Comments for Athletes Joined Against Spondylitis http://www.joinedagainst.org A 501(c)(3) non-profit entity Wed, 09 May 2012 14:11:04 +0000 hourly 1 http://wordpress.org/?v=3.0.4 Comment on Who tells the story of ankylosing spondylitis? by Wendy http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/vB1dACNpLsA/ Wendy Wed, 09 May 2012 14:11:04 +0000 http://www.joinedagainst.org/?p=176#comment-314 Hi, I am so sorry to hear such anguish. No, there's no link that's been shown or suspected between masturbation and ankylosing spondylitis. You might want to talk to your healthcare provider about the long-term side effects of indometacin. It can effect your digestive system as well as your mental sense of well being. It could be that some other course of treatment might do just as well for your AS without wreaking havoc on the rest of you. Are you able to do any form of exercise? Perhaps some gentle stretching or yoga would at least help. This <a href="http://www.spondylitis.org/about/exercise_posture.aspx" rel="nofollow">web page </a> has a good discussion of exercise for people with AS and offers some books and DVDs that you can buy, as well. It's from the Spondylitis Association of America (they're out in California, and not affiliated with us). Good luck and let us know how you're doing! Hi, I am so sorry to hear such anguish. No, there’s no link that’s been shown or suspected between masturbation and ankylosing spondylitis.

You might want to talk to your healthcare provider about the long-term side effects of indometacin. It can effect your digestive system as well as your mental sense of well being. It could be that some other course of treatment might do just as well for your AS without wreaking havoc on the rest of you.

Are you able to do any form of exercise? Perhaps some gentle stretching or yoga would at least help. This web page has a good discussion of exercise for people with AS and offers some books and DVDs that you can buy, as well. It’s from the Spondylitis Association of America (they’re out in California, and not affiliated with us).

Good luck and let us know how you’re doing!

]]> http://www.joinedagainst.org/who-tells-the-story-of-ankylosing-spondylitis/comment-page-1/#comment-314 Comment on Who tells the story of ankylosing spondylitis? by Frank http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/j-F6-Rit8e0/ Frank Wed, 02 May 2012 22:40:16 +0000 http://www.joinedagainst.org/?p=176#comment-308 I am 51 years old. I had lower back pain and severe sciatica in my twenties. I was very active in my twenties, thirties, and forties. I too went many times to doctors for lower back. This included a chiropractor. It was he who after a severe neck issue wasn't responding to treatment,took xrays and saw bridging,he did not diagnose me but did get me going in the right direction. I have been on Enbrel for about 5 years and it works wonders. I own and operate a very busy family restaurant, walk and exercise daily. Fatigue is sometimes an issue but I think it is more from my work schedule than the AS. I was also 50 pounds heavier and loosing the weight helps too. Anyone can feel free to email me at fcunetto@yahoo.com I'm no expert but I know what works for me. I am 51 years old. I had lower back pain and severe sciatica in my twenties. I was very active in my twenties, thirties, and forties. I too went many times to doctors for lower back. This included a chiropractor. It was he who after a severe neck issue wasn’t responding to treatment,took xrays and saw bridging,he did not diagnose me but did get me going in the right direction. I have been on Enbrel for about 5 years and it works wonders. I own and operate a very busy family restaurant, walk and exercise daily. Fatigue is sometimes an issue but I think it is more from my work schedule than the AS. I was also 50 pounds heavier and loosing the weight helps too. Anyone can feel free to email me at fcunetto@yahoo.com I’m no expert but I know what works for me.

]]> http://www.joinedagainst.org/who-tells-the-story-of-ankylosing-spondylitis/comment-page-1/#comment-308 Comment on Who tells the story of ankylosing spondylitis? by Wendy http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/EPEn8TEQLR4/ Wendy Mon, 26 Mar 2012 12:46:47 +0000 http://www.joinedagainst.org/?p=176#comment-295 Thanks, Tim! Hang in there! Are you still on Embrel? Thanks, Tim! Hang in there! Are you still on Embrel?

]]> http://www.joinedagainst.org/who-tells-the-story-of-ankylosing-spondylitis/comment-page-1/#comment-295 Comment on Who tells the story of ankylosing spondylitis? by Wendy http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/OxH6118Yzic/ Wendy Mon, 26 Mar 2012 12:45:43 +0000 http://www.joinedagainst.org/?p=176#comment-294 Thank you so much for sharing, Julie! How are things going now, especially with your daughter getting bigger? As you can see from the other comments, you are not alone! Hang in there. Thank you so much for sharing, Julie! How are things going now, especially with your daughter getting bigger? As you can see from the other comments, you are not alone! Hang in there.

]]> http://www.joinedagainst.org/who-tells-the-story-of-ankylosing-spondylitis/comment-page-1/#comment-294 Comment on Who tells the story of ankylosing spondylitis? by Wendy http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/65reJxhmVfo/ Wendy Mon, 26 Mar 2012 12:43:43 +0000 http://www.joinedagainst.org/?p=176#comment-293 Thanks, Whitney! Thanks, Whitney!

