bone mass density measurements for more than 1,000 adults with celiac disease.

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) states that more than 2 million Americans have celiac disease, a condition in which an allergy to grain-based gluten results in autoimmune damage to the lining of the intestines.

Researchers think this illness may be inherited. The NIDDK notes that although the national prevalence of celiac disease is roughly one in every 133 people, one in 22 of those who have a first-degree relative with a gluten allergy have the disease themselves.

The National Institutes of Health states that eating fortified breads and cereals, something that people with gluten allergies cannot do, may provide the body with adequate amounts of vitamin D, an essential nutrient for the prevention of osteoporosis.

In the latest study, the team took bone mass density readings of participants' skeletal health using dual-energy x-ray absorptiometry scans. Researchers found that the lumbar vertebrae of individuals with celiac disease were significantly less dense than those without the condition.

Though all participants had no other risk factors for bone loss, the team concluded that having celiac disease boosted the likelihood of osteoporosis by a factor of four and a half, even among otherwise healthy adults.

Because they are so low in the spinal column, the lumbar vertebrae experience the most pressure from the body's mass, which makes them a likely site for osteoporosis-related fractures.

In the U.S., vertebral pressure fractures are the most common skeletal injury caused by progressive bone loss, accounting for more than one-quarter of all osteoporosis-related fractures each year, according to the National Osteoporosis Foundation.

The agency estimates that 547,000 vertebral pressure fractures occur annually.

The UK study is not the first to address the connection between celiac disease and poor bone health. A 2010 report from Canada's University of Alberta found that, on average, children diagnosed with gluten allergies consume less than half the amount of vitamin K they should, as well as too little vitamin D.

Its authors suggested that dietary supplementation may improve the nutrition of children with celiac disease, reducing their likelihood of being osteoporotic later in life.

Gluten Intolerance Group needs Camp Volunteers

2011-06-06T12:19:00.000-07:00

Dear NC Piedmont Triad Gluten Intolerance Group,

It is that time of year again when we need your help. School is getting near the end and our kids are planning their summer vacations. Those plans include summer camp.

We are looking for volunteers to help out at the following locations:

Camp Sealth
Vashon Island, Washington
Session 4: July 20 - 25, 2011
Session 5: July 26 - 29, 2011
Session 4/5: July 20 - 29, 2011

Camp Kanata
Wake Forest, North Carolina
August 7 - 13, 2011

Volunteers will work in the kitchen and will work 6 hour shifts. If you are interested in helping to make this a great time for our celiac kids, please send an email with your name, contact information, and the day(s) you are available to volunteer.

Hope to see you at camp!

Stacey Juhnke
GIG Camp Coordinator

Effects of celiac disease on bone mineral density are pronounced in lumbar spine than femoral neck

2011-05-26T07:50:00.000-07:00

Patients with celiac disease are more than 4.5 times more likely to develop osteoporosis compared to healthy people in an age and gender matched cohort with no identifiable risk factors for osteoporosis, according to a study presented today at the EULAR 2011 Annual Congress.
The British study of 1,030 people compares the extent of bone mineral density (BMD)* loss – a common measure of osteoporosis – in two physical locations in the body. The results demonstrated that the mean BMD of the lumbar spine in patients with coeliac disease was significantly different when compared to the control group (1.79 (95% CI 1.32, 2.44)), however not for the femoral neck vs. control (1.52 (95% CI 0.86, 2.67)).
"This is the first study that compares the extent of BMD loss at the lumbar spine and femoral neck in an age and sex matched cohort, and demonstrates that the detrimental effects of coeliac disease are most pronounced in the lower back compared to the hip joint," said Mr Oldroyd of Lancaster University School of Medicine. "These findings may be due to the fact that the bone in the lumbar spine is spongy, less dense and weaker in comparison to the femoral neck, causing it to be more susceptible to the detrimental effects of coeliac disease. There is greater research required to determine why this effect is seen and whether it can have future implications for treatment."
The authors from Lancaster and the Liverpool area collected results of DEXA scans (used to measure BMD) from 1,030 patients with coeliac disease between June 2004 and September 2007. Scan results of the lumbar spine and femoral neck of patients with coeliac disease were compared to a healthy, age and gender matched cohort, with no identifiable risk factors for osteoporosis. Logistic regression analysis was used to investigate the association between coeliac disease and BMD results for the lumbar spine and femoral neck in the lowest tertile of the whole study cohort.

###

Abstract Number: THU0142
*BMD refers to the amount of matter per cubic centimeter of bones. Measurements are most commonly made over the lumbar spine and over the upper part of the hip. Average density is around 1500 kg m−3. BMD is often measured with a t-score, the number of standard deviations above or below the mean for a healthy 30 year old adult of the same sex and ethnicity as the patient. Average t-scores are as follows:
T-score
Normal: Less than 1 standard deviation (SD) below the young adult reference range (more than -1)
Low bone mass (osteopenia): 1 to 2.5 SDs below the young adult reference range (-1 to -2.5)
Osteoporosis: 2.5 or more SDs below the young adult reference range (-2.5 or less)

http://www.eurekalert.org/pub_releases/2011-05/elar-eoc052511.php

Please note that the June 4 Family Fun Event has been cancelled

2011-05-26T05:21:00.000-07:00

The Gluten Free Family Fun event scheduled for tomorrow, Saturday the 4th has been cancelled. We did not meet the minimum head count needed to host the event. It may be rescheduled for the fall, details to follow.