e-Patient Connections Conference 2009 http://epatient2009.com Learn How to Reach, Engage and Educate Digital Health Consumers Thu, 05 Nov 2009 04:00:56 +0000 http://wordpress.org/?v=2.8.5 en hourly 1 Epatient2009http://feedburner.google.comSubscribe with My Yahoo!Subscribe with NewsGatorSubscribe with My AOLSubscribe with BloglinesSubscribe with NetvibesSubscribe with GoogleSubscribe with PageflakesSubscribe with PlusmoSubscribe with The Free DictionarySubscribe with Bitty BrowserSubscribe with NewsAlloySubscribe with Live.comSubscribe with Excite MIXSubscribe with Attensa for OutlookSubscribe with WebwagSubscribe with Podcast ReadySubscribe with FlurrySubscribe with WikioSubscribe with Daily Rotation Dr. Val Jones – “Tale of Two e-Patients” http://feedproxy.google.com/~r/Epatient2009/~3/WlcYwFB3BqA/dr-val-jones-tale-of-two-e-patients http://epatient2009.com/dr-val-jones-tale-of-two-e-patients#comments Thu, 05 Nov 2009 04:00:01 +0000 admin http://epatient2009.com/?p=1015 In 6 minutes and 40 seconds flat, Dr. Val Jones reminded us all that there is a right way and a wrong way to be an e-patient; and that being empowered doesn’t diminish the role of the physician. See her presentation here ~ http://bit.ly/3pOgPz

Thank you Val.

]]> http://epatient2009.com/dr-val-jones-tale-of-two-e-patients/feed 0 http://epatient2009.com/dr-val-jones-tale-of-two-e-patients Connections, Diversity, and the Start of a Community http://feedproxy.google.com/~r/Epatient2009/~3/obYXSO0bHRA/connections-diversity-and-the-start-of-a-community http://epatient2009.com/connections-diversity-and-the-start-of-a-community#comments Thu, 05 Nov 2009 03:51:49 +0000 admin http://epatient2009.com/?p=1012 We’ve been decompressing and gathering feedback on the first e-Patient Connections conference for a little over a week now.

And overall we think we accomplished our goal to bring together health communicators from different industries to compare and contrast the best ways to connect with empowered, digital patients. The term “connection” has a double meaning – connect with patients, but also connect with each other.

What delighted me the most was the unpredictable ways connections were manifesting themselves at the conference. I learned from dozens and dozens of speakers and attendees. Some of my favorite moments:

“e-Patient Dave deBronkart” publicly thanks Novartis for saving his life.

From patient blogger Diane Bayer, “…after my talk I sat down in the back and this fellow with a pharma company…he told me he was really amazed by my talk because he has a six year old son who has been diagnosed with autism.  Then he proceeded to show me the pictures of his son…and my god…he looked just like my son!  This person had come for business reasons but then we connected in a very human way. ”

Susannah Fox, from Pew Internet and Mark Bard, from Manhattan Research sharing perspectives on e-patient trends and publicly acknowledging that it’s great to be presenting together.

Several tweets and comments about what a great guy Paul Loebach is and how he offers a great face to the FDA. In the breakout sessions he offered some eye opening insights into why the FDA does and doesn’t do certain thing

Jim Currie from “N’Awlins” shouted to me as he was leaving the hotel, “Kevin, my goal is to go back and implement something that is worthy enough to get me invited back to present a case study at next year’s conference.”

The challenge of producing a 2-day conference is nothing compared with the challenge of keeping the community alive beyond the walls of the Bellevue. Hopefully we’ve sparked something that will continue to grow and continue to benefit the patients and caregivers who we ultimately serve.

- Kevin

]]> http://epatient2009.com/connections-diversity-and-the-start-of-a-community/feed 0 http://epatient2009.com/connections-diversity-and-the-start-of-a-community Racing Car Driver Charlie Kimball at e-Patient Connections 2009 http://feedproxy.google.com/~r/Epatient2009/~3/1lRjNTMB0Lk/racing-car-driver-charlie-kimball-at-e-patient-connections-2009 http://epatient2009.com/racing-car-driver-charlie-kimball-at-e-patient-connections-2009#comments Fri, 23 Oct 2009 02:41:05 +0000 admin http://epatient2009.com/?p=1006 And there’s a good reason for it.

In 2007, Kimball was diagnosed with Type 1 diabetes and was forced to abandon his racing program mid season.  Remarkably in 2008, Kimball returned to the cockpit in Formula 3 and claimed a podium finish in his first race back in the car. Kimball has continued to prove that living with diabetes does not have to restrict him in any way.