]]> http://www.joinedagainst.org/who-tells-the-story-of-ankylosing-spondylitis/comment-page-1/#comment-293 Comment on Who tells the story of ankylosing spondylitis? by Wendy http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/HhuBfHMXN_E/ Wendy Mon, 26 Mar 2012 12:43:11 +0000 http://www.joinedagainst.org/?p=176#comment-292 Congratulations, Anastasia! Thank you very much for sharing. Is all still going well? How is your pain level now, with your daughter getting bigger? Congratulations, Anastasia! Thank you very much for sharing. Is all still going well? How is your pain level now, with your daughter getting bigger?

]]> http://www.joinedagainst.org/who-tells-the-story-of-ankylosing-spondylitis/comment-page-1/#comment-292 Comment on Premiums by Wendy http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/Jg8WEpAwyDI/ Wendy Wed, 07 Mar 2012 13:26:19 +0000 http://www.joinedagainst.org/redesign/?p=15#comment-278 Hi Megan! Thanks for contacting us! We would really appreciate your donation -- and since we're a 501(c)(3) nonprofit, your donation would be tax deductible. Where are you located? Please email me at wendy.beckman@joinedagainst.org and we can work out the details. I might not get back to you until next week, though, because this weekend is the first PSP tournament (in Galveston). Thanks again! Your donation will help defray our costs in meeting our primary goal of raising awareness of ankylosing spondylitis. I appreciate it very much. Wendy Hi Megan! Thanks for contacting us!

We would really appreciate your donation — and since we’re a 501(c)(3) nonprofit, your donation would be tax deductible. Where are you located?

Please email me at wendy.beckman@joinedagainst.org and we can work out the details. I might not get back to you until next week, though, because this weekend is the first PSP tournament (in Galveston).

Thanks again! Your donation will help defray our costs in meeting our primary goal of raising awareness of ankylosing spondylitis. I appreciate it very much.

Wendy

]]> http://www.joinedagainst.org/premiums/comment-page-1/#comment-278 Comment on Premiums by megan abders http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/PEg-yCUJ_RU/ megan abders Wed, 29 Feb 2012 00:36:01 +0000 http://www.joinedagainst.org/redesign/?p=15#comment-276 Hello, My name is Megan Anders and I am the Sustainability Intern, Sports and Recreation. We are doing a sports equipment drive and our paintball team wants to donate a bunch of paintball pants, and I am looking for a great place for them to go. Is there someone I can talk to about finding a good home for these pants? Thank you! Megan Anders Hello,

My name is Megan Anders and I am the Sustainability Intern, Sports and Recreation. We are doing a sports equipment drive and our paintball team wants to donate a bunch of paintball pants, and I am looking for a great place for them to go. Is there someone I can talk to about finding a good home for these pants?

Thank you!
Megan Anders

]]> http://www.joinedagainst.org/premiums/comment-page-1/#comment-276 Comment on Who tells the story of ankylosing spondylitis? by Anastasia http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/7EAq0hfaFbU/ Anastasia Wed, 29 Feb 2012 00:35:14 +0000 http://www.joinedagainst.org/?p=176#comment-275 I am a 29 yo female. I have been suffering from back pain and tiredness since I was 7 or 8. I was diagnosed with AS in Netherlands last year. The most severe and constant pain I started to have after I had had a Yersinia bowel infection, six month after having given birth to my doughtier. Just after the delivery I started to have morning back pains. I have been misdiagnised for more than 4 years with a tiny spine hernia which supposed to be the cause to all this pain in back and sacrum. What helped me to release from pain is my physiotherapeut, homeopathy and autotrening, aimed to the work with my immune system. And of course daily excercises min 20-30 minutes. Once a week group ex-cises including warm pool aerobics. I hope my experience will be useful for you! I am a 29 yo female. I have been suffering from back pain and tiredness since I was 7 or 8. I was diagnosed with AS in Netherlands last year. The most severe and constant pain I started to have after I had had a Yersinia bowel infection, six month after having given birth to my doughtier. Just after the delivery I started to have morning back pains. I have been misdiagnised for more than 4 years with a tiny spine hernia which supposed to be the cause to all this pain in back and sacrum.
What helped me to release from pain is my physiotherapeut, homeopathy and autotrening, aimed to the work with my immune system. And of course daily excercises min 20-30 minutes. Once a week group ex-cises including warm pool aerobics. I hope my experience will be useful for you!

]]> http://www.joinedagainst.org/who-tells-the-story-of-ankylosing-spondylitis/comment-page-1/#comment-275 Comment on Who tells the story of ankylosing spondylitis? by WhitneySchacht http://feedproxy.google.com/~r/CommentsForAthletesJoinedAgainstSpondylitis/~3/Bu2KHHjvXeg/ WhitneySchacht Sun, 29 Jan 2012 19:31:08 +0000 http://www.joinedagainst.org/?p=176#comment-273 Hey everyone I looked for a long time for a place to connect with people. There were sites that were charging which I'm sorry with all my medical bills I can't afford. But if your on Facebook look up "ASAP ankylosing spondiltis awareness project" lots of people to talk to, also a chat room that was made. Come join us.....I've looked for a long time and finally have spoke with a few people with a.s ! Hey everyone I looked for a long time for a place to connect with people. There were sites that were charging which I’m sorry with all my medical bills I can’t afford. But if your on Facebook look up “ASAP ankylosing spondiltis awareness project” lots of people to talk to, also a chat room that was made. Come join us…..I’ve looked for a long time and finally have spoke with a few people with a.s !

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