Charlie has spent the last few years racing in some of the most competitive racing categories in the world including British Formula 3, Formula 3 Euroseries and the World Series by Renault. He continues to be competitive each time he gets behind the wheel of a racing car.

Come hear his story, and how he’s sharing with others on twitter.

]]> http://epatient2009.com/racing-car-driver-charlie-kimball-at-e-patient-connections-2009/feed 0 http://epatient2009.com/racing-car-driver-charlie-kimball-at-e-patient-connections-2009 Special Presentation by e-Patient Dave at e-Patient Connections 2009 http://feedproxy.google.com/~r/Epatient2009/~3/p6ll9o7BS8c/special-presentation-by-e-patient-dave-at-e-patient-connections-2009 http://epatient2009.com/special-presentation-by-e-patient-dave-at-e-patient-connections-2009#comments Wed, 21 Oct 2009 01:18:09 +0000 admin http://epatient2009.com/?p=995 Diagnosed in 2007 with Stage IV, Grade 4 kidney cancer, e-Patient Dave deBronkart learned it had metastasized to both lungs, several bones (eventually snapping his leg), and his tongue, and his median survival time was 24 weeks. Using the internet in every way possible, he learned everything he could, joined an expert patient group on ACOR, built a social network on CaringBridge, and shared his online medical records with anyone who could help.

He beat the odds.

Having faced death, he asked himself what he’d do with his “free replay” in life. He became a healthcare blogger and joined the e-patient movement, where he’s one of the most outspoken advocates for patient engagement. Dave is also now a Founding Co-Chair of the Society for Participatory Medicine. Last month he launched a healthcare consulting practice, and the September issue of Health Leaders features him in the cover story, “The Patient of the Future.”

]]> http://epatient2009.com/special-presentation-by-e-patient-dave-at-e-patient-connections-2009/feed 0 http://epatient2009.com/special-presentation-by-e-patient-dave-at-e-patient-connections-2009 Elizabeth Cohen of CNN speaking at e-Patient Connections 2009! http://feedproxy.google.com/~r/Epatient2009/~3/17T2kH2wmyc/elizabeth-cohen-of-cnn-speaking-at-e-patient-connections-2009 http://epatient2009.com/elizabeth-cohen-of-cnn-speaking-at-e-patient-connections-2009#comments Mon, 19 Oct 2009 13:31:42 +0000 admin http://epatient2009.com/?p=975 Come hear Elizabeth talk about CNNs Empowered Patient and how she educates and motivates for better health – special presentation takes place on Tuesday October 27.

]]> http://epatient2009.com/elizabeth-cohen-of-cnn-speaking-at-e-patient-connections-2009/feed 0 http://epatient2009.com/elizabeth-cohen-of-cnn-speaking-at-e-patient-connections-2009 Speaker Profile: Lee Aase of the Mayo Clinic http://feedproxy.google.com/~r/Epatient2009/~3/r4GEkHJdRNU/speaker-profile-lee-aase-of-the-mayo-clinic http://epatient2009.com/speaker-profile-lee-aase-of-the-mayo-clinic#comments Wed, 14 Oct 2009 19:26:12 +0000 admin http://epatient2009.com/?p=932 Lee Aase is manager of Syndication and Social Media for Mayo Clinic. His team’s focus is developing quality medical news resources for mainstream media, and using social media applications to create more in-depth, extended relationships directly with key stakeholders. For examples of Mayo Clinic’s social media offerings visit www.newsblog.mayoclinic.org or www.sharing.mayoclinic.org.

By night, Lee is Chancellor of Social Media University, Global (SMUG) (www.social-media-university-global.org), a free online higher education institution that provides practical, hands-on training in social media for lifelong learners.

See Lee and learn about Marketing the Mayo Clinic on the first morning of the conference – Monday, October 26.

]]> http://epatient2009.com/speaker-profile-lee-aase-of-the-mayo-clinic/feed 0 http://epatient2009.com/speaker-profile-lee-aase-of-the-mayo-clinic Speaker Profile: Susannah Fox of Pew Internet Research http://feedproxy.google.com/~r/Epatient2009/~3/jQNqy0Cf_0E/speaker-profile-suzannah-fox-of-pew-internet-research http://epatient2009.com/speaker-profile-suzannah-fox-of-pew-internet-research#comments Mon, 12 Oct 2009 12:18:33 +0000 admin http://epatient2009.com/?p=918 Susannah Fox leads the Pew Internet & American Life Project’s health research and oversees the Project’s digital strategy. Some of her recent reports include: The Social Life of Health Information; Twitter and status updating; and Generations Online in 2009.

Susannah is the former editor of the website for U.S. News & World Report magazine. She has also worked as a researcher for RealNetworks and for The Harwood Group. Susannah graduated from Wesleyan University with a degree in anthropology.

Susannah contributes to “e-patients.net”, a multi-author blog about health and health care. She will help set the stage at e-Patient Connections 2009 in her talk about the social life of health information.

Looking forward to it!

]]> http://epatient2009.com/speaker-profile-suzannah-fox-of-pew-internet-research/feed 0 http://epatient2009.com/speaker-profile-suzannah-fox-of-pew-internet-research Small, focused discussions led by industry leaders at e-Patient Connections 2009 http://feedproxy.google.com/~r/Epatient2009/~3/iGGmJxz3Okg/small-focused-discussions-led-by-industry-leaders-at-e-patient-connections-2009 http://epatient2009.com/small-focused-discussions-led-by-industry-leaders-at-e-patient-connections-2009#comments Fri, 09 Oct 2009 17:52:51 +0000 admin http://epatient2009.com/?p=908 We have 5 Special Interest Groups Scheduled.  Diverse, Interesting, Fun – there’s sure to be something for everyone.  In no particular order:

  • PR for Healthcare: Led by Leigh Fazzina, Board, PRSA  Health Academy and Beth Harte, MarketingProfs
  • Games for Health: Led by Doug Goldstein, iConecto
  • Health Publishing: Led by Janice McCallum, Health Content Advisors, InfoCommerce Group
  • How to Develop Best Practice Guidelines for Social Media: Led by John Mack, Pharma Marketing News and Steve Woodruff, Impactiviti
  • Twitter #HCSM: Led by Dana Lewis, #HCSM Moderator

All special interest groups will run twice, once on Monday and once Tuesday, so you don’t have to settle for just one!

]]> http://epatient2009.com/small-focused-discussions-led-by-industry-leaders-at-e-patient-connections-2009/feed 0 http://epatient2009.com/small-focused-discussions-led-by-industry-leaders-at-e-patient-connections-2009 Speaker Profile: Jay Bernhart of the CDC http://feedproxy.google.com/~r/Epatient2009/~3/iudVCLmVdOc/speaker-profile-jay-bernhart-of-the-cdc http://epatient2009.com/speaker-profile-jay-bernhart-of-the-cdc#comments Wed, 07 Oct 2009 19:07:59 +0000 admin http://epatient2009.com/?p=883 Dr. Jay Bernhardt is the Director of the National Center for Health Marketing at the US Centers for Disease Control and Prevention in Atlanta, Georgia. The CDC Marketing Center is one of the newest National Centers at CDC and specializes in health marketing programs and services that are high-impact, science-based, and customer-centered.

Jay’s research and instruction have focused on health communication, social marketing, and media, with an emphasis on information technology, e-health, and strategic communication. He has published more than 30 articles in scholarly journals including the American Journal of Public Health, Journal of Health Communication, and the British Medical Journal.

We can’t wait to hear what he’s got to say!

]]> http://epatient2009.com/speaker-profile-jay-bernhart-of-the-cdc/feed 0 http://epatient2009.com/speaker-profile-jay-bernhart-of-the-cdc 1 to 1 Coaching Sessions – what do you want to learn? http://feedproxy.google.com/~r/Epatient2009/~3/91ZFh2IP-c0/1-to-1-coaching-sessions-what-do-you-want-to-learn http://epatient2009.com/1-to-1-coaching-sessions-what-do-you-want-to-learn#comments Tue, 06 Oct 2009 01:58:15 +0000 admin http://epatient2009.com/?p=877 Our conference agenda is all but nailed down, the materials are going to print, our giveaways are ordered, and we’re working on the last details. One thing’s for sure – the Bellevue will be a bustle of activity for our 2-day event!  As you might know, we’ll have several 1 to 1 coaches available over the 2 days, including people with expertise in twitter, facebook, second life/virtual worlds, Google analytics, and iPhone apps.  We want to make sure there are enough coaches for everyone who wants a lesson, so take a minute and send us info about which topics interest you most!  Reach us at info@kruresearch.com.

Thanks and see you in a few weeks!

]]> http://epatient2009.com/1-to-1-coaching-sessions-what-do-you-want-to-learn/feed 0 http://epatient2009.com/1-to-1-coaching-sessions-what-do-you-want-to-learn